I'm back in the hospital, but counting my blessings.

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Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 1/20/2009 8:25 PM (GMT -6)   
So yeah,
I'm back in the hospital.
My daughter came down with a bad stomach bug (vomiting and diarrhea)-poor baby. and of course I got it too. It sprung on me so quickly though and I got super sick. it started yesterday afternoon with the severe vomiting and lots of bag output (diarrhea) and really back abdominal and back cramping. I got sooo sick that I couldn't walk or even hold my head up and so my family convinced me to go to the hospital. I just thought (as bad as I felt) that it was just a virus and I'll get over it, but I went to the ER and so glad I did.
They didn't like my level of pain from cramping, so they did a CT scan to look for an obstruction. And they found a blood clot! WHOA! In my superior mesenteric vein-a major vein between intestine and liver. I guess it was "fairly good size" and the surgeon said it could've caused major intestinal loss. As it was, it caused a bit of liver damage, but the Dr. said that it will heal, and it probably won't require surgery. It's only a partial block and we caught it soon enough to stop it getting bigger or anymore from forming. I am now on heparin and will stay in the hospital a couple of days for monitoring. They have now tested me for some common clot disorders (but the Dr. said they only find what causes clots in 50% of patients) and if those are normal, then they will assume it may have to do with the surgeries I've had recently. They will put me on lovonox, then cumadin for 6 months and then, we'll see..........
I'm mad and frustrated, and I feel so LUCKY that I got the stomach bug!
Thank GOD!
I just wanted to let you all know. I'll continue to update you.
Chassity
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; pred. and pain meds, (ileostomy temporary....not so sure?)

"Things turn out the best for those who make the best of the way things turn out."


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 1/21/2009 12:04 PM (GMT -6)   
WOW...that's unbelievable!! Glad you are in the right place to be treated! You certainly have a guardian angel looking over you!

Keep us posted on your progress, please:)

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 1/21/2009 3:33 PM (GMT -6)   
WOW...is right! I'm so sorry you got sick and ended up in the hospital, but what a blessing that they found that blood clot!! You are in my thoughts and prayers for a speedy recovery.

Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 1/21/2009 3:38 PM (GMT -6)   
The Dr. just came in and my liver tests look good! THanK GOD! and they'll start me on anti-clotting meds now and are releasing me tonight. My goal (as much control as I have over it) is to get BETTER FOR GOOD! Positive thinking.....
Thanks for the support,
Chassity
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; pred. and pain meds, (ileostomy temporary....not so sure?)

"Things turn out the best for those who make the best of the way things turn out."


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/21/2009 6:48 PM (GMT -6)   
I wasn't on the board yesterday, so I didn't see your post until today. WOW is all that I can say. Are you ever lucky?! I know bugs are no fun, and a lot of times, we try to just get thru it, increase our fluids/electrolytes and muddle on thru the sickness, but there is a lot to be said for giving up and going to the hospital. I am so glad that they found the clot and are treating you. Do keep us updated and hope that you are feeling better. Keep your chin up.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


finallyfree
Regular Member


Date Joined Aug 2008
Total Posts : 470
   Posted 1/21/2009 10:09 PM (GMT -6)   
Chasblah,
WOW! You are one lucky girl, even though you might not have felt it with the pain and sickness.  Just know the angels are with you and I will be praying for a speedy recovery.  Hope your daughter is feeling better too.
 
Judy

Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 1/22/2009 12:31 PM (GMT -6)   
Ok I'm home again.
BUT I'm still having terrible diarrhea! And now I think I'm getting dehydrated again. I'm emptying my bag like 2x/hour. So much. And it's jello green liquid. I'm drinking lots of water and gatorade, but Now I'm starting to get weak, shaky, nauseated and fast heart rate again! Can't I catch a break (sorry, I know I shouldn't feel sorry for myself, as others have it so much worse, but I'm really getting fed up-my normally positive attitude is shrinking). I felt Great when I left the hospital last night. Then sometime overnight I started to get icky again. I called my Gen. Practitioner Dr. and surgeon to ask what to do. The GP Dr. said to go back to the hospital for more IV, but I just can't stand the thought of the ER again. So now I'm waiting for the surgeons advice. I don't think these symptoms have anything to do with the clot, b/c I'm not having pain like I was. But I don't know......What do you think? Do you think if it is dehydration, that I can just try to fluid myself at home? What can I do to decrease my output. I'm not really eating much as I feel so nauseated.
Chassity
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; pred. and pain meds, (ileostomy temporary....not so sure?)

"Things turn out the best for those who make the best of the way things turn out."


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/22/2009 1:54 PM (GMT -6)   

I think you need to talk to your dr about maybe imodium to slow things down.  Also, increase your sodium intake to help you retain some of the fluids.  Do you like oatmeal?  A small bowl of oatmeal might thicken up and slow output.  or part of a ripe banana or a baked potatoe with salt.  Just some ideas.... I know you feel nauseous, but the nausea may also be from lack of food and dehydration combined.

Don't let your symptoms go too long.  You need the fluids/electrolytes.  Talk to the dr/surgeon about a RX intervention to slow things down until you can get them under control would be my suggestion.

Stay in touch.  Good luck  to you.


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 1/22/2009 9:37 PM (GMT -6)   
OK, I went. They gave me fluids, immodium (which hasn't helped a bit)& nausea rx. Then they sent me home. I felt good leaving the hospital, but now I'm icky again. I'm getting down about it. I mean, the whole reason for the colectomy was to get OFF MEDS and I just keep adding them.....ARGH. I now need to update my profile and maybe eat some salty corn chips.
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; pred. and pain meds, (ileostomy temporary....not so sure?)

"Things turn out the best for those who make the best of the way things turn out."


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/22/2009 10:11 PM (GMT -6)   
How much imodium are you taking?  I have a RX and can take up to 3 with each meal!  So, increase the foods that will slow things down for you, and do the imodium and sodium.  What fluids are you drinking?  Anything high in sugar will also tend to run thru pretty quickly.  We will try to help you get this figured out.

Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 1/23/2009 3:47 AM (GMT -6)   
Thanks Peggy,
The ER Dr. told me to take 1 every 4 hours (6 per day) OTC. I'm drinking water and gatorade (for the electrolytes). I tried Pedialyte too. That stuff is nasty. I'm staying away from just sugar (no soda or juice) and milk. And eating the soup I can tolerate.
It's 3:30 a.m. here and I'm an insomniac b/c of the pred of course, BUT I took some percocet and zofran b4 bed along with my corn chips and my output has slowed down finally. In fact, I haven't emptied since about 10 p.m. I'm sure it's probably the pain meds and I don't want to depend on them (I already feel like such a druggy), but for now, it's working. I just took some more zofran too. This is a bad stomach bug. My husband and daughter are still battling it too. Thanks for all ur help. I soooo appreciate this site and the people on it.

Chassity
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 1/29/08 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
pred. taper, zofran, immodium, lovonox, coumadin, carafate, prenatal vit., and pain meds
(ileostomy temporary....not so sure?)

"Things turn out the best for those who make the best of the way things turn out."


RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 1/23/2009 4:50 AM (GMT -6)   
Chassity, why are you on prednisone? I'm in the process of tapering mine for the surgery and I am feeling the insomnia...note the time. : ) I haven't had much luck with tapering so these side effects are new.

Anyway, were you on prednisone b/c of the UC prior to the surgery? I'm going to attempt getting down to 5mg just before the surgery...however, I've been on 15mg for the past few days and not feeling the greatest. I'm nervous about the 10mg week! : )

I'm glad you're feeling better and are home. Hospital stays are not fun at all. I'm also glad you're home with your daughter. I think that's really the only thing that makes me sad about my entire situation, as that I won't be with Jackson while in the hospital, and it's going to be a little different the first few weeks home. However, I realize we both will adapt and adjust to the changes without much complication. It's just knowing that there is going to be that change is what upsets me. We're contemplating making his crib into a toddler bed sooner than later and adding a twin mattress next to it on the floor...partially so he can roll onto it while sleeping, and also so that I can lay with him and have access to him. But none of that will happen until I can work the baby gates. : )

: ) Robin
Dx-May 2007  Asacol-2400mg bid  Prednisone-20mg  Remicade-5 Tx
Paxil-40mg  Prilosec-bid  Multivitamin  Moderate/Severe Pancolitis
28 year old Mommy of a 1 year old and a Wife for almost 2 years!
Life has never been so sweet!  I appreciate the small things in life...the little joys that occur every second of every day.  Though we struggle and have crazy complications, nothing can over ride our love and happiness.
Surgery is scheduled for February 6th!!!  : )   Yea!!!!!!!!!!


Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 1/23/2009 1:02 PM (GMT -6)   
Robin-
I was on 10 mg. pred. b4 surgery. I've been on it for about 4 years with no luck of getting off b/c of flare. Don't worry about getting off of them b4, you want to feel your best, and besides, they'll probably put you on it post surgery too. I'm on 30mg with a slooooow taper (started on 40mg and taper 10 mg. every 2 weeks, then once at 20mg, taper by 5mgs). They put me on that b/c they said post surgery you need a "stress dose." B/c surgery can cause lots of inflammation too. (Just like labor) My original surgery (colectomy) I was on a faster taper-to be off of it in a couple of weeks, but b/c I got abcsesses and had to have another surgery and more inflammation, they wanted me to take it even slower this time. I HATE IT! I get ALL the side effects ('roid rage, acne, puffy face, weight gain, hot flashes, insomnia, rapid heart rate, osteopenia, eye probs, what am I forgetting....)

about being away from my daughter while in hospital-That was definitely the hardest part!!! Oh I missed her so much. But she had my parents and husband alternating time with her, and she visited often. She took it really well, to my surprise. She was so laid back and usually she's such a mommy's girl. The tough part is now b/c you're not susposed to lift for like 6 weeks (yeah right!) and I get sore still.

But I don't have to say "Just a minute honey, mommy has to poopy again!" :)

Chassity
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 1/29/08 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
pred. taper, zofran, immodium, lovonox, coumadin, carafate, prenatal vit., and pain meds
(ileostomy temporary....not so sure?)

"Things turn out the best for those who make the best of the way things turn out."

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