Do you still see a GI?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

picklechic
Regular Member


Date Joined Feb 2008
Total Posts : 32
   Posted 1/14/2009 10:59 AM (GMT -6)   
For those of you with UC that have had colectomies, do you still see a GI? Is it common to see a GI still after the surgery?
 
My daughter had a total colectomy with temporary ileostomy in August and we were told that we no longer needed to see a GI, that she no longer had UC anymore because she had no colon. But from reading, it seems like most people are still monitored by a GI, at least until after their surgeries are completed. Is that true?
 
 
Kimberly
Mom to 3 year old daughter with UC and XY Turner's Syndrome
dx. 1/08, s/p total colectomy with ileostomy 8/13/08
J-pouch surgery in 2009
 


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5690
   Posted 1/14/2009 11:52 AM (GMT -6)   
Your daugher will need biopsies of her pouch on an every 1-2 year basis. Those biopsies check for cancer as even though our risk for cancer is much reduced we still have a small portion (cuff) left of old tissue. You can have the biopsies performed by either her surgeon or her GI. I choose to have my surgeon do the biopsies as I feel more confident of his pouch experience. I have not seen my GI since having jpouch surgery 7 years ago.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


picklechic
Regular Member


Date Joined Feb 2008
Total Posts : 32
   Posted 1/14/2009 12:15 PM (GMT -6)   
Thank you! Did you have your J-pouch surgery as a separate surgery than your colectomy? If so, did you see a GI between surgeries?
Kimberly
Mom to 3 year old daughter with UC and XY Turner's Syndrome
dx. 1/08, s/p total colectomy with ileostomy 8/13/08
J-pouch surgery in 2009
 


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5690
   Posted 1/14/2009 12:52 PM (GMT -6)   
I had two surgeries and saw my GI once in between both surgeries. He checked the ostomy and that was it. All my directives in terms of weaning off of UC meds came from my surgeon. I haven't seen my GI professionally since then but I do run into him in town on occasion!

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1243
   Posted 1/14/2009 5:08 PM (GMT -6)   
I have an ileostomy and haven't seen a doctor regarding it in ohhhhhh, about 30 years lol. I haven't needed to, everything's gone fine :)
I have had an ileostomy for 33 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!


tbraz
Regular Member


Date Joined Jul 2007
Total Posts : 280
   Posted 1/14/2009 9:28 PM (GMT -6)   

I didn't see my GI between my surgeries, but now follow up with him. I am more comfortable with him as he has known me for 20 years where my surgeon met me and did surgery and I don't care for his office much. My GI has done a scope and is knowledgable in all areas of the pouch/UC (oh & the surgeon's office is also across the hall and they do collaborate).

 


Theresa

Originally diagnosed with CD in 1991
Now saying "Undetermined Colitis"
3 step Jpoucher as of 4-15-08


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 1/15/2009 5:46 AM (GMT -6)   
I only call my GI if I'm having a problem, like a blockage, which I had last year due to scar tissue from the proctocolectomy surgery. Otherwise, I've been feeling great and don't need to see her.
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


Wade457
Regular Member


Date Joined Dec 2008
Total Posts : 91
   Posted 1/19/2009 9:59 PM (GMT -6)   
I saw my GI about six or seven months after the operation. Had some questions to ask her about this "stuff" that still comes out of my rectum.. and what i can expect if I opt to get the J-pouch connected...

She had all the answers I was looking for. also told me basically good-bye that I was cured. Don't expect to see her again unless I run into her in the GI ward when I get my reversal...
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, August 22, 2017 6:37 PM (GMT -6)
There are a total of 2,858,633 posts in 313,668 threads.
View Active Threads


Who's Online
This forum has 155258 registered members. Please welcome our newest member, Kyrie Timo.
540 Guest(s), 8 Registered Member(s) are currently online.  Details
PeteZa, Hateanxiety, Zach503, Serfr, Tudpock18, Uniform Charlie, Dadeen, SpikeX77


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer