Ok, so once a gain it's been a little while since I posted. I hate it when I do that, it makes me feel like I'm letting you guys down. You know what though? I had a really bad week last week and I have no idea why. You know I had just gotten out of the hospital with the JP drain and I thought I was doing better, but by Tuesday I was miserable. I had absolutely no appetite, even thinking about eating made me feel sick. I wasn't drinking enough so I started to get dehydrated because I was going to the bathroom about 15-20 times a day and my butt was SO SORE!! I found some great stuff for it though! Let me know if you need something! Anyway, I was so weak from not eating or drinking that I could hardly walk or even stand up for that matter by like Thursday. I was so amazed at how quickly our bodies can take that turn for the worst.
Then I had my CT scan scheduled for Friday to see about removing the drain. Turns it's not leaking anymore (we knew that from the week before when they clamped it off) but there is still some "communication" between the drain and the "pocket." So my dr said it's a slight risk but she decided it would be best to go ahead and take the drain out and let it heal and close up. She said this week would be critical and that if I make it through this week then I'm home free! I can't beleive it! She said I get better this week and I don't get a fever or lots of throwing up and diahrrea, etc. like when I had the leak then we can be sure it's healed, but if I get sick like that and the tissue doesn't heal and she has to go back in and do surgery then I'll be back on the "bag" probably permanently.
The good news is I am doing SO much better this week!!! It is unbelievable! It has been so nice to be free of anything hanging off my body, I haven't had that in a long time. No more drains, bags, IV poles; Nothing!! It felt really good to shower for the first time with nothing on my body but my body. I felt like I was missing or forgetting something!
I feel so good I have to be careful not to over do it so that I don't do damage to the tissue. I'm eating and drinking a lot better, I've gone on walks; I just feel great! I have noticed that there is a big change in my bm's since they removed the JP drain on Friday. I went from 15-20 times a day to now I only go 2-3 times a day. That's good for me, but does that mean something's wrong? I know it's supposed to slow down eventually, but this coincided right with the removal of the drain. Any ideas? I'll have to ask the doc next Tuesday when I go for a follow up.
Well, that's what's going on with me. Now I get to read and catch up on all my friends, I sure hope you all are doing great. I've missed you.
Love & Hugs!
35 years old
Chronic Lifetime Constipation
Diagnosed IBS - 1995
Rectal Prolapse - February 2007
Rectosigmoid Colectomy w/low anterior Anastomosis - 3/13/07
Diagnosed with Colonic Inertia - June 08
Total Colectomy - September 22, 2008
Take Down Surgery Scheduled - December 15, 2008
The whole world is at your feet; so paint your toenails Red!