Possibly dumb question: Coffee

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Lentil Lover
New Member


Date Joined Jan 2009
Total Posts : 2
   Posted 1/23/2009 12:11 PM (GMT -6)   
Hello everyone, I'm new and just to give you a quick history about myself: I had an ileostomy back in December and my entire colon was removed during an emergency surgery. I was first diagnosed with UC back in November and then it was changed to Crohn's colitis after my ileostomy by my old Doctor. I am currently seeing a new Doctor (who is great and has CD) and he diagnosed me with UC again, but my ASCA test came back high and he said that's a sign of CD but didn't change my diagnoses of UC. So I'm kind of in a IBD limbo right now, lol!

Okay I'll get to the point of the post, lol! Is it safe for me to drink coffee? I know there has been studies of coffee causing flare ups in CD and seeing that if I do possibly have CD I don't want it to show up anywhere else in my body! My inflammation issues have only been in my colon and I don't want them anywhere else!!!! Do any of you still drink coffee with an ileostomy and CD and not have any issues?

Thanks ahead of time...

Pibbin
Regular Member


Date Joined Apr 2008
Total Posts : 163
   Posted 1/23/2009 3:10 PM (GMT -6)   
I have an indeterminate Crohn's/Colitis diagnosis too, with no history of disease outside my colon. With my ileostomy I have had no problem drinking coffee (I limit it to 1-2 cups daily). I was completely unable to tolerate it with my funky colon. Everyone is different, of course, but you may want to try a small amount and see. A substitute to coffee that I could manage with my UC was a strong English Breakfast tea with a splash of vanilla soy milk, if you need to feel that you are drinking a substantive warm caffeinated beverage, but want to avoid coffee.
Dx Mild Proctitis 7/06 at age 33, Dx Severe Pan Colitis 5/07, Dx Crohn's Colitis 10/07
Failed Asacol, Lialda, 6-MP, Canasa, Rowasa, Proctofoam, Entocort, Remicade, Humira
10/10/08 colon removed, temporary ileostomy
11/10/08 FINALLY off prednisone after 18 months
2nd of 3 surgeries planned for '09 to form j-pouch


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 1/23/2009 6:01 PM (GMT -6)   
I couldn't tolerate coffee before when I had active Crohn's, but I'm able to drink it now.

Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 1/23/2009 7:32 PM (GMT -6)   
I would NEVER have touched it before surgery! I am a coffee "snob" now and drink a couple cups a day. I know my transit time may speed up (mostly when I drink a yummy Latte) but for the most part I haven't had any adverse effects.

On a side note...I just bought one of those single cup makers with the funky "cups" and LOVE IT!!!

LittleE
Regular Member


Date Joined Mar 2008
Total Posts : 137
   Posted 1/24/2009 8:56 AM (GMT -6)   
Now that I don't have a colon, I Love to have a cup of coffee in the morning in my favorite mug! Causes me no problems at all--though if I drink more than a cup or two, I do notice feeling a bit more dehydrated.

:)

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5692
   Posted 1/24/2009 9:21 AM (GMT -6)   

Can't function without my morning coffee; I drink about 2.5 cups.  It doesn't cause me any problems.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/24/2009 11:25 AM (GMT -6)   
Coffee, even decaf, does "speed" things up for me in the mornings. I try to counter balance it by eating a banana, when I have them on hand. I drink a homemade decaf latte every morning with as much milk and cream as there is really strong coffee in my favorite insulated mug. That way, I can argue that it DOES have some benefits since it has so much milk (calcium, vit D) in it!!! I really do limit my coffee to only in the mornings and hot herbal tea if I want something Hot any other time of the day. There are so many different herbal teas to try... I know I have probably 8 or 10 diff ones in my cupboard.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Lentil Lover
New Member


Date Joined Jan 2009
Total Posts : 2
   Posted 1/24/2009 12:39 PM (GMT -6)   
Wow, you guys are awesome, thanks for all the great replies! I am so neurotic and you help put my mind to ease, thank you all. :) I've been drinking about 2-3 cups for the past month (like Peggy, VERY milky, lol) and just wanted to make sure I wasn't going to cause any unwanted effects if I do end up having CD.


I have one more question regarding food, do you guys stay away from the food that caused flares for you in the past with CD now that you have your ostomies?

Sorry for all the questions, I'm new to this! ;)

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/24/2009 2:53 PM (GMT -6)   

NO!   There is no need to stay away from stuff that caused problems in the past -- no disease .. no problem!!  But you will find that your digestive tract may handle foods differently now.  I have to watch roughage... like raw fruits and veggies.  Skins, peels, nuts and seeds.  I still eat them, but very moderately.  And drink LOTS of fluids.  I've challenged my body over the years and I have learned.  Some people have no problems with anything, so do.  Some will go thru you more quickly than others, but there is no pain involved even  if it goes thru quickly!!

I'm sure that you will get lots of answers or comments on that question.


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 1/24/2009 5:34 PM (GMT -6)   

I was on a VERY bland diet before surgery...if it wasn't white and processed, I couldn't tolerate it.  I have been able to eat anything/everything since getting through the 6 weeks post-op.  Like Peggy said, it is an idividual thing, so it is best to try things slowly and in moderation.  When in doubt, chew really well...I think Peggy said on another thread, if you eat something that you think might be an issue, don't eat it alone and drink fluids (ex:  salad in the middle of the meal).

Don't appologize for the questions!  There are no silly ones:)

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