Things are looking up!

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2 RIS K
Regular Member


Date Joined Aug 2008
Total Posts : 367
   Posted 1/27/2009 2:57 PM (GMT -6)   
Ok, so once a gain it's been a little while since I posted. I hate it when I do that, it makes me feel like I'm letting you guys down.  You know what though?  I had a really bad week last week and I have no idea why.  You know I had just gotten out of the hospital with the JP drain and I thought I was doing better, but by Tuesday I was miserable.  I had absolutely no appetite, even thinking about eating made me feel sick.  I wasn't drinking enough so I started to get dehydrated because I was going to the bathroom about 15-20 times a day and my butt was SO SORE!!  I found some great stuff for it though! Let me know if you need something! Anyway, I was so weak from not eating or drinking that I could hardly walk or even stand up for that matter by like Thursday.  I was so amazed at how quickly our bodies can take that turn for the worst. 
 
Then I had my CT scan scheduled for Friday to see about removing the drain.  Turns it's not leaking anymore (we knew that from the week before when they clamped it off) but there is still some "communication" between the drain and the "pocket." So my dr said it's a slight risk but she decided it would be best to go ahead and take the drain out and let it heal and close up.  She said this week would be critical and that if I make it through this week then I'm home free!  I can't beleive it!  She said I get better this week and I don't get a fever or lots of throwing up and diahrrea, etc. like when I had the leak then we can be sure it's healed, but if I get sick like that and the tissue doesn't heal and she has to go back in and do surgery then I'll be back on the "bag" probably permanently. 
 
The good news is I am doing SO much better this week!!!  It is unbelievable!  It has been so nice to be free of anything hanging off my body, I haven't had that in a long time.  No more drains, bags, IV poles; Nothing!! It felt really good to shower for the first time with nothing on my body but my body.  I felt like I was missing or forgetting something!
 
I feel so good I have to be careful not to over do it so that I don't do damage to the tissue.  I'm eating and drinking a lot better, I've gone on walks; I just feel great! I have noticed that there is a big change in my bm's since they removed the JP drain on Friday.  I went from 15-20 times a day to now I only go 2-3 times a day.  That's good for me, but does that mean something's wrong?  I know it's supposed to slow down eventually, but this  coincided right with the removal of the drain.  Any ideas?  I'll have to ask the doc next Tuesday when I go for a follow up. 
 
Well, that's what's going on with me.  Now I get to read and catch up on all my friends, I sure hope you all are doing great. I've missed you.
 
Love & Hugs!
Amanda
35 years old
Chronic Lifetime Constipation
Diagnosed IBS - 1995
Rectal Prolapse - February 2007
Rectosigmoid Colectomy w/low anterior Anastomosis - 3/13/07
Diagnosed with Colonic Inertia - June 08
Total Colectomy - September 22, 2008
Take Down Surgery Scheduled - December 15, 2008
 
The whole world is at your feet; so paint your toenails Red!
 


Miss UK
Regular Member


Date Joined Oct 2007
Total Posts : 128
   Posted 1/27/2009 3:23 PM (GMT -6)   
That is fantastic news things are really looking up for you at long last.  I really do hope this is the beginning of a full recovery for you! :-)
36 year old single mum to a 2.5 year old son
Suspected Crohns when 10 years ago had a very painful rectal abscess
Diagnosed with Crohns desease properly 6 years ago
2008 developed fistula bowel perforated onto bladder resulting in temporary ileostomy
hopefully a reversal around March 2009.


Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 1/27/2009 11:16 PM (GMT -6)   
So glad you're doing well 2RiskK! I can't believe you're going only 2-3 times a day. What I've read is avg. 7 times a day. So 2-3 sound great. That's less than I empty my bag.
I had drains in my abdomen after emergency surgery. I kept complaining about "menstrual" type cramps and pain in my bladder every time I had to pee even a little. I didn't have a uti, so they didn't know what was causing it, all they could offer was, "probably normal recovery from infection pains." When they removed the drains, I felt that cramping full force and the drain coming off of my bladder as it was pulled out. And then the pain stopped! My point is, maybe the drains were irritating your intestine b/c of where they were laying and "stimulating" it? Then when they were pulled, your gut wasn't being bothered by it anymore.
Just an idea.
The thought of a bag free or poop not running down my leg shower is the only reason I still have a rectal stump. I'm glad you're keeping us posted. Good and Bad, b/c I still haven't made up my mind about a reversal yet. I went through so many complications for just a colectomy that my hubby doesn't even want me to think about a reversal and I tend to lean that way. But after hearing what YOU went through, and you are still happy with your decision, Makes me even more unsure. Please keep us updated.

Chassity
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 1/29/08 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
pred. taper, zofran, immodium, lovonox, coumadin, carafate, prenatal vit., and pain meds
(ileostomy temporary....not so sure?)

"Things turn out the best for those who make the best of the way things turn out."


2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 1/28/2009 5:26 AM (GMT -6)   

HEY AMANDA!

soo so pleased to hear some positive news from you.  i just posted to you on total colectomy site so ignore it.  that is really encouraging for me to hear.

i wouldnt worry about the output - if you feel well and no pain etc then continue as you are.  apparently we are all different with output after surgery - i am so excited for you.

x


Karen 46 yrs
1997: Diagnosed IBS
2003: Pelvic floor repair surgery (rectocele/cystocele)
2006: STARR surgery for mucosal prolapse/Obstruction
2006: Diagnosed with slow transit constipation
2007: Sigmoid resection because of partial volvulus resulting in immediate colonic inertia
 
15 JANUARY 2009: scheduled for T/C
 
12 FEBRUARY 2009 - Re-scheduled T/C
 


finallyfree
Regular Member


Date Joined Aug 2008
Total Posts : 470
   Posted 1/28/2009 5:40 AM (GMT -6)   

Amanda,

It finally sounds like things are going well smilewinkgrin !  I'm so happy for you; you've been in my prayers and will continue to be!!!!  Ask about your bms, my gi wants mine down to 2-3 a day but they are still at 3-8 so I think everyone varies and it really depends on what our body tolerates.  I have continued on the low residue/fiber diet and I do know that any emotional issues play a huge roll in the output.  It's crazy ow our body reacts to everything, but we are SURVIVORS and we do overcome all that is given to us wink .  I'm just soooooo glad to be hearing good things from you:)

I'll probably be on and off this site a lot today, we have a snow day smilewinkgrin , gotta love being a teacher :) anyway, I can finally catch up on some of the many posts I missed while my computer was being fixed; although I do have report cards to do and requisitions (ordering supplies for next year) are due by Monday. But.....can't wait to read how everyone has been and to meet and welcome some new friends:)

Have a great day!

Blessings, peace and prayers,

Judy


2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 1/28/2009 6:23 AM (GMT -6)   
i've just noticed this thread.. what you're saying sounds really encouraging. sounds like you're on the right road to full recovery....... i'm soooooooooooooooooo happy!!!!! :o)

let's keep praying it continue to get only better!!!

love ya and very happy for ya!!
Hodaya
 
06/05/2007 - STARR procedure 
colonic inertia w/ pelvic floor dysfunction


XtremeMisery
Veteran Member


Date Joined Sep 2007
Total Posts : 687
   Posted 1/28/2009 7:28 AM (GMT -6)   

SOOOOOOOOOOOOOOOOOOOOOOOO happy for you. I will tell you that after my drain removal 9before I was going 18-20) as well and I am not sure where the connection is whether its antibiotic related or drain related, but i dropeed off after my second drain was removed as well. Plus, the mor eyou incorporate more solid foods into your diet the less you will be going. I think 2-3 is great....I would give anything for that.

Hope you continue to heal and feel more like yourself. I remember that first shower unattached. I always clipped my two drains to a tank becuase they were so heavy and then after would do my drg change and flsuh the drains twice a day and it was nice to not have to do that.

Keep up the fluids...you do not want to be back in for dehydration.....and take it slow. I felt a drastic improvement after my drain removal and I think I even went out with some friends that following weekend when I knew I had not had the fevers for 1 week!!!! I hope you continue to be fever free and that you continue to heal!!!

lizzie

 


2 RIS K
Regular Member


Date Joined Aug 2008
Total Posts : 367
   Posted 1/28/2009 11:53 AM (GMT -6)   
You all are SOOOOOOOOOOOOOOOOOOOO sweet!

OMG! OK I have to tell you something funny. Last week when I was at the doctor's office I was asking her what I could eat, etc. and one of the things I asked about was lasagne and she said, NO, definitely not lasagne, not yet. She said it was too spicy. Well, last night my husband had to work late and I needed to make something for dinner. I looked in the freezer and there was a frozen lasagne dinner in there. I guess DH bought it when I was in the hospital. Anyway, I cooked that and I ate a little piece because I couldn't think of anything else I wanted to eat. OMG! Do I have diahrrea today!!!! I guess I she was right about that one. It is horrible!! I have been running to the bathroom since the minute I opened my eyes! LOL!! Maybe I'll listen to her next time; I think she knows what she's talking about!
Amanda
35 years old
Chronic Lifetime Constipation
Diagnosed IBS - 1995
Rectal Prolapse - February 2007
Rectosigmoid Colectomy w/low anterior Anastomosis - March 13, 2007
Diagnosed with Colonic Inertia - June 08
Total Colectomy - September 22, 2008
Temporary Ileostomy due to small bowell perforation Septepmber 29, 2008
Ileostomy Reversal - December 15, 2008
Multiple Small Bowel Abscesses-December 22, 2008
Leak at original Anastamosis -December 25, 2008
JP Drain removed - January 23, 2009
 
The whole world is at your feet; so paint your toenails Red!
 


2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 1/28/2009 1:47 PM (GMT -6)   
Amanda......... you naughty... well, i hope you've learned your leason LOL!!
i hope the diarrhea calms down soon.
take care of your self now, and stay out of trouble!! (lol)
Hodaya
 
06/05/2007 - STARR procedure 
colonic inertia w/ pelvic floor dysfunction


psygirl6
Regular Member


Date Joined Aug 2008
Total Posts : 268
   Posted 1/28/2009 5:27 PM (GMT -6)   
hi 2 ris k (Amanda),

I am so very happy that you are doing well.that is great that the BM's are now down to 2-3 a day. that is amazing. Going for walks is a great way to move around. I am so glad that you are enjoying walks. i love walks myself and I can not wait til spring because I have enough energy now to go on long walks again. Too bad about the lasanga, but don't worry, you are just learning about how foods are going to work and not work, but still it is a little early for you to know if your intolerant or not. If anything maybe because it was the spicyness that caused the diarrhea, and not the actual lasagna. Trust me spicy food gives my diarrhea too, and a burning butt as well. You must feel like you are on air without those things on and I am soo glad that you are now free. Freedom is great. Well, I hope all is going well and I am glad that everything continues to go well. Keep up the good work.

Maya
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