Anyone want to CHAT this evening?????

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 12/25/2008 8:06 PM (GMT -6)   
Was wondering if anyone wanted to try to connect in the chat room? It's been a long time since we have done that.... or maybe set some time slot up to connect in the next few days or so? Any takers on this?
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 

Post Edited (peggy113) : 12/25/2008 7:12:55 PM (GMT-7)


Indabag
Regular Member


Date Joined Aug 2007
Total Posts : 254
   Posted 12/27/2008 6:04 PM (GMT -6)   
Hi Peggy:

Hope you and all had a nice Christmas! I'll be looking out for a chat session. Best regards,

Richard
Indabag
 
Ileostomy in August 2005.
As result of surgery (modified whipple) for necrotising pancreatitis. Removal of gallbladder, 2/3 of pancreas, resections of large and small intestines. Massive infection. Reversal May 2008.


Fruitcake
Regular Member


Date Joined Aug 2006
Total Posts : 112
   Posted 12/27/2008 9:30 PM (GMT -6)   
Hi Peggy,
I have not posted for a few months but I noticed you had your perm.ileostomy in 1984. How
have you coped all this time and do you ever get skin irratations? I have had mine for one
year and 5 months and I sometimes feel depressed about it. I feel better and I am grateful
for that but sometimes I want it to go away especially when the skin gets irratated. I teach
aqua exercise and and work with people in the water who have had knee and hip replacements.
I am in the water 5 days a week and it is hard to keep from getting irratation. Do you have any
tips? I would love to hear from you. Thanks, Fruitcake

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 12/30/2008 6:33 AM (GMT -6)   
Fruitcake said...
Hi Peggy,
I have not posted for a few months but I noticed you had your perm.ileostomy in 1984. How have you coped all this time and do you ever get skin irratations? I have had mine for one year and 5 months and I sometimes feel depressed about it. I feel better and I am grateful for that but sometimes I want it to go away especially when the skin gets irratated. I teach aqua exercise and and work with people in the water who have had knee and hip replacements.
I am in the water 5 days a week and it is hard to keep from getting irratation. Do you have any tips? I would love to hear from you. Thanks, Fruitcake
Fruitcake,
 
Sorry it has taken me so long to respond.  We have been out of town and i-net access was limited. 
 
I have been very fortunate with respect to skin irritations so I won't be of much help with that question.  But I don't teach aqua exercise either!  One thing that I do all the time is to be sure that the back side of the pouch and the cloth-like portion of the wafer is dry after I shower by using a blow dryer on a low setting after I towel dry the area.  It has just become a habit of sorts.  I usually lay the blow dryer on the counter on a towel so it isn't real noisy in the bathroom and aim it in the right direction so as I am applying lotion to my arms and legs, the pouch is drying.  I guess you could call that multi-tasking!!!  Since I blow dry my hair too it's not any inconvenience for me at all.
 
Once in a while, my psoriasis breaks out around the edge of the cloth portion of the wafer.  To treat that I make sure that the psoriasis is fully exposed by trimming the edges of the wafer and apply my RX ointment sparingly to that area.  Seems to have worked pretty well for me.
 
Maybe some others will chime in on this subject with more suggestions.....
 
Best of luck to you and keep in touch,
 
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 12/30/2008 6:37 AM (GMT -6)   
Indabag said...
Hi Peggy:

Hope you and all had a nice Christmas! I'll be looking out for a chat session. Best regards,

Richard

Hello Richard!  Good to hear from you.  Yes, we had a nice holiday with DH's family in OH.  Spent almost a week there and the time flew by really quickly.  I did get to visit some of my family (what's left of them) and some friends there as well.  How 'bout you?  Did you overeat like we did?  Hope to catch you in the chat room ...  I'll post here before I open a chat session.  Maybe we can get that started up again!
 
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Fruitcake
Regular Member


Date Joined Aug 2006
Total Posts : 112
   Posted 1/1/2009 9:54 PM (GMT -6)   
Hi Peggy,
Happy New Year! Thanks for your reply. The hairdryer works but I go from 2-4 hours in the
pool without being able to dry my bag. I will try trimming around the tape. I had CD so my doctor
will not do a reversal. I will have an ileostomy for the rest of my life unless they find a cure for
CD. You are one of the few people on this sight who has had an ileostomy for a long time. I don't
want to give up my job so I am always looking for new products or ideas. I also have become
an advocate for people who have ileostomies being able to workout in the pool. Some of my
clients have been told you can't go in the pool because your bag might leak. I have never had
that happen. Thanks for being here you inspire me. Fruitcake
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, September 26, 2017 10:33 AM (GMT -6)
There are a total of 2,873,498 posts in 315,344 threads.
View Active Threads


Who's Online
This forum has 156841 registered members. Please welcome our newest member, LymeMomCO.
414 Guest(s), 18 Registered Member(s) are currently online.  Details
Michelejc, Froggy88, sheepla, c009j, everseeking, dacarte3, Asnape3228, cakegirl, Loutucky, UserANONYMOUS, Starlight*, owleyes, InTheShop, jmoore06, Mustard Seed, fighter87, Dirtfarmerswife, straydog


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer