So I couldnt taking the itching and burning any longer. And i changed my wafer. Guess what I found.POO! Under my wafer like I told my mom. She got mad because I changed it in 3 days. I dont see what the big deal is..it says i can change it every 3 -4 days. How can I get her to understand that its OK to change it in 3 days? Im sick of her yelling at me and not understanding anything. Its so hard. Esp. being 17. So if anyone has any advice, id be veryy happy!
Post Edited (Bella_withmybag) : 1/1/2009 6:04:38 PM (GMT-7)
Bella--ditto on the Eakin Seal...my "newest" stoma is a little funky and I don't get the wear time I used to but the Eakin Seal lets me get at least 3 days. Once in a while I only get two but it usually means I wasn't as good lining up the hole of the wafer to my stoma!! The soap (I use Dial, but I hate the smell...looks like I'll be trying Neutrogena soon!!) you use is very important, too. I don't know about the wipes, but they may have a small amount of lotion...even tho they are unscented...their original purpose is something different then what ostomates need. Personally, I take the select-a-size papertowels and tear them in half to use when cleaning mine...I don't want to have to do ANY MORE laundry then I already do:)
Definately check with your ET nurse/Doc regarding the stitches. I did have to have one removed because it wasn't disolving and I kept pulling it. Not a big deal only takes a second!
Tell your mom we'd love to have her join the board...Bennie would be a great one to offer insight from her (a mom's) point of view...not to mention all of us who have "been there, done that"! Either way keep asking questions!!
How are you doing? Just checking in on you to see if you have tried any of our "hints" or if any of them sound like something you might give a try? Did you share this forum with your parents? We are only here to help you and your family. Hints and suggestions are the best we can provide, but are doing so from experience rather than just a professional standpoint. Sometimes the professional route is best to take, but I usually listen to my forum friends first and try there ideas for most things. I just wanted to stop in to check on ya!
I am so glad that you got hooked up with Nick to talk to and he is closer to your age. I had the same thing, only after my surgery. And to be honest, that was the turning point for me - from being very, very negative about the whole ordeal to being positive. Just seeing someone else in my shoes made such a huge difference. And she was happy and healthy and had a full time job and a family. How could I feel sorry for myself -- she sure wasn't and was out there living her life. So I began doing the same.
HMMM a gift for him... let me think? Any idea of any of his hobbies? or interests? beside WVU? Sometimes, if I don't know what to get someone, I go with food. Like something from a specialty candy shop --- I love my sweets. If you find out some of the "stuff" he likes to eat, send a "care" package once classes start just to say thanks. Doesn't have to cost a lot -- just the thought and a nice thank you card. Email is the norm these days, but it is always nice to get a real card and package in the mail once in a while too. Let me know what you decide.
Oh wait..... do you live close to where he goes to school? Maybe you and one of your parents could meet him somewhere like Applebees or O'charleys and treat him to lunch or dinner out as a thank you.... Again, doesn't have to cost a lot. Just the thought.