Need a little help after total colectomy

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tcr1130
Regular Member


Date Joined Jan 2009
Total Posts : 33
   Posted 1/21/2009 10:39 AM (GMT -6)   
I know this is going to sound funny - but hopefully for those who have had a colectomy know what im talking about....
 
what can you use when your "hiney" feels like its so sore you couldnt go one more time.... feels like a million little cuts when i have to go. .and as we know sometimes we are going 15-20 times a day... what product can i use   sad  
 
 
thanks for the help!


  • 45 years old
  • Had total colectomy 12/30/2008 for colonic inertia
  • severe gastroparesis
 
 
 

Post Edited (tcr1130) : 1/21/2009 5:59:42 PM (GMT-7)


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5690
   Posted 1/21/2009 10:42 AM (GMT -6)   
It sounds like you have fissures. They can be treated with nitroglycerine ointment which I think is an Rx.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


tcr1130
Regular Member


Date Joined Jan 2009
Total Posts : 33
   Posted 1/21/2009 10:46 AM (GMT -6)   
so no over the counter products would help
 
 
  • 45 years old
  • Had total colectomy 12/30/2008 for colonic inertia
  • severe gastroparesis
 
 
 


Bella_lostmybag
Regular Member


Date Joined Dec 2008
Total Posts : 104
   Posted 1/21/2009 4:07 PM (GMT -6)   
Have you tried any OTC products? My surgeon gave me this cream called Magic Buttcream..seriously thats the name of it haha You should call your doc to see if he can write you a prescription for it :-) It's amazing!
17, SENIOR in high school
Dx with Ulcerative Colitis on March 18,2008
Step1 Ileostomy on Nov.19,2008..waiting on Step2 =]
"The past is history, the future is a mystery. Today is a gift, that's why it's called the present"


justjenjen
Veteran Member


Date Joined Nov 2003
Total Posts : 518
   Posted 1/21/2009 4:12 PM (GMT -6)   
Calmoseptine is OTC and works well. More than likely, your pharmacist will have to order it but it is still OTC.

tcr1130
Regular Member


Date Joined Jan 2009
Total Posts : 33
   Posted 1/21/2009 6:00 PM (GMT -6)   
thank you... i will look into these!!

i am guessing the desitin the surgeon said i might need... is not for this pro blem.... desitin is more for if you develop a rash...... not sure why she would of thought you;d need a rash medicine more than a hiney cream - do they know how many times we go to the bathroom...

i bought the desitin... but doesnt say on the tube thats what its use is for
  • 45 years old
  • Had total colectomy 12/30/2008 for colonic inertia
  • severe gastroparesis
 
 
 


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/21/2009 6:51 PM (GMT -6)   
I have an ileostomy, so I can't help you. BUT, I would try the desitin until you get something better. It can't hurt, right? Anything to calm the area down is a benefit. Years ago, before ileo, I got a RX for something that had lidocaine in it. Helped numb the area, but still very sore.

Best of luck to you. Let us know what you end up trying and what works.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


finallyfree
Regular Member


Date Joined Aug 2008
Total Posts : 470
   Posted 1/21/2009 10:02 PM (GMT -6)   

Hi tcr1130,

I know exactly how you feel, that's why since my surgery in July I've resorted to only using Preparation H wipes...never toilet paper...and always finish with A&D...I thought the ointment that they gave me in the hospital was the best but it didn't do the job so I have found that good old A&D works the best...not creme but ointment...even though I'm down to 3-8 bms a day I still continue with this routine because everytime I try to go back to toilet paper...I get VERY irritated...such is my new life...but it's SUCH a BETTER life:)

Hope this helps,

Judy

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