I'm not sure I can make it until surgery

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tkctwbd
Regular Member


Date Joined Dec 2007
Total Posts : 82
   Posted 1/11/2009 11:22 AM (GMT -6)   
I am waiting for weather to break before I have surgery because I am two hrs away from surgeon/hospital, and I don't have a great support system.

This is second day I feel weak and need to lie down. I am on Tylenol/BC Powders around the clock for flu-ish body inflammation. I get nauseated, but have not vomited.

Tuesday I go to the wound center for them to put a pretend bag on me. Snow expected and I hope I feel up to driving that far.

Just needed to share.

Roddiesgirl
Regular Member


Date Joined Oct 2008
Total Posts : 262
   Posted 1/11/2009 11:35 AM (GMT -6)   
Hi and welcome!  I hope that you can hang in there and are feeling better soon!

Roddiesgirl
Regular Member


Date Joined Oct 2008
Total Posts : 262
   Posted 1/11/2009 11:36 AM (GMT -6)   
Do you have a date yet for your surgery??

tkctwbd
Regular Member


Date Joined Dec 2007
Total Posts : 82
   Posted 1/11/2009 12:08 PM (GMT -6)   
Thanks
No date for surgery but hoping for early March date. I have to hide how I feel from husband because he is a worrier and won't let me drive to town, but he CANNOT drive because of his forgetfulness. So I have to tell him I feel ok. I don't like doing this but I do NOT want him to drive and shop. Besides he cannot remember everything to get even tho he has list. So I talk to you guys. I know you will just listen and pray.

I am so fortunate. My problems are nothing compared to other people. All I need right now is just your prayers, and if you do think my thinking is distorted let me know.

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/11/2009 12:34 PM (GMT -6)   
I will be praying for your strength and better health, and for the weather to settle down for you. Where do you live? Stay warm, but be safe if you are driving.

I can certainly understand not sharing how you feel with your spouse as I do the same as best I can with my husband. He has ALS and really doesn't need any more problems on top of his.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


tkctwbd
Regular Member


Date Joined Dec 2007
Total Posts : 82
   Posted 1/11/2009 1:40 PM (GMT -6)   
Thanks for prayers Peggy. I am so selfish thinking of me and not my husband. You think of your husband by not wanting to put more problems on him. I guess I do that too by doing more for my husband to help with his frustrations of forgetfulness. I just get resentful and I HATE that. It is a big flaw of mine. I'm glad you reminded me

I live in NC mtns. Here is forecast:
http://www.booneweather.com/Forecast/Rich+Mountain/Printable
Hope that goes through.

A miracle: the driver called me this morning! Unfortunately for him, he does not have a job yet; but fortunately for me, he will be able to drive me to hospital for surgery; and pick me up when released. This takes a lot of stress off me ie knowing I have transportation to/from hospital.

Roddiesgirl
Regular Member


Date Joined Oct 2008
Total Posts : 262
   Posted 1/11/2009 2:38 PM (GMT -6)   
I'm happy things are working out for you!  Your surgery will be all over before you know it!  I don't share alot of how I feel with my husband either as I have had so very many health problems and surgeries, I feel  just can't dump any more on him, although he has been a real trooper and is my undisputed HERO!!  I understand how you feel you wonder if you can hang on until your sursgery....I know what you mean.  I was feeling so very awful prior to mine in Sept/8 that I just wanted to be put to sleep....I wasn't even concerned about waking back up again...awful thoughts huh?  I was just so sick of feeling so sick all the time.  Now that is behind me, and I have my temp loop ileostomy which is working great and see a surgeon this Friday to see about having things reversed back.!!  I wish you luck...keep posting...this Forum is such a wonderful place full of so many people who understand what you are going through!!....

magenta
New Member


Date Joined Jan 2009
Total Posts : 1
   Posted 1/11/2009 8:35 PM (GMT -6)   
hi,
   hang on in there, in July I was told I had less than a month to live, and a less than 4% chance of survival, I was riddled with Crohns, fistulating and abcessing constantly,all the standard and experimental treatments failed, I lost my sight 5 times with uvietus, but thankfully got it back, my right kidney only works at 29%, and I had horrendous mouth ulcers all caused by crohns ,for the last 3 and a half years my life was constant surgery, the last year and a half I was bed ridden and incontinent with blood coming through the fistulas up to 30 times an hour. I'm 53 never drank smoked or done drugs, but have had this disease since I was 13, but not diagnosed till I was 38. Against the odds I'm still here so keep fighting, my illieostomy is irreversable, and my back passage has been removed, 6 months on it still hasn't healed and is packed and dressed every day by the nurses. I had to spend most of December in hospital due to a blocked bile duct and acute pancreatitus which caused my organs to start failing, I have now been told I need to have my gallbladder removed by open surgery as it is diseased and the pancreatitus could re occur at any time. Having faced death 3 times in the last year and lost 6 stones 4lbs, for the first time I am frightened as I am still very weak and tire easily. My stoma also keeps leaking and a swelling has come up beneath it, which I will call the stoma nurses about tommorow. Have faith in yourself I know your feeling low, but you have come so far and you will make it. Has anyone else out there had the same as me and developed gall bladder problems after surgery, I have never ate a fatty diet due to the crohns, some advice would be welcome,every time a bag leaks i feel so bad about myself and am frustrated my healing is so slow I only had a score of 11, apparently the lowest operated on was an 18, he was healthier than me but died on the table, I was on tpn for months, so someone must be looking out for me, I feel blessed to be alive, but just can't face this next surgery I want it to end and be well again, I focus my limited energies on raising funds for our local colo rectal unit, this way I feel I'm giving something back and doing something positive, my energy only lasts about 2 hours, and the pain sets in if I try to be normal and walk round the supermarket, I just can't do it, I know I was riddled with the disease sand sepsis, and the other problem and open wound are not helping, but the frustration of not being able to beat this is driving me nuts, any answers will be greatly appreciated, I am a very positive person, but finally my patience is wearing thin 

Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 1/11/2009 10:18 PM (GMT -6)   
Magenta,
All I know to say is I'm praying for you.
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery to redo ileostomy and switch to other side 12/25/08; pred., (ileostomy temporary....not so sure?)


nene205
Regular Member


Date Joined Jun 2007
Total Posts : 302
   Posted 1/11/2009 10:46 PM (GMT -6)   
Magenta,
I am so sorry you have had to endure so much. You are right. You are being blessed to have come through so much. My thoughts and prayers are with you.
Jennie
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