need advice about parastomal hernia surgery

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

provolunteer
Regular Member


Date Joined Dec 2008
Total Posts : 21
   Posted 1/8/2009 3:07 AM (GMT -6)   
my doc called me with results from my ct scan with contrast and said i have a large parastomal hernia. he is sending me to a surgeon.
i have had crohn's since 1978(i was 10 at the time,i just turned 40). after many surgeries, the crohn's was still not staying away. in 97,  my doc told that with the bowel resection and damage to my rectum, i would have to have a permanent colostomy. ok. i had some complications with new skin allergies and months of trial and error. i have been able to do pretty much anything within my limits and eat whatever i wanted, even popcorn which before would cause so much pain after only 3 or 4 pieces. the past few months,when i would eat anything, the area around the stoma would swell up and sometimes hurt. now i find out  i have a hernia. has anybody ever had surgery to repair the hernia? what can i expect after? how long does it take to heal? would it be best to move the stoma and let the area heal for awhile? i have not seen the surgeon yet. i would like to know others experiences with this problem and how they have managed. my biggest fear i guess is not knowing anything about this. i can read medical reports and books all i want but personal experiences are the best teachers and best information around. thanks for any help i can get.
provolunteer-
27 surgeries, 19 fistulas,c-section, endometrios,hysterectomy,arthritis,dry eyes,migraines,kidneys stones,allergies,chronic broncitis,memory not so good, too close to death several times, too many bowel resections to count,
permanent colostomy(rectum removed was harder to deal with than using a baggie the rest of my life) but.......
...... I am no longer a pain in the butt!!!!!!!!


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/8/2009 4:20 AM (GMT -6)   
Provolunteer,
Welcome to HW.com. I've not had a hernia, so I won't be able to comment on that for you. But I just wanted to let you know that you are not alone and that others will be along soon to chime in on your question. It's good to be totally educated before making any decisions and personal experiences,k tho everyone is different, is the best route to go in my opinion.

Best of luck to you. Be sure to ask the surgeon ALL of you questions and get all of the answers you need to make that informed decision.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


badbaggirl
Regular Member


Date Joined Jul 2007
Total Posts : 275
   Posted 1/9/2009 3:11 PM (GMT -6)   
I am curious to know what the surgeon says. I have a hernia too (and it's pretty big) but two surgeons said they wouldn't do it because of the risk of it coming right back. I want it GONE! So keep in touch!
BadBagGirl
Crohn's Disease, Colostomy due to cancer and I make darned good dill pickles.


nene205
Regular Member


Date Joined Jun 2007
Total Posts : 302
   Posted 1/9/2009 4:57 PM (GMT -6)   
Ditto, badbaggirl. My surgeon said he wouldn't do the surgery for my hernia, either. He just told me that the surgery would be too hard on me and the chance of it coming back would be pretty high. So I just bought a hernia belt which helps a lot.

provolunteer
Regular Member


Date Joined Dec 2008
Total Posts : 21
   Posted 1/14/2009 8:23 AM (GMT -6)   
as soon as i hear back from him, i will post and let you know. the doc that has done all my surgeries is back at baptist hospital so i told my gi doc that's who i prefer and gave him the contact info. they should be working out a plan. i will call them friday if i haven't heard yet. surgeon is 2 hours away but i will follow him to the ends of earth. he has been so good to me and keeping me up to date/informed. he had moved from baptist for a while and thank goodness, i had not had many problems while he was away. i'm thinking he will probably move the ostomy and remove the hernia or whatever needs to be done to make it better. guess 10 years was long enough. usually, i have surgery evry 3 or 4 years since 1980.
provolunteer-
27 surgeries, 19 fistulas,c-section, endometrios,hysterectomy,arthritis,dry eyes,migraines,kidneys stones,allergies,chronic broncitis,memory not so good, too close to death several times, too many bowel resections to count,
permanent colostomy(rectum removed was harder to deal with than using a baggie the rest of my life) but.......
...... I am no longer a pain in the butt!!!!!!!!


badbaggirl
Regular Member


Date Joined Jul 2007
Total Posts : 275
   Posted 1/15/2009 12:11 PM (GMT -6)   
Do let us know. I really am tired of wearing maternity clothes to hide this! I am really small and there are no hernia belts in my size. (I wear a child's size 10). And I hate it when 'they' say it's not 'remarkable'.
BadBagGirl
Crohn's Disease, Colostomy due to cancer and I make darned good dill pickles.


Ohio43
Regular Member


Date Joined Aug 2007
Total Posts : 212
   Posted 1/25/2009 1:35 PM (GMT -6)   
about a year after receiving my ileostomy, I ended up in the hospital in terrible pain. I thought I was having a heart attack. My sister in-law who is an RN told me to get to the emergency room ASAP. After a Cat Scan they found I have a ventral hernia. It's to the left of my stoma near by belly button. The doctor said he'd fix it when I have my reversal. I was only to have a three month temporary ileostomy. That never happened. Unfortunately, my doctor at Cleveland Clinic does not believe I'll have be able to have it reversed. My hernia does cause a bulge around my stoma. I don't wear a hernia belt. I had the same problem as badbaggirl - none of the belts fit my body shape/heighth.

Badbaggirl, have you looked into Spanks or something like them? That's what I wear and they really hold it in.
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, September 26, 2017 10:33 AM (GMT -6)
There are a total of 2,873,498 posts in 315,344 threads.
View Active Threads


Who's Online
This forum has 156841 registered members. Please welcome our newest member, LymeMomCO.
412 Guest(s), 20 Registered Member(s) are currently online.  Details
Michelejc, Froggy88, sheepla, Lapis_29, c009j, everseeking, dacarte3, Asnape3228, cakegirl, Loutucky, UserANONYMOUS, Starlight*, owleyes, Mel B, InTheShop, jmoore06, Mustard Seed, fighter87, Dirtfarmerswife, straydog


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer