Otomies....pros and cons

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pepperann27
Regular Member


Date Joined Dec 2008
Total Posts : 147
   Posted 1/14/2009 1:20 PM (GMT -6)   
I thought that those of us who have ostomies could say whats good and maybe whats hard about them, because I have read alot of things on here about people who are aprehensive about having an ostomy, and maybe it could help some people...
 
I also was scared about having one, in fact it took me about 9 months to decide to get it done, but now I am thankful I have it, because I was in alot of pain, I still have pain but not as much as I did, I guess what I think it hard sometimes  is when I am somewhere and it leaks or starts to smell, in fact when I worked at a preschool for handicapped kids, the clip fell off and all the stuff in the bag fell out, it happened 2 times, it was so embarassing but the ladies I worked with were very nice about it and halped me, but I think that had to do with the kind of clip I was using, I use a different one now
 
If anyone has any questions about ostomies, please feel free to ask, you can also email me. :-) turn wink
thanks, Dusti

Diagnosed with colonic inertia at 13 years old, had my colon removed.
Diagnosed with rectal inertia at 16 years old, had my rectum removed and had a jpouch made.
Diagnosed with small bowel inertia at 18 years old, and got an ileostomy wich I still have. I am 27 now.

If you want to know more, just ask me!


vintageman
Regular Member


Date Joined Oct 2008
Total Posts : 28
   Posted 1/14/2009 3:38 PM (GMT -6)   

This is a great thread pepperann27. The level of apprehension and downright fear of having an ostomy is pretty high. I was in the hospital recently, and one lady who had just had an ostomy installed was very upset. She was told by a hospital worker that she could no longer swim or jog, things she loved to do. What nonsense !

Before I had my surgery, I was able to speak with a guy my age who popped by my hospital room and chatted about his experience before and after ostomy surgery. He was normal, healthy, and working. Had a young family, and was doing great.

Anyone facing ostomy surgery might consider talking with an Ostomy Nurse, or your doctor, and request a visit like I had. If it's possible in your area, it really helps to ease fears about things.

Mike


Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 1/14/2009 8:46 PM (GMT -6)   
The hugest pro is that I don't feel sick! And that has been worth it for me-no more nausea, vomiting, constant bleeding, diarrhea, etc. I also can eat anything I want (so far) whereas b4 surgery, I had such a limited and blah diet. So I'm sure I'm gonna get fat :) I FEEL GOOD!
My energy is getting stronger every day, too.

The obvious con is the vanity issue. Having a sack of crap hanging off of your stomach isn't fun.....but I'm getting over it!

I was worried about clothing issues, but so far, I can wear anything I was b4. (with the exception of jeans, only b/c I still can't stand restriction on my abdomen).
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; pred. and pain meds, (ileostomy temporary....not so sure?)

"Things turn out the best for those who make the best of the way things turn out."


Ohio43
Regular Member


Date Joined Aug 2007
Total Posts : 212
   Posted 1/14/2009 9:58 PM (GMT -6)   
pepperann27, you mentioned a clip that your using for your bag - you should try Coloplast, Convatec or Hollisters - velcro type bags - much easier to use and you don't have to full around with a clip. I couldn't imagine using one. I know that's what they hospital started me out with. You can order samples from the three listed above. Give them a try, if you haven't already.

Also, there are lots of jeans out there with spandex. You don't need to worry about squishing your stoma. I wear modified briefs from Bali that give me lots of support (like a girdle) because I have a hernia around my stoma, but my Colorectal Surgeon told me I couldn't hurt my stoma. I've had an ileostomy since July 2007. I can't stand any of the ostomy belts or hernia belts.

Let me know how things work out for you.

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 1/15/2009 5:10 AM (GMT -6)   

I agree, this is a great thread!

Pros:

I'm not sick anymore, don't take any medicines, and can eat whatever I want!  turn  

I'm healthy, can exercise and swim, without any problems.

I have tons of energy and don't have to be near a bathroom all the time!  

Nobody can tell that I have one!

And, I've met the nicest people through this forum! smilewinkgrin

Cons:

Vanity, but since my hubby doesn't mind, I'm getting over it! blush


Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 1/15/2009 11:41 AM (GMT -6)   
Pro's: I can travel, ride my horse, play with my daughter, shop, go to school, eat WHATEVER I want, don't take meds, want to have s*x, can take a walk for hours and many things I haven't thought of yet!

Con's: Hmmm I cannot think of one! I'm married and even if I wasn't it would stop me from anything:) Limitations are only ones you place on yourself...how's that for corny!

Oh, I have one word to conceal: SPANX!

badbaggirl
Regular Member


Date Joined Jul 2007
Total Posts : 275
   Posted 1/15/2009 11:55 AM (GMT -6)   
Pros: I am alive.

Cons: I still have Crohn's and have had more accidents with the bag then without. They caught the cancer, but left quite a bit of colon ...

As most would say - vanity. I never had a perfect bod, but I thought it was decent and was a confident gal once ...

Oh, then there's the hernia ... OHIO76 - SPANX ROCK!
BadBagGirl
Crohn's Disease, Colostomy due to cancer and I make darned good dill pickles.


Ohio43
Regular Member


Date Joined Aug 2007
Total Posts : 212
   Posted 1/15/2009 7:33 PM (GMT -6)   
badbaggirl, I wear modified briefs that are similar to Spanx for my hernia. So you don't wear a hernia belt? Are the Spanx tighter than other modified briefs such as Bali? Do they offer high cut panties as well? I know they're expensive, have you found someplace that has them on sale?

Thanks

Mary

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 1/15/2009 8:33 PM (GMT -6)   
pros-way too many to list them all
but
No meds! No runnign to the bathroom! no missing out on important things! having energy, being able to eat (and drink) anything i want, being able to do anything i want, i feel like i got my life back, like i can start all over! and i am going dancing next weekend! i am sooo excited! lol sorry just threw that in there!
Cons-taking my bag of clothes with me, and my little things of supplies takes up too much room in my pocketbook, i could just get a smaller thing, but that would be too much work! Sometimes i get a little self concious about it, but then i am like, what the heck, noone knows! You cannot even begin to imagine all the things i have done and noone knows still!

after about 2 months i didnt have a problem with jeans, once the tenderness from the surgery went away.

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 1/16/2009 7:32 AM (GMT -6)   
Ohio43-I can find them on ebay!  Infact, they can be about half price:)  Just make sure you buy from a reputable seller...Try a pair on in a store then order online.

badbaggirl
Regular Member


Date Joined Jul 2007
Total Posts : 275
   Posted 1/16/2009 8:15 AM (GMT -6)   
I buy the 'knock off' ones at Target called 'Assests'
BadBagGirl
Crohn's Disease, Colostomy due to cancer and I make darned good dill pickles.

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