Does anyone change their pouch at night?

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Pibbin
Regular Member


Date Joined Apr 2008
Total Posts : 163
   Posted 1/10/2009 1:29 PM (GMT -6)   
So I was initially instructed by my ET RN that it is easiest to change to a new pouch in the morning, as there will not be as much output if you haven't eaten since dinner the night before. I only found that to be true about 50% of the time... I often had output during a changing, which of course makes the entire process take longer, especially as I am still cutting-to-fit.

Anyway, I have been getting shorter wear time the past few weeks, basically 3 days at a time. I am finding that the night before I am scheduled to change, I have a leak while I'm sleeping. So I'm considering now changing it in the evening, after a shower before bed. Does anyone else do this? I'm a bit nervous, as this is a bit more of an active time for my system, but I'm tired of waking up a mess.
Dx Mild Proctitis 7/06 at age 33, Dx Severe Pan Colitis 5/07, Dx Crohn's Colitis 10/07
Failed Asacol, Lialda, 6-MP, Canasa, Rowasa, Proctofoam, Entocort, Remicade, Humira
10/10/08 colon removed, temporary ileostomy
11/10/08 FINALLY off prednisone after 18 months
2nd of 3 surgeries planned for Jan '09 to form j-pouch


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 1/10/2009 4:29 PM (GMT -6)   
i change mine whenever, sometimes during the day sometimes at night right before bed. the other night i didnt manage to get in the shower until 1 am and i changed it then!
I just try to NEVER change it like the day of a road trip or an important event, cause i wanna have time to make sure its on there right before i take off somewhere. so i try to change it when i dont have to go anywhere for a couple of hours at least.

badbaggirl
Regular Member


Date Joined Jul 2007
Total Posts : 275
   Posted 1/10/2009 5:20 PM (GMT -6)   
I guess I am not typical. I never change in the morning because that's when I am MORE active. I change at night... but summerstorm is right. Never before going on an extended activity.
BadBagGirl
Crohn's Disease, Colostomy due to cancer and I make darned good dill pickles.


vintageman
Regular Member


Date Joined Oct 2008
Total Posts : 28
   Posted 1/10/2009 6:13 PM (GMT -6)   
We are all over the map on changing habits. :-)
 
I change anytime it starts to bug me, like itching or weak spot showing in the flange. At work or home, day or night. I can get about three, maybe four days wear as a rule. Thank God for 100% insurance coverage.
 
I also always put a new flange/pouch on before going out somewhere important, and take a little shaving kit bag with spares and supplies along in the car.

Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1243
   Posted 1/10/2009 7:47 PM (GMT -6)   
I do :) I change during my shower in the evening. I'm NOT a morning person and can't get out of bed in time to give me time for a shower in the mornings before work lol
I have had an ileostomy for 33 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/11/2009 3:52 AM (GMT -6)   
I am Not a moring person either, but that is when I have the best luck with no output when I change. So I get everything ready and layed out the night before. Yeh, I have changed at all times of the day. Some folks on here recommend eating marshmallows a short time before the change to thicken up and slow any output. Usually, on my changing mornings, I go directly from bed to changing it.... before my stoma even has a chance to fully wake up!!! Nothing by mouth until after the change - that helps too. And, boy does that first cup of coffee or tea taste good by then.

General concensus --- do it when you need it, but you will find the best time for your body as you experiment. Sounds like you are doing fine. Do you use Eakin Seals or any kind of paste around the stoma Hole opening in the wafer?
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Pibbin
Regular Member


Date Joined Apr 2008
Total Posts : 163
   Posted 1/11/2009 12:34 PM (GMT -6)   
I've been using the Adapt rings (same as Eakins, I think), and am now experimenting with convex instead of flat wafers, to see if that helps with the leakage issue. My surgery was in October, but the stoma shape/size still seems to be changing, which I think is part of the issue. It's also oval, which is annoying, b/c I think I will always need to cut-to-fit.

I just changed everything last night, and miraculously things went well. I definitely felt less rushed than I do in the morning, so that was a bonus.

Thanks for all the advice and support! I was too freaked-out to even glance at this board before surgery, although I was on the crohn's and UC board frequently. So glad that I am comfortable here now, y'all are so helpful!
Dx Mild Proctitis 7/06 at age 33, Dx Severe Pan Colitis 5/07, Dx Crohn's Colitis 10/07
Failed Asacol, Lialda, 6-MP, Canasa, Rowasa, Proctofoam, Entocort, Remicade, Humira
10/10/08 colon removed, temporary ileostomy
11/10/08 FINALLY off prednisone after 18 months
2nd of 3 surgeries planned for Jan '09 to form j-pouch

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