bowel resection

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Debra LaPrade
New Member


Date Joined Jan 2009
Total Posts : 3
   Posted 1/5/2009 11:26 PM (GMT -6)   
Hi,
I am 50 years old and have severe diverticulosis.  I have polyps growing in the diveticulum, they are not cancer, but they are inflamed.  My last attack of diverticulitis resulted in C-diff.  That was horrible.  Took me months to get rid of it and months to get back to eating normally, only plus side was losing 40 lbs.  I went for a colonscopy a couple of weeks ago, and now the inflamed polyps are still there.  There are more polyps, again not cancer, but inflamation.  Cannot be removed because of their location in the sigmoid colon in the actual pouch.  Now I have been referred to a surgeon to have this section of my bowel surgically removed.  I have had a lot of surgeries, but I am scared to death of this one.  I am feeling good now and don't want to rock the boat.  My GI has said I am young and will get another attack of Diverticulits in the future.  She is worried about a reoccurrence of C-diff and the damage it does to the colon.  Any advise or similar experiences?  Thanks!

amy476
Regular Member


Date Joined Jan 2009
Total Posts : 37
   Posted 1/6/2009 3:03 AM (GMT -6)   
HI,
Not sure if this will help, but first let me welcome you to the site.
I am a nurse, and I am sure your doctor has told you everything that I have learned as well. The main thing is that there is an extremely high percentage rate that polyps at some time will turn into cancer. That is why polyp removal is considered a preventable cancer treatment!
CDiff is the unbalance of the colons natural balance of bacteria, so I would think to  get back on track you would have to get rid of the "hiding places" or places it could accumulate. I am sure the weight loss was great, but just want to make sure of becoming malnurished. Having this unbalance can result  in electolyte imbalance.
Does the surgery involve an colostomy? IF so will it be permanent?
My daughter is a few days out of having a temporary ileostomy placed for her Ulcerative Colitis ( I am not a nurse for her just Mom..lol) but it has gone very well and have gotten some great advice/help from here.
I have worked with a colon surgeon before, and he calls his profession, "glorified pipe fitters" as you think of your whole GI tract as a pipe. He removes a section and places two well parts together.
Hope this will give you something to think about, and will be praying for you!
Take care
Amy
Amy,
taking care of daughter w/ Crohn's since 12-04
MD's switched her diagnosis to Ulcerative Colitis 10-08
her medications: Remicade, imuran, benyl, levisin, humara, TPN (in hospital and home) home iv antibiotics
Multiple admissions for flares, sepsis
2 ports inserted/removed
Total Colectomy 11-11-08
revision of anastomosis 12-08
Temporary ileostomy 1-2-09
 
Thanks for all the support!


emma12s
Regular Member


Date Joined Nov 2008
Total Posts : 25
   Posted 1/6/2009 10:07 AM (GMT -6)   

My advice, investigate the surgery before it becomes an emergency.  I am 49, had emergency surgery in October for ruptured diverticula, the first surgeon just removed the ruptured area of colon and resected it, 3 days later it was leaking, I was transferred to Cleveland Clinic, where I had another surgery in middle of night which resulted in temporaty colostomy.  Now, I get to look forward to this surgery again in April, to put everything back together again.  I now also have a hernia which has developed under my stoma, and am having some difficulties there, I have large, uncomfortable scars (still having some pain and irritation around them).

I was first diagnosed with diverticulitis about 7-8 yrs ago, on vacation.  Was hospitalized twice over the years for severe bouts, other than that, I experienced attacks about 2-3 times a year, where I needed antibiotics for 2 weeks to recover.  It was at the point where I didn't go on vacation without a backup supply of antibiotics, but, I thought I could recognize it coming on and control it with the antibiotics (I usually responded quite quickly to them).  This past August, I began another bout with diverticulits on antibiotics for 10 days, felt better, 1 1/2 weeks later it reoccurred.  Began second round of 2 weeks of antibiotics, knew that I wasn't responding normally, I didn't feel right, something wasn't working.  Went to a totally incompentent GI doctor, who, even with CT scan confirming diverticulitis didn't believe I was experiencing it because of my age (he had done a colonscopy a year before and said I only had a few diverticula--don't know what he was looking at), and insisted I didn't need another round of antibiotics.  Four days after finishing the 2 week round of antibiotics, I was in the emergency room.  Facing more incompetence at our small local hospital, I had to undergo my first surgery.  And this is just the tip of the iceberg as far as the incompetence that I have experienced with this.

If you are like I was, experiencing multiple bouts of diverticulitis, several times a year, for several years--check out the surgery.  From what I now know, to have had many bouts of diverticulitis over 8 years, my colon was becoming damaged each time I had a bout.  Both surgeons I have had said that my colon has many, many diverticula (the incompetent one thinks I should have my colon removed), and I don't know what the GI who did my colonoscopy was looking at--there is no way my colon became so diseased in one year, according to my surgeon now.  I would have been much better off having a planned elective surgery to repair this than I am now.  Go to a good experienced surgeon or place like Cleveland Clinic, it was a totally different world that I experienced there--have a plan in place, at least.  Talk to a surgeon/surgeons about specific options.  Good luck


Debra LaPrade
New Member


Date Joined Jan 2009
Total Posts : 3
   Posted 1/6/2009 10:51 PM (GMT -6)   
Thank you both for replying. I spoke with the surgeon today. He highly recommends the surgery as the polyps even though came back no cancer, it was a very tiny biopsy. Also, my age of 50 means I will most certainly have attacks in the future which could end up fatal. I will be having a bowel resection in a month. It is elective and according to the Surgeon must safer when not in an emergency situation. I don't want to end up with anotherattack and mayne even preforate the bowel. He will only be removing 25% of my colon as fortunately for me, my polyps and diverticulosis are all in the sigmoid colon. I thank you for the prayers, Amy, and I am glad your daughter is doing well. Thank you Emma for the advice. What happened to you is what both my GI Doc and Surgeon do not want to happen to me. So as of 2/7/09 I will be free of diverticulosis. Will do a detailed post on my experience with the surgery when it's done!

amy476
Regular Member


Date Joined Jan 2009
Total Posts : 37
   Posted 1/7/2009 8:38 AM (GMT -6)   
Yes, Please keep us posted, My thoughts and prayers are with you too. Look foward to hearing from you.
Amy
Amy,
taking care of daughter w/ Crohn's since 12-04
MD's switched her diagnosis to Ulcerative Colitis 10-08
her medications: Remicade, imuran, benyl, levisin, humara, TPN (in hospital and home) home iv antibiotics
Multiple admissions for flares, sepsis
2 ports inserted/removed
Total Colectomy 11-11-08
revision of anastomosis 12-08
Temporary ileostomy 1-2-09
 
Thanks for all the support!


emma12s
Regular Member


Date Joined Nov 2008
Total Posts : 25
   Posted 1/7/2009 9:13 AM (GMT -6)   
Hopefully your surgery will go smoothly, looking back, I wish I had listened to the doctors who were telling me to go for the elective surgery!  The rounds with diverticulitis were not fun, and living like I was (constantly worrying if an attack was coming on, worrying about what I was eating...) was not fun either.  Make sure your surgeon is well experienced with diverticulosis issues, the first surgeon that resected my colon told my husband right after that surgery that I would need further surgery to remove my colon because I was so full of diverticula.  I believe he would have removed it had I stayed with him for the second surgery, luckily I was able to be transferred to Cleveland Clinic.  The second surgeon (the one who repaired what the first one resected) says that while I still have extensive diverticula throughout my bowel, the bad section is gone (he removed most of sigmoid and the left corner of transverse colon), so, he believes that I will no longer have any issues with diverticulitis.  He claims I can eat anything I want, however, I have still not eaten corn, but have been eating nuts and seedy things recently with no problem.  I think I will wait for the popcorn until I am all back together again.  Keep us posted, as I will be having resection in April, and like to read all I can about others experiences so I can prepare myself. 

Debra LaPrade
New Member


Date Joined Jan 2009
Total Posts : 3
   Posted 3/14/2009 9:41 PM (GMT -6)   
Hello All,
On 2/6/09 I had the Sigmoid Colectomy.  It's been five weeks since then and I am still healing.  The most painful part of this surgery is the incision.  I thought I would have pain in the bowels where they cut, but I did not have any pain there.  The pain is very controlable with  a PCA Pump.  I had Dilautin as my pain killer which worked really well.  In recovery, I had Demerol which made me vomit.  You don't want to vomit with an incision in your tummy!  It hurts like hell!  Once I stopped taking tje Demerol and started taken the Dilautin, I did not have much pain.  You have to get up out of bed the next day, and that first walk is hard but it gets better day by day.  I am back to work (desk job) and feeling stronger now.  I am eating well and using fiber so I am regular which at first you move your bowels a lot (after about 5 days after the surgery) and then it tapers down to maybe a little more frequently then before the surgery.  The only problem I have is there is blood on the outside of my stools.  I asked the surgeon about this and he told me this is normal after this type of surgery.  I go for a follow up on Monday and am going to see what my GI Doctor thinks.  At this point, that is my only concern.  It was not as bad as I thought it would be, and now I don't have to worry about preferrating my bowel.  My sister is an RN and she says that is one of the most common patients they get in the ER and some of them don't make.  If you have sever diverticulitis, I would have this done electively then wait for it to be an Emergency.

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 3/15/2009 6:05 AM (GMT -6)   
Glad you are doing so well!

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 3/15/2009 1:41 PM (GMT -6)   

Thanks for the update --- glad to hear that you are recovering and back to work so soon.  Good for you.  Be mindful of your energy and still get plenty of rest and drink lots of fluids.

 


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


emma12s
Regular Member


Date Joined Nov 2008
Total Posts : 25
   Posted 3/15/2009 2:16 PM (GMT -6)   
Glad you are doing well!!!  I wish I had done that before it was too late for me.  I hopefully will be reversed next month and I can put all this behind me--but, my recovery period has obviously been much longer than yours, and I am now have complications with a parastomal hernia.  I'm just praying all this works out for me, I would recommend to anyone with severe diverticulitis to do what you have done in a non emergent setting.  Good luck to you

birdmfc
New Member


Date Joined Mar 2009
Total Posts : 1
   Posted 3/22/2009 7:58 PM (GMT -6)   
I have had diverticulitis for about 12 years and I have had 7 bouts and in the hospital for three of them. The gastro doc has told me the last three time that I need to go see a surgeon, and I keep putting it off(keep telling myself that I will get better, not worse). But this time I am going to see one tomorrow. I had a colonoscopy two weeks ago and said that I have between 150 and 200 diverticuli in 12 to 13 inches of the colon. I am 34 years old and I am uncertain about surgery and the after effects. I am wondering about the bowel movement habits after surgery. The research that I have done, everyone talks about how great that they fell after surgery, but I haven't found anything about food they eat or how their body is reacting to the surgery. Please offer all information possible, still undecided.
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