Diet and flares of rectal stump

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picklechic
Regular Member


Date Joined Feb 2008
Total Posts : 32
   Posted 1/13/2009 8:34 PM (GMT -6)   
My daughter has a temporary ileostomy and has been having flares of her rectal stump every now and then. Could her diet have anything to do with those flares, even though the rectum is not connected anymore? I know that diet affects her output of her ostomy, but does it affect the rectum too?
 
Kimberly
mom to Emily, 3.5 years old, UC, s/p total colectomy 8/08 with ileostomy, awaiting j-pouch and takedown surgeries in 2009
Kimberly
Mom to 3 year old daughter with UC and XY Turner's Syndrome
dx. 1/08, s/p total colectomy with ileostomy 8/13/08
J-pouch surgery in 2009
 


Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 1/14/2009 12:34 AM (GMT -6)   
Good question.
I wonder this too.
If I guess, on one hand you could say no because nothing is going through the rectum, so it wouldn't have that irritation.
BUT,
since u/c is an autoimmune dz and if what you eat upsets your immune system,like at allergy, to where it has to attack, and what it has been attacking is colon/rectum area, then it would still want to go after the rectum....?
I'd ask the GI Dr.
or better yet, experiment with food to see the outcome.
I plan on that as soon as I'm off steroids.
FYI-I couldn't eat any dairy b4 surgery. and I just enjoyed pizza and a glass of milk and no upset "stumpy", but like I said, I'm still on 40 mg. pred.
P.S. I'm very sorry about your baby having to deal with this tortorous dz (and you for that matter). I'll be praying for your family.
P.P.S.S. I did a kids ccfa camp a couple of years ago and met a few young-ins who've gone through j-pouch surgery and are doing fantastically-completely normal (even out-put was normal!) and some with ostomy bags. TOUGH KIDS!
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery to redo ileostomy and switch to other side 12/25/08; pred., (ileostomy temporary....not so sure?)


draegs
Regular Member


Date Joined Jun 2008
Total Posts : 31
   Posted 1/14/2009 7:44 PM (GMT -6)   
This is just me, so take it for what it's worth...

A lot of times I will drink coffee in the morning at work. Usually by the time I finish my second cup I have the urge to empty my stump. Otherwise--if I don't drink any coffee--my output is no more than once a day or so.

I know you were asking about foods causing flares, but I can at least say certain foods cause me to feel a need to pass mucous.
James
26-year-old diagnosed with UC in 2004
Underwent stage one of J-Pouch surgery on September 16, 2008
Stage two scheduled for March 19, 2009
Now living symptom-free thanks to the Cleveland Clinic


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5690
   Posted 1/14/2009 8:31 PM (GMT -6)   

No, what your daughter is experiencing is UC in the retained cuff.  This is easily treated with 5ASAs.  Talk with her GI or surgeon. 

 

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Teebs
New Member


Date Joined Jan 2009
Total Posts : 13
   Posted 1/14/2009 8:39 PM (GMT -6)   

Hi,

Before I had my illeostomy, I was on a dairy free diet because of how sick it made me.  After the surgery, I was really surprised to find out that I had LOTS of "mucusy stuff" coming out of my stump.  If I avoid dairy, all dairy, then it is fine.  Try to experiment with food.  See what works.

Teebs


UC diagnosed in 2004
total collectomy in 2008
awaiting reconnection

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