I'M FINALLY HOME!!!!

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2 RIS K
Regular Member


Date Joined Aug 2008
Total Posts : 367
   Posted 1/18/2009 3:37 PM (GMT -6)   
Can you believe it?  I'm finally home!!!  It's amazing!  My doctor did a CT scan and it was pretty normal so she let me come home last night, however, I still have my JP drain.  They were going to let me out on Friday night, but I had been having the most excruciating stomach cramps you could ever imagine all day.  The doctor couldn't find any reasons for them and none of the meds wore helping the pain.  She didn't want to give me too many meds because she was hoping to send me home.  So, they did another CT scan on Saturday and then I recevied a phone call from the on-call doctor that it was ok for me to go home.  By this time the cramps were nearly gone so I decided it must be ok and I went home last night. 
 
It feels so good to be back home! I slept in my own bed last night for the first time in over a month!  I still have my JP drain, they just clamped it off, but other than that, no big deal.  I'm finding it much easier to deal with this JP drain than I did with the "bag".  They also still have me on the fentanyl patches for pain which really help a lot.  Oh, and they set me up with Home Health Care.  I'll have a nurse come out once a week and also a psychologist (not sure how often he/she will be here) just to help me adjust.  I was sort of scared of coming home because every time I came home before, I ended up back in the hospital.  The nurse is coming in to answer my questions and just to be there for me sort of as a representation of the hospital.  She'll be able to answer all my questions.  Don't you hate it when it's late at night and you have a question and you won't be seeing your doctor for a week?  I'll be having my nurse come in or I can just give her a call. 
 
I especially like the psychologist part too.  I've been "away" from my normal life routine for four months now and for some reason I don't feel motivated to "jump" back into it.  I mean, yes I want my life to be back to normal, but I'm not quite sure how to get there.  Does the make sense.
 
Well anyway, I'm sorry this was so long.  But it is GOOD NEWS!!!!  I couldn't be happier unless all my friends on here were healed and well right now too.  Thank you for all the prayers, they'll definitely going straight up from me for all of you.  I couldn't have done this without you.
Amanda
35 years old
Chronic Lifetime Constipation
Diagnosed IBS - 1995
Rectal Prolapse - February 2007
Rectosigmoid Colectomy w/low anterior Anastomosis - 3/13/07
Diagnosed with Colonic Inertia - June 08
Total Colectomy - September 22, 2008
Take Down Surgery Scheduled - December 15, 2008
 
The whole world is at your feet; so paint your toenails Red!
 


2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 1/18/2009 4:58 PM (GMT -6)   
Amanda,

i'm SO happy to hear from you AND that you're actually home!!!!
finally our prayers have been answered.. it really is exciting. just please, promise me that you get enough rest and don't strain your self too much, let others take care of you and everything else till you're COMPLETELY healed, o.k? can you promise me that?

i can totally understand how you feel about not being motivated to get back to life. you're not supposed to feel that way yet. it's only normal to feel the way you do at this stage of your healing proccess, and you HAVE been through A LOT!! so don't push yourself and don't get all stressed out about it right now. you have to give youself some time. no body who's normal and human can snap right out of such a horrible ordeal like you had. so please don't worry about it. and i don't think anyone else is expecting you to do so either. it's totally understandable and normal.

it all will get back to you, but you have to give youself time, so please take your time to HEAL, girl.
you'll know when the time is right to go back, you will suddenly feel it yourself when you're ready.

take it easy for now and feel good :o) !!!!
Hodaya
 
06/05/2007 - STARR procedure 
colonic inertia w/ pelvic floor dysfunction


XtremeMisery
Veteran Member


Date Joined Sep 2007
Total Posts : 687
   Posted 1/18/2009 5:31 PM (GMT -6)   

Amanda-

so glad you are home!!!!! and healing!!! I had two of those JP drains when I went home....I had mine for 45 days!!! But like you said I am sure its much easier to deal with than the bag:) I think what you are feeling is completely normal....I wish I would have had the help you are recieving....I was out of work/life for four months as well and it is an adjustment, but it will take time!!!

Let yourself heal......do not rush anything and make sure your ready. I was not able to make it through a full day at work for the first few weeks!!! and you have to listen to your body!! How is your eating going? I am so happy you are able to live back in some normalcy....i bet your own bed felt great:)

Take care hun......

Lizzie


badbaggirl
Regular Member


Date Joined Jul 2007
Total Posts : 275
   Posted 1/18/2009 6:52 PM (GMT -6)   
Welcome home ... heal ... take care of yourself!
BadBagGirl
Crohn's Disease, Colostomy due to cancer and I make darned good dill pickles.


Roddiesgirl
Regular Member


Date Joined Oct 2008
Total Posts : 262
   Posted 1/18/2009 7:00 PM (GMT -6)   
Hi Amanda! You're home!!!  YAY!!  YAHOO!!  I am so happy for you!  I just want to reiterate what 2bColonFree told you and just add "be patient with yourself"  while you are healing.  You have sure been through alot of misery.  Now just let yourself heal...physically, emotionally and every other way!!  Be good to yourself ok??  ...Love and Prayers,...Cheryl

Hysterectomy 1998
Diagnosed IBS 2000
Vaginal Prolapse Surgery 2001
3 Hernia Repairs, 2004
Repeat Vaginal Prolapse Surgery 2006 (the mesh from previous prolapse surgery had let go and fallen into my bowels)...
Removal of mesh from bowels (it was piercing holes all through my bowels and appendix and cecum, causing 2 fistulas and heavy bleeding vaginally and rectally)...mesh was removed, two pieces of large bowel removed and resectioned with a loop ileostomy. 2008
 
I have underlying connective tissue disorder (Ehlers Danloss Syndrome) which is the reason for the two failed surgeries)
 


dilatante
Regular Member


Date Joined Jan 2009
Total Posts : 125
   Posted 1/18/2009 7:26 PM (GMT -6)   
welcome home amanda!!

2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 1/19/2009 5:37 AM (GMT -6)   

HEY THAT IS GREAT AMANDA

yes i agree with all the above - take it slooowww. bless you. x


Karen 46 yrs
1997: Diagnosed IBS
2003: Pelvic floor repair surgery (rectocele/cystocele)
2006: STARR surgery for mucosal prolapse/Obstruction
2006: Diagnosed with slow transit constipation
2007: Sigmoid resection because of partial volvulus resulting in immediate colonic inertia
 
15 JANUARY 2009: scheduled for T/C
 
12 FEBRUARY 2009 - Re-scheduled T/C
 


psygirl6
Regular Member


Date Joined Aug 2008
Total Posts : 268
   Posted 1/19/2009 10:55 AM (GMT -6)   
Hey Amanda,
Welcome Home. I am extremely happy for you that you have made it home. Now it is time to PARTY!!!! I hope everything continues to go well and good luck with everything. You Did It. I am very proud of you. You have been through alot and now you are getting back your life. It will feel good. I know I have been through alot since my surgery, but the surgery was worth it. I am now living a wonderfull life and I am now wanting to go back to school and preparing myself for that by doing catch up work, since it has been 12 years, 1997, since I graduated high school. Well, I hope all is well and CONGRATULATIONS on your recovery.

Maya

nene205
Regular Member


Date Joined Jun 2007
Total Posts : 302
   Posted 1/19/2009 11:47 AM (GMT -6)   
Great news, Amanda!! I am  glad you are doing so well. Keep those toes painted red!!

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 1/20/2009 11:47 AM (GMT -6)   
That is great to hear!! Take it easy and just recover:)

finallyfree
Regular Member


Date Joined Aug 2008
Total Posts : 470
   Posted 1/20/2009 10:11 PM (GMT -6)   

Amanda,

WELCOME HOME!!!! This was the very best news that I could read:)  Our prayers have been answered and you are truly amazing!  You have been through soooooo much just remember that it takes at least a year for your body to heal from one major surgery let alone all you have been through.  Always remember that we are all here for you.

I will catch up with all of you later as I just got my computer back, but I needed to check up on Amanda; you go girl!!!

Blessings, prayers and peace to you,

Judy

 


2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 1/26/2009 6:07 AM (GMT -6)   
Hows it going Amanda???????????
 
Do hope everything getting easier and recovery is still going forward at home.xx
Karen 46 yrs
1997: Diagnosed IBS
2003: Pelvic floor repair surgery (rectocele/cystocele)
2006: STARR surgery for mucosal prolapse/Obstruction
2006: Diagnosed with slow transit constipation
2007: Sigmoid resection because of partial volvulus resulting in immediate colonic inertia
 
15 JANUARY 2009: scheduled for T/C
 
12 FEBRUARY 2009 - Re-scheduled T/C
 


mom9mom
Regular Member


Date Joined Sep 2008
Total Posts : 489
   Posted 1/26/2009 6:27 AM (GMT -6)   
It is so good to hear that you are at home right now and doing good.Take it easy and just try to get back in to your life at a very very slow passe.Its just fine to take your time when you try to do to much to soon you just end up further behind.Hope that you stay healthy .
Lost half of my small intestineJan.2008.Ilieostomy for 5 months then reverst in June 2008,Nerve damage to right leg,part of my right hip bone removed Jan. 2008,Cronic pain,hernia,infection in my back called discites,and depression.Gallbladder removed Nov,2008.Surgery to fuse L3 and L4 vertabra Dec. 31,2008.Mother to 9 kids 7 boys 2 girls and 1 stepson.4 grandsons,9 grandaughters.4 of my grandkids I inherited from my twin sister who passed away 6 1/2 years ago from a blood clot after surgery.God has given me my life back after I almost lost it.Even though its a painful and sometimes hard road to walk I take it one step at a time and give thanks to god for every step I take.

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