surgery preparation list

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jasperthedog
Regular Member


Date Joined Mar 2008
Total Posts : 68
   Posted 12/19/2008 6:41 PM (GMT -6)   
Hi!  I usually post on the ulcerative colitis boards, but since you have all been through this, I thought this would be a better place to post this topic.  I am having the j pouch surgery on Jan 8th and I was wondering what all of you took with you to the hospital to keep you from being too bored?  I am trying to make a list of everything that I will need and I was hoping you could help.  What are some things that you took and are glad you did?  What are some things you wish you had taken but didn't?  I really want to start getting my things together soon, so I am not scurrying around at the last minute.  Thanks!  Have a great night!
 
CARA  31 years  (female)
Medications:
Humira
Remicade
Proctofoam
Lialda
Prilosec OTC
Vicodin/Tramadol as needed
Phenergran/Zofran as needed
Viactiv Calcium Chews
Digestive Advantage
Canasa


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5692
   Posted 12/19/2008 7:44 PM (GMT -6)   

The first 3 days post surgery you won't care about much of anything.  I took magazines and found they were great for a distraction.  I had the attentions span of a gnat for the entire 7 days I was there.  I also took music which helped a lot and then of course there was TV.  Boredom won't be your biggest complaint!

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


tbraz
Regular Member


Date Joined Jul 2007
Total Posts : 280
   Posted 12/19/2008 7:53 PM (GMT -6)   
I took an Ipod, cell phone (some calls can be long distance), snacks like pretzels (I hate hospital food), gatorade, gum (some studies show it helps wake up the bowels after surgery-but ask your surgeon first), pads (got my period after each surgery), squirt bottle (less wiping), soft toilet paper (hospital's are not soft!), my favorite magazines/crosswords.

Best advice for you--get up and walk walk walk as soon as you can, this will help keep gas pains away. And when you are allowed---drink drink drink to keep from getting dehydrated.
Theresa

Originally diagnosed with CD in 1991
Now saying "Undetermined Colitis"
3 step Jpoucher as of 4-15-08


Wade457
Regular Member


Date Joined Dec 2008
Total Posts : 91
   Posted 12/19/2008 8:25 PM (GMT -6)   
A laptop as the hospital had a wireless net

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 12/19/2008 9:01 PM (GMT -6)   
I definately used my I-Pod...used it to sleep a few hours at a time...between vitals!!!  I also brought slippers that could slide on and a robe that I could drape over my shoulders.  The only other thing I had to have was shampoo to wash my hair at day 3...I couldn't read or really function while on pain meds!!

sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 12/19/2008 10:49 PM (GMT -6)   
I can't stress having an iPod enough! It helped relax me. I also made sure I had books, and pencil puzzle type books, like word searches, soduku, and crosswords, depending on my attention span! I also had a DVD player and a flat screen in my hospital room, so DVDs. OH, a the two things I liked the most: 1) Slippers, and 2) my own pillow! I hate hospital pillows. Also, you'll need a smallish pillow to hold to your abdomen while coughing or walking. A pillow is a God-send.

Are you having you jpouch done in one step?
If at first you do not succeed, then skydiving is surely not meant for you.


Jo - UC, total colectomy and ileostomy on August 24, 2007. Step 2 & ileostomy switched to left side - May 27, 2008, and take down August 8, 2008. Gallbladder removed December 5, 2008. LIFE IS GOOD.


jasperthedog
Regular Member


Date Joined Mar 2008
Total Posts : 68
   Posted 12/19/2008 10:55 PM (GMT -6)   
Thanks everyone for your suggestions! I will be sure to have all of the stuff with me.
sfgiantsjo- hopefully I can have the 1 step. My surgeon said he wouldn't be able to know that until "game day" Have a great night!
CARA  31 years  (female)
Medications:
Humira
Remicade
Proctofoam
Lialda
Prilosec OTC
Vicodin/Tramadol as needed
Phenergran/Zofran as needed
Viactiv Calcium Chews
Digestive Advantage
Canasa


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 12/20/2008 9:39 AM (GMT -6)   
you should take lotion and chap stick. I took my gameboy, but i didn't play it much.
If you don't end up with a one step, here is just someting to keep in mind, when you wake up you will have this clear bag on you, and the stuff that comes out is this bright green stuff that smells like death warmed over. However it wont stay that way! i promise. i really wish someone would have warend me about that, lol. Once you start eating it will be diffrent
good luck

Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1956
   Posted 12/20/2008 9:47 AM (GMT -6)   
Yes the smell is awful. There's a can of deodorizer that is orange scented. Try bringing that to your room. Forget the name of this product but it also comes in round discs you can stick up behind toilets or under sinks, etc. It's not a heavy smell but a nice pleasant orange smell. I take it on any trip I'm going on and we keep a can here at home.

I have to agree with the walking. Walk - walk - walk! In fact, as soon as you are told to sit up, swing your legs over the side of the bed, stay in that position. Do not lie back down! Next they'll ask you to sit in an upright chair. Both times I was in the hospital I had a leather recliner (but not overstuffed like ones you find in homes). It was wonderful. I spend more time in the chair than in bed (when not walking). I was told sitting upright was better than being in a prone position. Better for your circulation and returning to normal. Also, make sure you do the breathing exercises each hour. I kept track of them on a pad of paper on my table (the one you can swing over to eat in bed too). I kept a daily log of exercises and walking.

There's also a plus to doing all of this on your own - the nurses leave you alone and concentrate on other patients who are not such good patients. You have peace and quiet. The room to yourself.

I also told only a handful of people when I was having my second colon surgery, the reversal. My phone didn't ring, I didn't have visitors (yay!) and I could just recover - quietly, without focusing on others and their needs (they stay and stay, telling you about them, eating in front of you, when you can't eat).......

My second hospital stay went better than the first - it was quiet and I cooperated on all the nurses wanted me to do.

But I did have to learn all of that the hard way!
Marsky/Mary's story.....
- Diagnosed with rectal cancer, April 1999 - Stage I, no treatment necessary
(5 hour colon resection: 90% sigmoid removed, 15 inches of colon removed, gall bladder removed, given temporary colostomy)
- Colostomy reversal, June 1999
- Left with IBS/D symptoms, multiple bm's every day
- On a low residue diet at least 75% of the time
- Takes Colace 50 mg each evening

All in all I do okay, I just use the bathroom A LOT! But I survived and beat cancer!


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 12/20/2008 10:00 AM (GMT -6)   
I would also bring a pair of eye shades, so you can sleep comfortably during the day. I would wear mine at night, too, since they would come in at all hours to check my vitals and turn on the super big bright lights... shocked

Good luck on the 8th! It will be great for you to be UC-free!! smilewinkgrin
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 12/20/2008 11:47 PM (GMT -6)   
Oh and bring your own gowns, noone wants to wear those awful hosptial things!!! what i did was i got ones that were WAY to big, i had some stuff left over from when i was pregnant, but i also went out andbought some 2x gowns (i wear a medium) and then some really big, really soft pants i didnt wear them until the last day though.

Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1956
   Posted 12/21/2008 7:56 AM (GMT -6)   
Ditto on the gowns. The nurses had me wear two, one the correct way (tied in the back) but the other put on like you would a robe. So the very back of me wasn't exposed. Once I was out in the hall walking a lot, I wore my own robe. I think for the first several days I wore hospital gowns but switched to my own.
Marsky/Mary's story.....
- Diagnosed with rectal cancer, April 1999 - Stage I, no treatment necessary
(5 hour colon resection: 90% sigmoid removed, 15 inches of colon removed, gall bladder removed, given temporary colostomy)
- Colostomy reversal, June 1999
- Left with IBS/D symptoms, multiple bm's every day
- On a low residue diet at least 75% of the time
- Takes Colace 50 mg each evening

All in all I do okay, I just use the bathroom A LOT! But I survived and beat cancer!


googs
New Member


Date Joined Dec 2008
Total Posts : 5
   Posted 12/22/2008 12:59 AM (GMT -6)   
hi i'm new here and its great to here all the sides of ur stories but im in a bit of a delimma and i dont know what to do.. i've had CD since i was 9 yrs old, i'm currently 23.. i had the ileostomy on feb 2004.. recently i have discovered that i have diversion colitis due to the illeostomy and one of the options is to do a reversal..
taking out the bag might be the best thing i can do.. i've read abt all ur recovery processes and i'm willing to do it.. the only catch here is that i'm getting married in june 09, that will give me approx 5 months to recover.. do u think i'd be up and running by that time? do you think that reversal is going to ruin my honeymoon by many bathroom trips? or should i wait until after i'm married to do the reversal surgery?
PLZ HELP

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 12/22/2008 1:21 AM (GMT -6)   
Googs,
Welcome to Healing Well. I have a permanent ileostomy due to Crohn's, so I'm not sure how long it takes to recover from reversal surgery. You might want to post this question under its own topic named something like "reversal surgery", so people who have had it done can see your question and give you some feedback.
Take care,
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


googs
New Member


Date Joined Dec 2008
Total Posts : 5
   Posted 12/22/2008 5:07 AM (GMT -6)   
thanks Cecilia!
appreciate it :)

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 3/3/2009 6:37 AM (GMT -6)   

dilatante
Regular Member


Date Joined Jan 2009
Total Posts : 125
   Posted 3/3/2009 8:06 AM (GMT -6)   
thank you!! this is just what I was looking for, but couldn't seem to find it!!
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