surgery date set; Qs about post op foods/supplies

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tkctwbd
Regular Member


Date Joined Dec 2007
Total Posts : 82
   Posted 1/29/2009 10:34 AM (GMT -6)   
Surgery set for Mar 2. I need to do great planning because I will not be able to get out of house until MD says I can drive. So I need advice on food and supplies that I might need for one month or better. I live out in country and cannot depend on others except in emergency.

What I am planning is to eat cherrios/milk every morning, orange juice for fluids and potassium, and TV dinners at night, and lots of peanut butter (the kind with out nuts and trans fatty acids).

I understand that protein is good for healing, and that too much water will deplete electrolytes ( that's why the orange juice).

Also, I plan to ask MD for enough meds to last until I can drive.

Also, will the home health nurse supply me with my bag needs until I can get to town? If not how do I know before surgery what I will need regarding all supplies?

BTW, I have decided to get a permanent bag, not j pouch, b/o my age and not wanting another surgery.

Any advice/suggestions on food and supplies is appreciated. ie what was your experience. I realize everyone is different.

Thanks

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 1/29/2009 11:44 AM (GMT -6)   
Will there be someone to help around the house? Get a little pillow that you can prop on your tummy for sneezes/coughs.

One thing I always notice is that I get unbelievable cravings as soon as I can eat...so maybe plan a few salty/sweet items that you'd have on hand in case that happens. I'd have some broth based soups, too. Potato Buds are an easy output thickener and soft for post op. Sweetened drinks are best if you cut them with water...the sugar in them can usually increase output.

As far as your supplies go, your stoma will be changing a little during the first month or so, so you don't want to stock up on too many items...Have your stoma nurse call the supply company you'll be using...they can usually call the order in and it will be mailed directly to you. They'll send you home with a few changes, tho. If you need anything special in regards to medical supplies they can order those too.

I am sure there will be others coming along...we've all got our little ways:)

LesaJT
Regular Member


Date Joined Nov 2008
Total Posts : 86
   Posted 1/29/2009 1:08 PM (GMT -6)   

Afew suggestions...

Flatten any carbinated drinks..the bubbles are not good.

Byrum health care is good for ordering supplies and low cost. they come to the house. You can see their onloine catalogue and clal in orders. you can seartch for them and get their 800 number. It took me time and trials to find out what worked for me. they willsend you free samples i.e. from Hollister or Convetec. Call thos ecompanys and ask them  to send a couple items to try.

Change you system in the morning after it has slowed down ovee the evening. We changed it every 2-4 days. we bought the heavy  dutie items for long lasting.   

I had to drink  alot all day. The ileostoy made me dehydrated. I was thirsty all the time. The first couple of weeks I did not fell like eating. get some protein powder to mix with juice. eat meat every day if yoiu can.

Take vitamins, and magnesium, B complex.

put a heave blanket or plastic lines on the bed and or couch incaes of leaks it will save the matteress.

get plenty of gloves. I sued about  20-50 a day. I empied my pouch at least 10 times per day and changed it often.

I loved the velcrow closures on the hollister bags.

This is all I can think of for now. Leet me know if yoiu have questions. I just got mine reversed 10 days ago.

Lesa

 


summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 1/29/2009 2:17 PM (GMT -6)   
Lesa-did they tell you to use gloves, or was that just your choice?

I dont use gloves that was why i was asking.

tkctwbd-you might wanna stay away from the peanut butter, at least for now! the last thing you want is salmonella on top of a new ileo!
anyway you may want to get a lot of different things to eat, some things will give you gas at first, and you will need to have different things to try.
I drank a ton of fruit punch at first, and ate cheese ravoli, i dont know why but that was all i could stand to eat.
also crackers and potatoes and bread are good to thicken and slow your output.
Buy some gas-x and keep it on hand, you may want to use it gas can be awful at first!
You might want a heating pad, your back will probaby hurt, and that will be helpful.
Supplies are ordered off the internet through a company, i use edgepark,, it depends on your insurace though. Your stoma will change, like they said, i get the kind that you have to cut yoursefl so it didnt really matter to me. Some people choose to get ones that come cut for their stoma size but dont do that at first.
You may want some ziploc bags for disposing of the used stuff. get some clorox wipes or alcohol wipes (i use those, much cheaper and it still kills the germs!) because you are most likely gonna make a mess the frist couple of times you empty your bag, dont worry you will get better at that. Well probably, i still get some on the seat sometimes, lol.
Hmmm i am trying to think of other things that can help, maybe some good movies to watch, if you have a video game console get some new games, ooo get rock band! rock band solves all problems!
no really, something like that would be good

Chasblah
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Date Joined Feb 2007
Total Posts : 788
   Posted 1/29/2009 2:35 PM (GMT -6)   
Ditto on the stuff to keep you occupied. Easy stuff, like movies and books, b/c you'll need to take it easy for at least a few days.
I drank lots of ensure and V8 juice. Both are so good for you. I really recommend Ensure b/c it's like a vitamin and filling. Mac and cheese is easy and good. Pudding. Canned soups. Eggs are a good breakfast-high protein and soft.
Be careful of drinking too much juice, b/c it can race right through you and cause higher output (I discovered that recently!).
I had to use gloves at first when I emptied or changed things b/c I was grossed out to do it without. I got over it, but it's something to think about having on hand just in case.
The hospital set me up with a few bag at first. Then the home health ET nurse ordered me my first shipment until i set something up with Edgepark. I would call your insurance company and ask where they want you to buy.
Call and get samples! I'm still living on mine.

I bet you'll feel better quicker than you think and that you'll want to eat more and do lots more stuff sooner than you think!
I bet you'll love your new little red friend! and its plastic appendage!
Keep us posted.

Chassity
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 1/29/08 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
pred. taper, zofran, immodium, lovonox, coumadin, carafate, prenatal vit., and pain meds
(ileostomy temporary....not so sure?)

"Things turn out the best for those who make the best of the way things turn out."


LesaJT
Regular Member


Date Joined Nov 2008
Total Posts : 86
   Posted 1/29/2009 2:38 PM (GMT -6)   
I used glaves because I had so many infections and I felt cleaner when empyting the bag into the toilet. I also used the baby wipes to clean the end of the bag but they could not be flushed. just the system that work best for me.
 
Also, might want to get lots of blue gatorade. I drank several of those a day. Besr taste for me.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 1/29/2009 6:13 PM (GMT -6)   
the blue gatorade comment made me think of something, if you eat something red, it's gonna come out RED, like really red, and you are not bleeding to death, lol. I freaked out the first time.

Lesa-that makes sense about the gloves.

LesaJT
Regular Member


Date Joined Nov 2008
Total Posts : 86
   Posted 1/29/2009 6:55 PM (GMT -6)   
I got freaked out the other day. I eat beets. Wow a hour or so later i was freaking out when all this red came out.  I had to laugh when I realised it was not blod but beets! Ha!

tkctwbd
Regular Member


Date Joined Dec 2007
Total Posts : 82
   Posted 1/30/2009 12:59 PM (GMT -6)   
Thanks everyone. I'm making a list as fast as I can. I like to be prepared.

Yes, I have a dear husband who will be a very big help. He just cannot drive because of forgetfulness. We manage.

And yes, Chassity, I think I will do fine too. This is another challenge for me in life; and much much much better than the suffering I've had from UC. I have already told my family who love to tease, to call me "the bag lady" We get a big laugh out of that.

I love real orange juice. Do you think the acid will hurt?

I like idea of protein powder and Ensure....so simple, and easy to store. During the worse of my UC days (I had c diff and didn't know it), I was on baby formula. I needed the nourishment

Great idea about flattening carb drinks; and the gloves.

I'm afraid of sugar and high fructose corn syrup because it can cause blow out diarrhea for me. That might change with no colon. Many things I will learn.

Will I be able to sit at my desk top computer for entertainment? I sure hope so. I live at computer now because I am so weak. Also, no TV in bedroom, so I will need to sit up for that. Should I prepare to lie down on sofa to watch TV? I do look forward to feeling well!!!!

The nurse at wound center marked the spot for my stoma. And she put an adhesive over it to protect it from bathing. She showed me several types of bags: the first I have ever seen. I too was impressed with the hollister velcro bag. Made sense to me. Today I plan to google ostomy supplies and see what comes up. You think it too early to order freebies? I would hate to order a freebie that I don't need.

Why would a person choose a one piece vs a two piece bag? I guess I will learn that too.

Thks everyone for hints and advice. I'm sure I will have more questions as I get closer to surgery. I think I will really be scared as I get closer to Mar 2. Surgeon is doing my surgery at 1 pm. Hope he is alert at that time of day! People get sleepy after lunch...oh the things I worry about!
Sarah
Oh one more thing. Since I will no longer have colon or rectum, will I need to have f/u for cancer in anus area? I am so glad - NO MORE colonoscopy preps!

tkctwbd
Regular Member


Date Joined Dec 2007
Total Posts : 82
   Posted 1/30/2009 1:22 PM (GMT -6)   
I just googled ostomy supplies and found this: ActiveLife One-Piece Cut-to-Fit Closed-End Pouch with Skin Barrier and 1-sided comfort panel, Opaque, 19-50mm for ninety eight dollars!!!!!!!!! How can anyone afford these things??

Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 1/30/2009 1:38 PM (GMT -6)   
I was more comfortable sitting up than lying down. So if you have to sit in a chair for the computer or a couch for the TV, you should be able to.
 
I drink OJ better now than I did with u/c. It used to give me diarrhea bad! But now, it just increases output. No pain for me. So you can't drink it only. But for breakfast should be fine.
 
I use the Hollister lock n' roll one-piece! Love it better than the clips. And you can get big or small bags. I think the one-piece hides under clothes better and I can feel it less.
 
Chassity
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 1/29/08 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
pred. taper, zofran, immodium, lovonox, coumadin, carafate, prenatal vit., and pain meds
(ileostomy temporary....not so sure?)

"Things turn out the best for those who make the best of the way things turn out."


LesaJT
Regular Member


Date Joined Nov 2008
Total Posts : 86
   Posted 1/30/2009 2:13 PM (GMT -6)   
Your age might determine how well you heal as well as your health. Here's some more thoughts. I have lots of supplies I don't need if you want them. I am glad I Had insurance. It cost about 58.00 for the wafers for 5 of them.One might go through 5 in a couple of weeks. I like the two peice. I never used the one peice. Notsure why anyone would. With the two peice you can change the bag only if it gets ucky or leaks. I had a couple pf bags leak/split. My nice husband put a trapez over my bed. He went to Home Depot and bought a childs swing set trapez and screwed it into the ceiling. I love it. I had very little gas with the bag and wafer. I used the bags with the filter It helped with filtering the gas and odor. Hollister has a nurse that can and will call and answer any questions and send you a CD on how to use and change. I also went on youtube and searched for ostomy and or ileostomy and I found three people who were changing their bags and watched them. I never did learn how to change my own. My husband is a nurse and he did it for me for 4 months while I had my ostomy. The heavy duty bags can last for 4-7 days. so they are worth it. Some people buy the cheaper ones and change everyday.   

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 1/30/2009 4:04 PM (GMT -6)   
since you are having your bottom sewed up its gonna be kind of hard to be comfy in any postion. sitting wont be easy you will have to kind of sit on your tail bone instead of your butt. You will get the hang of it though, lol.

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 1/31/2009 7:34 AM (GMT -6)   
Don't request any supplies until you've had your surgery...one is never sure the stoma they will get!!! Once your nurse checks it out and you swelling has gone down...order some from EVERY company! Go to UOAA.org (united ostomy assoc of america) and go to their Ostomy button...scroll to the bottom and all the major companies are listed with phone # and web address...couldn't be simpler:) I'm a two piece person, easier to see hole to apply and the ability to change the pouch only.

I didn't have a problem with my bottom and sitting so you'll have to see what you can tolerate.

PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 2/5/2009 4:38 AM (GMT -6)   
Hi I had the J pouch in Nov 2005. I suggest that during your first stage ileostomy have lots of high protein diets. Since juices run through easily, you should have lot of chochlates. I used to have 500 gms everyday to give me enough calories. You can have rich soups, jaggery, high protein biscuits, etc. As you tend to get dehydrated, please keep a track of your intake and ouput. Your liquid intake should atleast be 2 litres per day, this inlcudes juices, soups, milk, aerated drinks. Have dairy milk choclates. Instead of chewing them, please keep them in your mouth to let them melt. This would give you strength and would prevent it from flowing straight to pouch. I had lost 30 Kgs during my surgery and could immediately gain 9 kgs post op in one week with above diet. I was totally on liquid diet to avoid blockages. So have a good time. Take care and all the best and speedy recovery.

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 2/5/2009 9:51 AM (GMT -6)   
I know Ensure is the best thing as far as nutrition and all, but I just don't care for the taste of it. My substitution for it is carnation istant breakfast drink with whole milk. Lots of vitamins, easier to store and lots of calories -- good for you. I drank it with my meals for a while. AND, it does make really good hot chocolate. If you put it in a place container and pop it in the freezer for a little bit, then shake it up, almost like a milkshake. Sorry, rambling.

One thing that I wanted to be sure to mention was that to help you from dehydrating post surgery, increasing your sodium intake is beneficial, esp. if you are having some high output. But keep in mind, only do this if you don't have other health issues it might interfere with-check with your doctor.

Some of the items I always keep on hand in my pantry (long keeping, easy to make and cheap) are mac and cheese, rice a roni, chicken/hamburger helper, those seasoned noodles in pouches like butter/parsley, alfredo, parmesan (do you know what I mean?); corn muffin mixes, ramen noodles, all kinds of pastas. Lots of canned items you can try, even canned fruit like peaches --- just chew very well, eat small portions to start with maybe for dessert after you've eaten other easy-to-digest foods. You will be surprised at how good food will taste when it no longer causes you Pain!! And yes, I wanted everything, so try to have some things on hand that you can't eat right now that you really like. I think you'll be surprised!

Drink lots of fluids. You might want to have some electrolyte replacement drinks on hand. I cut them with water... not as sugary and they last longer (cheaper). One of the drinks that I have been hooked on for a couple of years is Black Cherry/Cranberry Juice. I buy it at Walmart but it is Sam's Choice brand on the shelf by the gallon jug. Yes, it has sugar in it and is way toooo sweet for me BUT I cut it with water (2/3 water, 1/3 juice). I just use water bottles. TASTEEEE! And you don't have to worry about excess sugar, it has some nutritional value, and it isn't too expensive when adding the water. I just love it. Yeh, it is red in color but for some reason, it does NOT turn my output red at all. Now, red jello will. Jellos and pudding are good to have on hand btw. Just thought of something else - watch drinking any grape or apple juices. For me, they increase my output.

Gosh.... I'm really rambling on here. I'll let some others post on this one.....


I'm sure that we all will keep adding to this post.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 2/5/2009 3:53 PM (GMT -6)   
random on the carnation stuff when my dad was born, my grandma couldnt breastfeed to she had to use that carnation instant powder (not the choclotate kind) for formula, that's what the dr told her, so it must be prtty good for you,lol.

Pudding is good to have, cause it is more filling than jello and still easy to eat and digest. Fudge bars, the frozen kind are something that is good to have around too.
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