Having lots of pain....Again

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Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 1/29/2009 10:10 PM (GMT -6)   
I know I'm starting to sound like a broken record-having something wrong again. I'm just wanting your opinions about what this pain could be.

FYI-My ileostomy is on my left side.

I have a SHARP INTENSE THROBBING pain that comes and goes along my left side, below my stoma. My stoma doesn't hurt and around my stoma is fine, it's almost like in a line slightly to the left (my left) and down about 4-5 in. It hurts when I walk, laugh, really at any time that I'm not sitting down.

Also, my stoma seems to be protruding a bit more than usual. It's minimal, maybe a cm or so. My husband can barely tell, but since I look at it CONSTANTLY, I can tell. Should I be concerned. Could my symptoms be related?

Yes I have been over-doing it, meaning lifting my daughter too much (it's so hard not to when she's crying and looking at me with those pleading baby eyes, breaks my heart to say no). and I've been doing lots of house work-laundry, dishes, vacuuming, mopping, garbage- things my DH yells at me for doing- but between you and me, it wouldn't get done if I didn't do it!)

I'm getting another CT scan on Mon., and hopefully that will be definitive, but until then, I'll obsess over it. Plus, it hurts.
Thanks for any help.
Chassity
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 1/29/08 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
pred. taper, zofran, immodium, lovonox, coumadin, carafate, prenatal vit., and pain meds
(ileostomy temporary....not so sure?)

"Things turn out the best for those who make the best of the way things turn out."


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/30/2009 8:18 AM (GMT -6)   
I think you probably over did it and your belly is telling you about it. DON'T overdo it. Please. You are only setting yourself up for a longer recovery. Best of luck to you. Please take it easy.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 1/30/2009 8:55 AM (GMT -6)   
Chassity! You remember what it's like after childbirth...you MUST take care of yourself or the healing process takes FOREVER! I learned my lesson with my c-section, so I will definitely be easy on myself post-surgery. I am so sorry you're having such a difficult time. Why is your stoma on the left? Just curious.

I know how you feeling regarding getting everything done. I am the same exact way. Lately I just haven't been able to get it all done, and it's driving me UP THE WALL!!! Though I'm not well today, at least I'll be home and able to run to my own bathroom between chores and projects. My husband is home today so he can help with our son and some chores himself. Which, I have to brag on him a bit b/c he is absolutely wonderful at helping with things when I ask. In fact, at this very moment they are sitting together in his recliner and it's almost as though Jackson knows Mommy is going to be down and out for awhile b/c he's going to Jeff for his needs. I'm a little sad about this, but I know it's best for Jackson and his adjustments. I know he senses something is changing.

Anyway...I hope you start taking it easy on yourself and instead of picking up Elliott you can sit with her or have her hang out with you on the sofa or bed. I know you've already done all these things since your post-surgery, but it's all fresh in my mind b/c we're starting to do it now...especially since my UC is being mean.

I hope you have a great day...and TAKE CARE!!!

: ) Robin
Dx-May 2007  Asacol-2400mg bid  Prednisone-20mg  Remicade-5 Tx
Paxil-40mg  Prilosec-bid  Multivitamin  Moderate/Severe Pancolitis
28 year old Mommy of a 1 year old and a Wife for almost 2 years!
Life has never been so sweet!  I appreciate the small things in life...the little joys that occur every second of every day.  Though we struggle and have crazy complications, nothing can over ride our love and happiness.
Surgery is scheduled for February 6th!!!  : )   Yea!!!!!!!!!!


finallyfree
Regular Member


Date Joined Aug 2008
Total Posts : 470
   Posted 1/30/2009 4:59 PM (GMT -6)   

Chassity,

I don't want to ride you...but are you kidding me...doing housework, vaccuuming, mopping, etc...you SHOULDN'T be doing any of that stuff.  This surgery has one of the biggest chances for hernias.  Seriously, I ironed, vaccuumed, etc and cleaned after my shoulder surgery which froze...but with this surgery I didn't take ANY chances for anything to go wrong...I hired someone to clean my house...and yes I have 2 older daughters...19 & 21...but they work and go to college...and my husband helps too but things just need to get done or he knew I'd try to do them myself...so we hired someone to come in...I seriously just started lifting heavy things last month and my surgery was in July...I've been doing my own cleaning now since about the 4th month after surgery...but I've had NO complicationsand this is the first surgery that I have never not had complications...It takes up to a year for your body to heal...don't mess up the inside with adhesions and scar tissue from doing too much too soon...

Sorry for the preaching but I don't want you to hurt yourself...I've had such a positive experience from this surgery that I want everyone else to also with as little trouble as possible :)

Rest and take it easy

Judy

 

.
 
______________________________________________________________
Judy
 
spleen/appendix/gall bladder  removed/endometriosis/complete hysterectomy at 29/sinus surgery/numerous allergies & asthma/ pancreatitis 3x's/2 knee surgeries-now need replacement/shoulder surgery w/ pins-which also froze following surgery/severe adhesions & scar tissue-stomach to chest-liver to ribs-colon to pelvis/severe IBS w/ constipation/subtotal colectomy 7/08-
 
Am now down from 17 meds a day to 8 and VERY healthy:)
 
There's always hope and things will get better :)


Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 1/30/2009 9:42 PM (GMT -6)   
Oooops. Now I feel bad for doing too much. And I'm afraid I messed my stuff up. I hope not. But I think I might have.
I went to work all day today. I love my job and I missed it. I'm a veterinary technician. I took it easy, mostly. I tried to sit as much as I could when I did tasks. I didn't lift anything over 15 lbs. If I felt tired or hurt, they'd let me sit. But I still feel exhausted. I'm working again tomorrow for half day, but I'm doing desk work.
Thanks Judy, I actually needed a lecture. I'm really going to try to take it easy. I just hate asking for people to do things for me. It makes me feel lazy. BUT i will.
I hope it's not too late. i didn't know there was such a high chance for hernia......I've already had too many complications.
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 1/29/08 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
pred. taper, zofran, immodium, lovonox, coumadin, carafate, prenatal vit., and pain meds
(ileostomy temporary....not so sure?)

"Things turn out the best for those who make the best of the way things turn out."


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 1/31/2009 7:24 AM (GMT -6)   
Chassity, did your doc release you to work already? That seems a little soon...

Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 1/31/2009 3:32 PM (GMT -6)   
Um well,
about that. he said he'd prefer me to wait a few more weeks, but if I wouldn't be lifting things and I'd be doing desk work, then OK.
So yes he did, but reluctantly. I'm broke, I need $, so gotta work. Today was much better. I sat on my butt most of the time. I feel good today. And I haven't taken any pain meds since last night.
I honestly feel the worst I do is at home. I can't sit still. Like right now. I want to shampoo my carpets b/c I have mice and I've seen them run across my floor. Which REALLY bugs me for my daughters sake. I feel like sterilizing my whole house. Apparantly they took up residence while we were away for my 1st surgery! I have 2 cats and they are worthless. During one of my sleepless nights, I caught one cat actually just batting a mouse arounduntil the mouse ran away, while the other just watched. Stupid cats. The good news is my min. dachshund has killed 2! Love that dog. and husband caught one more in the trap last night (which I feel really bad about and years ago I used to live trap them, but now that I have a baby, die die die little dz filled furbits) . We can hear the little boogers in the basement ceiling. But since last night, they are one less devil
Boy that was off subject. But I want to clean and am making myself not. Even though tomorrow is the super bowl and some people are coming over.....AHHHHHHHHH.
I'm ok now.
I'm looking forward to finally getting to eat spicy chicken wings and cheese dip tongue (which with my u/c would have sent me strait to the hospital)
I go for the CT scan on Mon. to find out what's up.
Thanks guys and gals
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 1/29/08 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
pred. taper, zofran, immodium, lovonox, coumadin, carafate, prenatal vit., and pain meds
(ileostomy temporary....not so sure?)

"Things turn out the best for those who make the best of the way things turn out."


RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 1/31/2009 4:07 PM (GMT -6)   
I'm proud of you for not jumping up and shampooing your carpets...I know how difficult it is to just sit down and do nothing. I'm in the process of rearranging and re-organizing my cabinets and hutch...though I just went through them a couple months ago it seems like they get so messy so fast. I'm also scrubbing the surfaces and cleaning all the little decoration things in the kitchen. After I get all that under control and squared away it's off to the bathroom. I've intentionally put off that room until this weekend so it will be clean longer once I'm home from the hospital. I have losts of organizing in there to do b/c I have wound care crap just thrown everywhere...some even trickled into the kitchen b/c that's where my mom changed shoulder. Sadly, it will all be next to my bed b/c I'm having 7 (hopefully that's it!) cysts removed under my left armpit during my surgery. *sigh*

I just feel there is so much to do in so little time. I'm overwhelmed...but oh well...I'm feeling decent today so scrub-a-dub-dub I go!

: ) Robin
Dx-May 2007  Asacol-2400mg bid  Prednisone-20mg  Remicade-5 Tx
Paxil-40mg  Prilosec-bid  Multivitamin  Moderate/Severe Pancolitis
28 year old Mommy of a 1 year old and a Wife for almost 2 years!
Life has never been so sweet!  I appreciate the small things in life...the little joys that occur every second of every day.  Though we struggle and have crazy complications, nothing can over ride our love and happiness.
Surgery is scheduled for February 6th!!!  : )   Yea!!!!!!!!!!

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