hi TDR ,
it's so nice to meet you. i'm so sorry to read about all the troubles you've been through and still do. sounds like you got it bad .i'm 35 yrs. old and i have colonic inertia as well. i've been having it for 15 yrs. now, and now i'm on my way for a solution (hopefully) - a colectomy. finally, after 15 yrs. i found drs. that listen to me and willing to help me and i'm so thankful for that.
as to your storry, it sounds to me like you not only have colonic inertia and rectal prolapse, but you have an enterocele as well. as far as i know, it's a condition where the small bowls like droped and sitting on your pelvic and block the stool from passasin.
i had a prolapse and rectocele repair as well in 06/2007 and it didn't help, well, it helped a little bit, cause now i can have relief with the laxatives (lots and lots of them), but before that even the laxatives didn't help, but it's not enough in order to fix the prob. of constipation, b/c the prob. with CI is that the colon is soooooooo slow and it's not enough to have the rectum repaired as long as the colon doesn't function. our colon can't push the stool foreward. my drs. explained to me that it's b/c there's a damage to the nerves in there, therefore it's like a handicapped organ, and yes, they also told me they don't know why it happens/what causes it, and the only solution is a colectomy.
i'm scared, cause i feel my rectum, although the repair i had, is starting to deteriorate again and if the rectum doesn't function well, then the colectomy may be useless and i may need a bag for the rest of my life.... i really hope i'm wrong and i won't need one.
i too spend 5-6 hrs. every morning in order to create a small bm and i don't have a life at all. half of the day i'm bound to my home and the other half i'm at work struggling with the pain and bloating. if i don't make the effort to have some kind of a bm, then the pain is unbearable and i can't function at all. i'm so tired of being like this for so many yrs. and i want a solution. i can't live like this anymore and even if i end up with a bag, then so be it. it will be better than how i'm doing now.
BUT, don't get me wrong, i really don't want you to get scared, b/c i've read about tens of women who had this surgery for the same reason and only 3-4 of them ended up with an ileostomy - what i mean to say is that the chance this could happen is very little and in 90% of the cases it doesn't happen and the results are usually good (i hope i stressed that enough), so hopefully we can be optimistic, cause it's possible that my fears are not justified.
please join us at the "TOTAL COLECTOMY PART 20" thread, that's where all the girls with CI are posting. and i also recommend you to read the older parts total colectomy parts 1-19 as well - there's a wealth of information there and you can learn sooooooooo much from reading about tens of wonderful women who had the same prob. as we do and had the colectomy. reading their storry can provide you with lots of knowlege and to know how to prepare youself for the surgery.
good luck to you and please keep us posted in the "TOTAL COLECTOMY PART 20" thread.
Yes its scary but a lot of people have colonic inertia and no dr can tell why so far. Apparently it is common(?!) But of course no one talks about bowels in the real world do they - everything else but, it seems.
Well you will be better off without your large bowel - i think diarrehoa is easier to manage then constipation any day - at least there is fibre and immodium one can take. Yes lots of people have success but it is a personal thing of course and that nothing else is going on besides the colonic inertia has to be ruled out too.
cant believe at 38 they are just sorting you out.
I have had problems for 10 years which is way long enough. when i had scans and espcially an MRI last year it showed my sigmoid was twisted and stuck inbetwen the rectum and vagina - that could be why you feel an obstruction going on - as i did. before i had sigmoid colectomy last year i used about 24 glycerin suppositories and only 2-4 senna tablets a day and spent 4 hours a day morning and afternoon in the loo - plus i had to press inside my back passage too with tissue (as i felt quite rightly that there was an obstruction).
anyway that is history and since that op i got rid of obstruction and then immediately got total colonic inertia - which i had anyway but the op exacerbated it. so i cant wait to have the bloody thing removed - be for better or worse. had enough now.
By the way it seems your daughter might take after you (seeing as you had constipation all your life?) so get her checked out prop (with full Gastro intestinal physiology tests) and dont let her suffer like you.
bless you and hope you get sorted soon.x
Post Edited (2b ColonFree) : 4/18/2009 1:31:45 PM (GMT-6)
Hello, I'm attempting to finish a very quickly written reply from last evening as I wanted to sate the purpose of my joining on. Mainly, I have found with almost all gastro guys, if you still have your colon and the surgeries create worse or more problems, they don't much want to deal with you. Because I have now a major cyctocele that has increased because of the on-going constipation and rectocele and possibly because of the other injuries and entrapment issues, surgery is beginning to look necessary. However, the main problem is entrapment involving some nerves in the sacral area that are affecting or affected by a torqued pelvis, stool sitting in my rectosigmoid, and/or both. The pelvic floor dysfunction plays a role with the pushing, (as it relaxes), and there is compression from the small intestine above the prior rectocele surgery. I, too, like another member, have extrems gas and bloating, especially from eating the WRONG foods. Since I had the partial colectomy, it seems I'm more sensitive to foods(sugar and sugar alcohols, yeasts, alcohols, fermented foods, spicy foods etcc) and from a blood test for food intolerances, I found other intolerant foods. Avoiding them helps. Taking laxatives is unbearable because of the motility and GAS ISSUES WITH ADHESIONS. What works best is fiber (triple fiber from whole foods), Vit C and especially taking plenty of CAL/MAG with zinc. I tale a charcoal formula when really bloaty with gas from GAIA . When desperate, I do babhy pear juice. I don't do well with DiARRHEA because it pulls on all the adhesions and causes pain. Sometimes it is so bad that my thighs hurt and I can hardly stand, so eliminating is the only relief. I also noticed that none of this severe constipation started until after the partial colectomy. Before that , things were tolerant.
I have IBS due to foods. I also found lots of Yeasts in stool that needed addressing and some not-so-great organisms thru a Great Smokies stool Test that are considered pathogens now, like Blastocyctis Hominis. But, the anti-biotics are really to harsh to handle as more yeasts grow from the antibiotic.
Mainly, a good fiber, perfect diet avoiding sensitive foods, killing any pathogens, taking the minerals and any fish oils or other nutrients that help stool move thru are critical. And, without some enzymes like HCL and Pancreatin or plant enzymes to help digest just makes for more constipation. It ends that I do go every day, but not a big desirable elimination. Due to the state of my colon now, everything is uncomfortable or painful , but a total colectomy is not yet in the plans. I may try organic psyllium from India at nite , as a friend said it did wonders for him.
So, if anyone has any ideas about the pudendal nerve thing or has gotten injections for that , please let me know. Also, anyone who has pain from stool pressing on something like scars or sacrum or nerve/ligaments, I would love to hear from you too. I'll try to address particular people I want to correspond with about a similiar issue, once I get familiar. I am a mature 60 yr old who had 3 children 30-25 yrs ago. Not everyone has similiar issues. Lastly, many people do better once they remove both gluten and especially dairy from their diet cause of the difficulty digesting these foods. You have to ask a nutritionist or alternative-type MD,. as the mainstream don't study much on these matters. good Luck everyone.