She got out of the bed today.... twice... the ostomy nurse came in and assessed her sking. recommended a few things to try. We did have a scare because her incision is still draining some. We thought that a fistula was formed and poop was coming out of her incision!! Not good... Anyway, he came into the room and his feelings were that it was just abdominal ascites and not poop. We were very relieved!
Been taking ya'lls advice and she has been up and walking today. around the nurses station and such. I know it feels much better than being in bed all day.
We will continue to keep you guys posted!
taking care of daughter w/ Crohn's since 12-04
MD's switched her diagnosis to Ulcerative Colitis 10-08
her medications: Remicade, imuran, benyl, levisin, humara, TPN (in hospital and home) home iv antibiotics
Multiple admissions for flares, sepsis
2 ports inserted/removed
Total Colectomy 11-11-08
revision of anastomosis 12-08
Temporary ileostomy 1-2-09
Thanks for all the support!