itching and burning!

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Bella_lostmybag
Regular Member


Date Joined Dec 2008
Total Posts : 104
   Posted 1/1/2009 6:21 PM (GMT -6)   
Ive only had my ostomy since Nov. 19 so i dont know too much about it yet. When i clean it and change my wafer like every 4 days i can see the stiches. Theyre a pale yellow color and i can see them when i pick the sides of my stoma up to clean around it. I use non scented baby wipes to clean around it and sometimes after i put my wafer on it starts itching like CRAZY! Not like directly after i put it on. Like for example ive had this one on for 3 days and its ITCHING! And i cant scratch it. well i kinda can.. I scratch around it like where the wafer is. But then it just itches more and so ive tried just ignoring it but thats sooo hard to do! Any advice? Is it because the poo is going down and under the wafer?
 
Thanks =)

So I couldnt taking the itching and burning any longer. And i changed my wafer. Guess what I found.POO! Under my wafer like I told my mom. She got mad because I changed it in 3 days. I dont see what the big deal is..it says i can change it every 3 -4 days. How can I get her to understand that its OK to change it in 3 days? Im sick of her yelling at me and not understanding anything. Its so hard. Esp. being 17. So if anyone has any advice, id be veryy happy!


17, SENIOR in high school
Dx with Ulcerative Colitis on March 18,2008
Tried what seemed like every medicine there is..nothing worked
Step1 Ileostomy on Nov.19,2008..waiting on Step2 =)
The past is history, the future is a mystery. Today is a gift, that's why it's called the present.

Post Edited (Bella_withmybag) : 1/1/2009 6:04:38 PM (GMT-7)


Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1246
   Posted 1/1/2009 8:09 PM (GMT -6)   
Basically, if it itches, changes it, because as you've found out it usually means there's poop under the wafer which will begin to irritate your poor skin if you leave it longer. There is absolutely no rule that says you must only change it after 4 days. Three to four days is average wear, but some people are lucky if they can get a day before changing, others are lucky enough to get a week. So if it's itchy and burning after two days, then change it.

You were right to change so soon it if there was poop under the wafer, so you can let your mum know that :)

I am concerned when you say you can still see the stitches. Usually stitches around the stoma are dissolvable and I would have thought they would have dissolved by now. It might be an idea to let your stoma nurse know that the stitches are still there.

Take care and if your mum is worried about you changing so soon, let her read this :)
I have had an ileostomy for 32 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/2/2009 2:08 AM (GMT -6)   
I absolutely agree with Shaz. Itching is the tell tale sign that you need to pay attention to your wafer and that means changing it! As you have found out. Leaving poo directly in contact with the skin can cause a terrible irritation, and that all begins with the itching you are experiencing. Sometimes rinsing your pouch out with cool water helps, but only for a very short time, at least until you can get your stuff ready to change it. Like I said, the water trick only buys you a little bit of time but it doesn't correct the problem.

If you are itching --- change it. Be sure to check the diameter of the hole in the wafer to be sure that the ostomy size hasn't changed any. Sometimes they shrink after surgery. Yours probably has shrunk some. Making sure you have a good fit around the stoma will also help the length of your "wear time"

Please stay in touch and let us know how things are going for you. There are a lot of us all here on this forum with lots of experience that help give you some suggestions along the way. We are IN your shoes!!!!
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Ohio43
Regular Member


Date Joined Aug 2007
Total Posts : 212
   Posted 1/2/2009 3:52 AM (GMT -6)   
Bella, just a couple more things to add...check with you ET Nurse about yeast infection as well. Yeast infections can cause really bad itching. Look into Eakin Seals. These will help tremendously.

Did your ET Nurse tell you to use baby wipes? They can also cause itching if your skin is sensitive. You may want to try Ivory or Dial Soap and a wash cloth instead. (I use Cetaphil Soap. It works very well.)

I've had my ileostomy since July 2007 and have learned so much through trial and error, but also by reading this forum.

Good luck.

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/2/2009 4:59 AM (GMT -6)   
For being someone who really believes in the Eakin Seals, I really blew it when I didn't mention it in my previous post!!!  Thanks OHIO43 for catching that one.  Absolutely check into the Eakin Seals.  They are good at increasing your wear time by not letting the poo break down the area so quickly.   Worth a try.
 
I use Neutrogena non scented soap on the skin around the stoma when I am changing my appliance and haven't had any problems with it in all of these years.  Just wash, rinse, dry and apply the new wafer, etc.    Experiment until you find the right thing for you.   Everyone is a little different.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1246
   Posted 1/2/2009 5:58 AM (GMT -6)   
Just to prove everyone IS different, I use any nice scented soap I can lay my hands on. I'm using a spearmint and pine one right now, when that's gone, I'll be using one that smells like Rocky Road... yummm :)
I have had an ileostomy for 32 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 1/2/2009 6:10 AM (GMT -6)   

Bella--ditto on the Eakin Seal...my "newest" stoma is a little funky and I don't get the wear time I used to but the Eakin Seal lets me get at least 3 days.  Once in a while I only get two but it usually means I wasn't as good lining up the hole of the wafer to my stoma!!  The soap (I use Dial, but I hate the smell...looks like I'll be trying Neutrogena soon!!) you use is very important, too.  I don't know about the wipes, but they may have a small amount of lotion...even tho they are unscented...their original purpose is something different then what ostomates need.  Personally, I take the select-a-size papertowels and tear them in half to use when cleaning mine...I don't want to have to do ANY MORE laundry then I already do:)

Definately check with your ET nurse/Doc regarding the stitches.  I did have to have one removed because it wasn't disolving and I kept pulling it.  Not a big deal only takes a second!

Tell your mom we'd love to have her join the board...Bennie would be a great one to offer insight from her (a mom's) point of view...not to mention all of us who have "been there, done that"!  Either way keep asking questions!!


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 1/2/2009 10:38 AM (GMT -6)   
sometimes soaps and such can cause you to not get a good seal which could be causing your leaks.
And it really is ok to change whenever you want, i do mine on sundays and thursdays, just out of habit.
it wouldbe great for your mom to come that way she could see that you are right about this at least, lol.

Bella_lostmybag
Regular Member


Date Joined Dec 2008
Total Posts : 104
   Posted 1/2/2009 12:32 PM (GMT -6)   
Im so glad I changed it last night. But something happened that ended up with me crying on my parents shoulder =( I took a phenegren bc i ate eggs and they make me reallly nauseated. And when I take it it KNOCKS me out haha so i was making my bed and the blanket caught my clip on my bag and ripped it open! Poo goes flying everywhere so im standing there at the bottom of my bed with poo all over my leg bed and sheets!! I yelled for my mom and she came to clean it up while i ran to the bathroom crying like a little baby lol Dad comes in and im standing there with a piece of T.P. over my stoma incase it decided it wants to poo some more crying while hes holding me. I can barely see to put my new bag on and i go to bed with a killer headache ( when i cry for some reason i get a really bad headache) and then i wake up this morning get a glass of pop and climb back in bed and as im doing that i SPILL MY POP on my bed! lol i just shook my head and walked off. lol BUT even though all that happened im in a pretty good mood today =)
So i hope you all had a better night than I did although im sure this has happened to some of you.

Have a good day! and thanks for all the advice!
17, SENIOR in high school
Dx with Ulcerative Colitis on March 18,2008
Tried what seemed like every medicine there is..nothing worked
Step1 Ileostomy on Nov.19,2008..waiting on Step2 =)
The past is history, the future is a mystery. Today is a gift, that's why it's called the present.


Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 1/2/2009 5:18 PM (GMT -6)   
What a brave girl you are! I'm so proud of you. You can teach alot of people what it means to be resilient! How tough it must be to be going through such a trying time in your life (high school AND ostomate), still have a good head on your shoulders and STILL have a great since of humor about things. Don't lose that humor.
If it makes you feel any better. When I emptied my bag for the first time in a public restroom- it splashed ALL OVER! Poo on my shoes, on my pants, on the floor. So gross. But what can you do except shake your head, clean it up and keep on keepin' on!
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)-diagnosed with severe pancolitis u/c 2002 had subtotal colectomy 12/19/08 resulting in ileostomy; emergency surgery to redo ileostomy 12/25/08; cipro, flagyl, pred., pepcid (temporarily....?)


Clyde01
Regular Member


Date Joined Oct 2007
Total Posts : 56
   Posted 1/3/2009 11:13 AM (GMT -6)   
I guess guys are more tolerant of the "itchies". I can get at least five days out of mine but most of the time its only four. I know when I start getting the "itchies" then its close to time to change. I do use the rinse trick when I empty the bag but I use warm water instead. As for the the seal around my wafer, I use stoma paste. The eakin seals are to expensive for me and I can't get them from the pharmacy i get my supplies from. But I don't have to worry about my stoma for much longer cause I am having my reversal surgery on the 12th.

I hope this helps you out, and of course, everyone is different and has different ways of dealing with their ostomies.
Ileostomy Oct. 17,2007 Only temporary till next year

No meds at present


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/4/2009 7:53 AM (GMT -6)   

Bella,

How are you doing?  Just checking in on you to see if you have tried any of our "hints" or if any of them sound like something you might give a try?  Did you share this forum with your parents?  We are only here to help you and your family.  Hints and suggestions are the best we can provide, but are doing so from experience rather than just a professional standpoint.  Sometimes the professional route is best to take, but I usually listen to my forum friends first and try there ideas for most things.  I just wanted to stop in to check on ya!

 


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Bella_lostmybag
Regular Member


Date Joined Dec 2008
Total Posts : 104
   Posted 1/4/2009 12:12 PM (GMT -6)   
Hey Peggy! Thanks for checking on me :-)
The hints make a lot of sense. None of the doctors mentioned the soap thing. I might try that but right now Im using the non-scented baby wipes and they dont seem to be breaking me out. I am kinda broke out though because of that poo that got under my wafer and ever since I came home from the hospital after visiting the ostomy nurse theres always an almost blister like sore here and there right by my stoma..kinda like a red line where its broken out. But I think thats because the dumb ostomy nurse put that adhesive paste on my wafer and it REALLY broke me out. So I cant use that! How are you doing Peggy?
 
Humor deff helps me out ALOT! And im so thankful that my doctor gave me someones # who had this surgery to talk to BEFORE I had it done. His name is Nick and hes my angel :-) Hes helped me so much! Hes in college at WVU and I kinda wanna get him something for helping me through all of this. I can call him right now or at 3 a.m. and he would answer and help me with anything. So what should I get him? Im pretty sure he has everything and everything you could have that has WVU on it. lol The ppl there really have school spirit haha ..hmm..oh and hes 20 if that helps anyone out.
 
Thank you for all of the advice and hints!
17, SENIOR in high school
Dx with Ulcerative Colitis on March 18,2008
Tried what seemed like every medicine there is..nothing worked
Step1 Ileostomy on Nov.19,2008..waiting on Step2 =)
The past is history, the future is a mystery. Today is a gift, that's why it's called the present.


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/6/2009 4:01 AM (GMT -6)   

I am so glad that you got hooked up with Nick to talk to and he is closer to your age.  I had the same thing, only after my surgery.  And to be honest, that was the turning point for me - from being very, very negative about the whole ordeal to being positive.  Just seeing someone  else in my shoes made such a huge difference.  And she was happy and healthy and had a full time job and a family.  How could I feel sorry for myself -- she sure wasn't and was out there living her life.  So I began doing the same.

HMMM  a gift for him... let me think?  Any idea of any of his hobbies? or interests? beside WVU?   Sometimes, if I don't know what to get someone, I go with food.  Like something from a specialty candy shop --- I love my sweets.  If you find out some of the "stuff" he likes to eat, send a "care" package once classes start just to say thanks.  Doesn't have to cost a lot -- just the thought and a nice thank you card.  Email is the norm these days, but it is always nice to get a real card and package in the mail once in a while too.  Let me know what you decide.

Oh wait.....  do you live close to where he goes to school?  Maybe you and one of your parents could meet him somewhere like Applebees or O'charleys and treat him to lunch or dinner out as a thank you....  Again, doesn't have to cost a lot.  Just the thought.

 

 


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 1/6/2009 6:10 AM (GMT -6)   
college kids ALWAYS love cookies and/or brownies!!  You could make it from scratch or buy a box of brownies and a couple of those "bags" of cookies...choco chip, peanut butter and oatmeal raisin...YUM:)

amy476
Regular Member


Date Joined Jan 2009
Total Posts : 37
   Posted 1/6/2009 10:09 PM (GMT -6)   
Hi
Just checking in on you and hope things are going ok. Savannah has had a bit of a set back, but hopefully tomorrow will be a better day... yeah . Don't know if you read and of the other threads but she has had lots of Nausea and vomiting and doing an xry in the am. She is walking which is good.
Have you missed alot of school this year? Savannah has missed alot but get homebound when she is up for it. I know it must be hard, especially your senior year. Just hang tough, and know that we are are all praying for you!
Amy
Amy,
taking care of daughter w/ Crohn's since 12-04
MD's switched her diagnosis to Ulcerative Colitis 10-08
her medications: Remicade, imuran, benyl, levisin, humara, TPN (in hospital and home) home iv antibiotics
Multiple admissions for flares, sepsis
2 ports inserted/removed
Total Colectomy 11-11-08
revision of anastomosis 12-08
Temporary ileostomy 1-2-09
 
Thanks for all the support!

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