to those who had UC

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tkctwbd
Regular Member


Date Joined Dec 2007
Total Posts : 82
   Posted 1/11/2009 12:23 PM (GMT -6)   
I will be having my surgery in early March.
I am on 5 mg Pred, 12 Asacol, and Tylenol/BC Powder around the clock.

I am feeling poorly x two days with flu-ish feeling, need to lie down, nauseated but no vomiting. I hate this inflamed feeling.

My question, if I call the GI for increase Pred will he increase slowly like just five mg or will he want to shoot it back up to thirty? I hate the Pred and don't want the higher dose. My experience is that they always increase it a lot. I just want to increase five mg to get me thru until surgery.

Thanks

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/11/2009 12:40 PM (GMT -6)   
I would certainly call him and ask him that very question explaining your concerns about the higher dosage.  Sometimes, we know our bodies better than they do, and I don't think it is wrong to express our opinions, questions.   If he writes the RX for 10 mg or even 5 mg pills, you can adjust your dosage.

Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


tkctwbd
Regular Member


Date Joined Dec 2007
Total Posts : 82
   Posted 1/11/2009 2:01 PM (GMT -6)   
I think I will do that, Peggy. I can always refuse his order! I think I will ask if increasing dosage just 5mg is ok. I sure hope so. It may help; I'm tired of feeling bad.

Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 1/11/2009 2:29 PM (GMT -6)   
Definitely ask, but in my experience, if you are feeling that bad, going up only 5 mg won't do much. That's such a tiny amt. I was on pred. until surgery. I am on it now too post surgery-be prepared for stress dose following surgery. I am on 40 mg. and a slow taper.
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery to redo ileostomy and switch to other side 12/25/08; pred., (ileostomy temporary....not so sure?)


tkctwbd
Regular Member


Date Joined Dec 2007
Total Posts : 82
   Posted 1/11/2009 4:01 PM (GMT -6)   
Chasblah
What is "stress dose following surgery"?

Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 1/11/2009 5:49 PM (GMT -6)   
Your body will go through stress and cause more inflammation b/c surgery is stressful to everything in your abdomen. So they will probably give you high dose IV steroids during your stay at the hospital-they call that the "stress dose" and send you home on a taper. (at least in both of my surgeries they did and after the birth of my daughter-which I was still in a u/c flare).
And if you still have your rectum b/c of a possible reconnect, it will be inflammed and want to be on steroids too. I still have the urge to empty it, even though only a teeny tiny amt. of mucus comes out.
Having said all of that (and even though I'm still on dreaded pred.....and my face is getting fatter by the sec...:) ) I still feel WAY better than I did b4 surgery. SOOO glad I did it.
I'm sorry you don't have much support system there. i'll pray all goes well for you and complication free.
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery to redo ileostomy and switch to other side 12/25/08; pred., (ileostomy temporary....not so sure?)


nene205
Regular Member


Date Joined Jun 2007
Total Posts : 302
   Posted 1/11/2009 6:04 PM (GMT -6)   
I had UC for many years and took prednisone for most of my adult life. I took so much that I had to take larger and larger doses for it to stop the symptoms. The months before I finally had surgery I was taking 80 mg a day. Every time I tapered down, the UC would flare up again. So the doctors would up the dose dramatically. The only thing that has helped me is surgery. Now I am UC free and it feels good.

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5692
   Posted 1/11/2009 6:08 PM (GMT -6)   

It's best to go in to surgery in good health so if that means you have to increase your prednsione dose to maintain a good level of health than that is what you have to do.  Talk with your GI about increasing your dosage and tapering down to  the lowest level until your sugery. I had surgery while on 10mg and did fine. 

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


nene205
Regular Member


Date Joined Jun 2007
Total Posts : 302
   Posted 1/11/2009 8:24 PM (GMT -6)   
I didn't mean to sound like I took the large amount of pred just before surgery. I had tapered down to 0, but the surgeons gave me a shot of pred just before surgery. After surgery I took a small dosage for a few weeks, then stopped completely-nada- all gone. I didn't like what the pred did to my body either.
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