scheduled for a total colectomy

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azelf
New Member


Date Joined Jan 2009
Total Posts : 5
   Posted 1/8/2009 9:36 AM (GMT -6)   
I am scheduled for a laporascopic total colectomy from Mayo on Jan 20 due to slow transit constipation---meds, diet, exercise, etc. did not work for me.  I am well educated, well informed, extremely active with two kids,  (did I mention I am a Scorpio..just adding a little levity) and believe that I am making a reasonable decision to move forward with this elective surgery.  However, after reading many of these posts, I am concerned about the long-term effects of this surgery due to so many negative posts and is there anyone out there that would be able to give an answer to the obvious question---"would you do this surgery again if given the choice"?  "Is your life better because of your decison (holding out for the patient that is post-op over a year)"?  Thoughts?

azelf

tcr1130
Regular Member


Date Joined Jan 2009
Total Posts : 33
   Posted 1/8/2009 10:57 AM (GMT -6)   
I want to sit here on your post and wait for the same answers.... i had my total colectomy for colonic inertia last week...... i cant say its been a lot of fun so far.... feels like my intestines live a life of there own right now..... but im crossing my fingers that is still recovery healing and the permanent way of life i hear even from my surgeon it can be......  and then there was that joy of being told... you probably have slow motility in your small bowel to and if that is the case this surgery will not take care of that... only if its in the large and large alone!!!!
 
hope you dont mind if i hang out here with ya to see where our futures are going with this!
  • Had total colectomy 12/30/2008 for colonic inertia
  • severe gastroparesis
 
 
 


XtremeMisery
Veteran Member


Date Joined Sep 2007
Total Posts : 687
   Posted 1/8/2009 11:18 AM (GMT -6)   

ABSOLUTELY is the only answer I can give you. I had mt Total Colectomy nearly a year ago and although you may see from my recent posts that I am still having issues with other areas of my digestive tract and although I had a long road of recovery with complications I would do it again all over tomorrow. Each person responds to this differently, but honestly I have yet to find someone who regrets having this surgery no matter the complications. I too had Colonic Inertia (or slow transit).....I will not lie and say this surgery/recovery was a walk in the park. It was a major surgery and even though I am a nurse myself I do not think you can be enough prepared for what can happen......Still ALL THIS ASIDE!!! I absolutely do not regret the surgery and for your problem I think it is definately beneficial.

Lizzie


Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 1/8/2009 9:09 PM (GMT -6)   
Hey aself,
I am a newb ostomate and had an "elective" colectomy too. I had some problems after the first surgery (which I had done laproscopically) including abscesses b/c my stoma separated from skin and had to have another emergency surgery. If you would have asked me last week how I felt about my decision, I would have said I regretted it b/c of the complications BUT, now that I am closer to being healed, I will tell you that I am happy I made that leap. I feel better everyday and am enjoying food that I haven't eaten in YEARS!!! Plus, no nausea, vomiting, bleeding, and I'm on a steroid taper to be off of them completely!
No one will tell you it's an easy recovery. It's painful, but so far (a couple weeks out) Worth it!
Good Luck
P.S.-Please don't let some posts scare you b/c we lean on people most when we are having problems, so of course you'll read more bad than good most of the time. I read this site for a long time b4 my surgeries and saw plenty of good outcomes.
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery to redo ileostomy and switch to other side 12/25/08; pred., (ileostomy temporary....not so sure?)


AD H
New Member


Date Joined Jan 2009
Total Posts : 1
   Posted 1/9/2009 10:18 AM (GMT -6)   
Hi guys and girls. I had a total colectomy at the age of 17 coz of unrelenting UC. I spent the best part of 3 years in hospital whilst the docs tried to sort it out. After a long stint on cyclosporine, I still became ill whenever my steroids were reduced. I am now 29 and can say that the procedure, a one stage j pouch, although very new, was the best thing i could have done. To be fair, the first few months are painful and unfulfilling, but once you start to heal, you will find that things return almost to normal. Over ten years on, I still feel well, no illness, can eat what I like (except coconut, the devils food!) no meds, and I live an active normal life. I dont now what will happen in later years as this procedure does not have a long term medical history but I will say that it gave me my life back. A higher accolade you will not find. I was told at the outset that i would not be able to eat or drink certain things, this is down to the individual so dont be phased. Like I said, the first few months are a ***** but then you can learn what you can or cant eat. just take it as it comes and you should be back to relative normalcy within the first year! hope all goes well azelf.
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