OMG stomach pains/bloating 3 days post colostomy

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sunshinefl
Regular Member


Date Joined Jun 2008
Total Posts : 49
   Posted 1/2/2009 7:43 AM (GMT -6)   
My stomach is so swollen with what seems to be gas... feels like it is going to explode and the cramping hurts like heck....is this normal? when do you actually start to feel normal? Or is there such a thing?

suebear
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Date Joined Feb 2006
Total Posts : 5378
   Posted 1/2/2009 9:49 AM (GMT -6)   
This is normal. Try to walk a lot and stay away from gas producing foods. This is a temporary condition but I can't give you a timeline, everyone is different.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6564
   Posted 1/2/2009 11:10 AM (GMT -6)   
yeah that is normal, unfortuantely! it will go away, the first few weeks gas can be bad! you can take some gasx and do like sue said, stay away from foods that make it worse and walk around.
Also lay on your left side that helps it move. And you may not feel like doing this, but if you can pump your legs up (think how people do babies when they have gas or are constipated) it will help, or you can rock. Its a little harder to get rid of gas after you have an ostomy, i take the gasx to keep from getting gas. It does seem to help
hope you feel better!

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/4/2009 8:40 AM (GMT -6)   
sunshinefl,

How are you doing? Did the swelling go away yet? Are you/were you able to walk it off?
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


sunshinefl
Regular Member


Date Joined Jun 2008
Total Posts : 49
   Posted 1/4/2009 9:48 AM (GMT -6)   
Omg the stomach pains finally went away. I am still pretty swollen in my belly, face and even my feet. I have been puking like crazy and I can't stop crying... everytime I have to change the bag I get sick also. I can't handle the smell. I feel like I am going to die, its aweful.

Marsky
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Date Joined Jul 2007
Total Posts : 1954
   Posted 1/4/2009 10:41 AM (GMT -6)   
Back when I had my temp ostomy my ET nurse said to breathe thru my mouth, not my nose. That might help with the smell.

When I had and still occasionally have bad gas pains, walking up and down a full flight of stairs really helps dislodge it. Try that if it ever happens again. But I'm guessing the swollen, gas pain feeling you had were surgically related. My colon surgeon told me they have to add air to see certain areas of the GI tract and then some of this air becomes trapped after they close and sew you up. Lovely huh? I swelled up so much I looked 7 months pregnant! But it does go down and in your case, glad you found relief. I had dry heaves for a while too. The first 2 weeks after my colon resection and when I was adjusting to a colostomy was really rough. I barely ate and for a 2 day span (day 10 - 12 I think), I was put back on a liquid diet. I had resumed eating too quickly my doctor said. So take it easy, small portions, foods from your ostomy diet. You will feel better but it takes time! One of my favorite go-to food items were the small Stouffer's sized meals. Just roast turkey and mashed potatoes were plenty when I was hungry. Anything larger and it was just too much food at one time. Consider buying a few next time you grocery shop.
Marsky/Mary's story.....
- Diagnosed with rectal cancer, April 1999 - Stage I, no treatment necessary
(5 hour colon resection: 90% sigmoid removed, 15 inches of colon removed, gall bladder removed, given temporary colostomy)
- Colostomy reversal, June 1999
- Left with IBS/D symptoms, multiple bm's every day
- On a low residue diet at least 75% of the time
- Takes Colace 50 mg each evening

All in all I do okay, I just use the bathroom A LOT! But I survived and beat cancer!

Post Edited (Marsky) : 1/4/2009 8:46:14 AM (GMT-7)


peggy113
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Date Joined Aug 2007
Total Posts : 1998
   Posted 1/4/2009 10:47 AM (GMT -6)   

Another way to NOT smell the ostomy -- ok, laugh as you may, but if you put just a dab of Vick's Vapor Rub above your upper lip and below your nose, that is all that you will smell.  Don't ask me how I know this!!!!  It's a long story!

Hang in there!


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1954
   Posted 1/4/2009 10:51 AM (GMT -6)   
I remember hearing about the Vicks trick!

It does work but I hadn't heard about it when I had my colostomy. Probably read it somewhere on a medical forum.

Aren't you all just so glad there are internet medical forums? I cannot imagine how I'd manage without them. I've learned SO much from others, sharing what works for them, what doesn't. And just having the freedom to vent is a God-send!

Okay, back to hopefully more good ideas coming your way......
Marsky/Mary's story.....
- Diagnosed with rectal cancer, April 1999 - Stage I, no treatment necessary
(5 hour colon resection: 90% sigmoid removed, 15 inches of colon removed, gall bladder removed, given temporary colostomy)
- Colostomy reversal, June 1999
- Left with IBS/D symptoms, multiple bm's every day
- On a low residue diet at least 75% of the time
- Takes Colace 50 mg each evening

All in all I do okay, I just use the bathroom A LOT! But I survived and beat cancer!


sunshinefl
Regular Member


Date Joined Jun 2008
Total Posts : 49
   Posted 1/4/2009 12:05 PM (GMT -6)   
Thanks to both of you I will try everything I can right now, its aweful! My husband went to the store and bought some masks also. I feel sorry for him to he feels so helpless, he reached over and touched me in the middle of the night he is so worried about me. Food OMG its hard to think about but at the sametime I am so hungry.

amy476
Regular Member


Date Joined Jan 2009
Total Posts : 37
   Posted 1/4/2009 12:10 PM (GMT -6)   
great idea the Vicks, my daughter is complaining about the smell when its emptied. I will go pick some up!
Amy,
taking care of daughter w/ Crohn's since 12-04
MD's switched her diagnosis to Ulcerative Colitis 10-08
her medications: Remicade, imuran, benyl, levisin, humara, TPN (in hospital and home) home iv antibiotics
Multiple admissions for flares, sepsis
2 ports inserted/removed
Total Colectomy 11-11-08
revision of anastomosis 12-08
Temporary ileostomy 1-2-09
 
Thanks for all the support!


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/4/2009 12:12 PM (GMT -6)   
You also might try adding either mouthwash or peroxide to your empty pouch...  that helps to take the odor away as it fills and the smell isn't so bad then.  I use Ostofresh deodorizer made for the bags and there are a lot of other products out there to use.  Several folks here like the peroxide or mouthwash tho.

Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6564
   Posted 1/4/2009 6:08 PM (GMT -6)   
the smell wont be as bad after a while, if you aren't eating the smell is going to be worse, casue you are having a lot of bile in it, and that is NASTY!!! Strangely enough, once you start eating normally it smells better. And if you eat peaches and whip cream, it smells like peaches and whipped cream, lol.
you will figure out after it is newer what foods make the smell worse and then you can avoid those. I got so sick smellign it adn seeing it in the hopstial, but now it doesn't bother me at all. I mean, its not my idea of super fun or anything.
The vicks trick sounds good.
This helps me, i will sometimes light a match, right before i empty, it seems to keep the smell from being as bad . Or you can spray some kind of air freshner or the M9 before emptying.

Janiepain
Veteran Member


Date Joined Jan 2007
Total Posts : 662
   Posted 1/4/2009 10:16 PM (GMT -6)   
Sunshine,

So you've had surgery? I've been thinking about you. Were you at ORMC? Let us know how you're doing; I hope you feel better very soon.

Why did you have the colostomy instead of colectomy?

sunshinefl
Regular Member


Date Joined Jun 2008
Total Posts : 49
   Posted 1/5/2009 8:34 AM (GMT -6)   
Hey, its nice to hear from you again. I had the surgery at fl. Hosp. But the same dr I have been going to I really like him but he is going to get a river running through his office on thursday because I haven't been able to quit crying. I thought I would beabke to handle it a lot better than I have. The reason they did a colostomy is because on top of all the other problems my rectal muscles aren't working properly and my sphincter contantly swells and is painful and needed a rest. I have already had 2 rectocele repairs and they both failed. He is going to adventually try to do another one and then hopefully reverse this after everything rests.

2 RIS K
Regular Member


Date Joined Aug 2008
Total Posts : 367
   Posted 1/5/2009 10:53 AM (GMT -6)   
Forgive me for butting in your conversation, but what is a colostomy? I had a colectomy and I'm just wondering.
Amanda
35 years old
Chronic Lifetime Constipation
Diagnosed IBS - 1995
Rectal Prolapse - February 2007
Rectosigmoid Colectomy w/low anterior Anastomosis - 3/13/07
Diagnosed with Colonic Inertia - June 08
Total Colectomy - September 22, 2008
Take Down Surgery Scheduled - December 15, 2008
 
The whole world is at your feet; so paint your toenails Red!
 


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6564
   Posted 1/5/2009 10:58 AM (GMT -6)   
its where you have a part of your inetsine pulled through your side and attached to bag that is outside your body and that's where your poo goes. rather handy little thing i will tell you!

sunshinefl
Regular Member


Date Joined Jun 2008
Total Posts : 49
   Posted 1/5/2009 11:00 AM (GMT -6)   
Its where they bring part of your colon out through your stomach and you have bowel movements in a bag attached through your stomach.

2 RIS K
Regular Member


Date Joined Aug 2008
Total Posts : 367
   Posted 1/5/2009 3:00 PM (GMT -6)   
I had that but I thought that was called an ileostomy. I just had mine reversed on the 15th.
Amanda
35 years old
Chronic Lifetime Constipation
Diagnosed IBS - 1995
Rectal Prolapse - February 2007
Rectosigmoid Colectomy w/low anterior Anastomosis - 3/13/07
Diagnosed with Colonic Inertia - June 08
Total Colectomy - September 22, 2008
Take Down Surgery Scheduled - December 15, 2008
 
The whole world is at your feet; so paint your toenails Red!
 


sunshinefl
Regular Member


Date Joined Jun 2008
Total Posts : 49
   Posted 1/5/2009 4:04 PM (GMT -6)   
Ileostomy is when they use your small intestine and colostomy is where they use your colon. How is everything going after your reversal? I want to have mine reversed asap but I am not sure what the plans are. I keep thinking I have rectal prolapse too but dr says no but It sure feels like it even after the colostomy but its only been a week so maybe it takes time, who knows I am just tired!
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