Thanks for starting the new thread. So sorry you are having a rough few weeks. The big day (hopefully) is just around the corner. I am feeling just as you are....just pretty crappy....or real crappy. I will be praying that they keep your appt and everything continues as planned.
Hodaya- Thanks for your info you relayed on the anismus. It makes much more sense to me. I believe my surgeon thought that just the TC would be enough, but as you said my anisumis is very severe. I just wish I would hear something soon. I am going insane just sitting and waiting....i cant sleep and I just sit and think think think. I wonder how I am that small percentage in everything....and I am always on the wrong side of the percentages!!!
Its my hubby's birthday today...the big 29!!! so we are heading to his parents for dinner tonight that I wont be able to eat:( but oh well....
I as well have a facebook Karen.....when I get home tonight I am going to try and find you. I believe mine is under my full name Lizzie Tinsman....Grand Rapids, MI It woulld be fun to put a face with all of you!!
I have been taking medicine to sleep. My surgeon started me on xanax for sleep while I was in the hospital and my PCP has extended it. Usually it works with no problem, but I have doubled my dose (dont worry its well within a safe dosage) and it does not work. I usually can fall asleep about 330 am and I get up at 645am. I am very tired.....two of my patients today have told me I look pale and tired.....pretty sad even they notice. It has taken a toll on me, but I do not know what else to do.
You can upload pics to facebook...its rather easy to use. My camera just plugs into my computer with a cord that came with it.....I would love to put faces to all of you wonderful people. Try it out....
Hope everyone else is ok.....Amanda? Whats going on sweetie?
oh, Lizzie, don't laugh, i really mean this, if i could, i would come to just hold you and sing you a lullaby till you fall asleep. i have a lousy voice though, you'd probably get anoyed by it, lol.how about reading!? reading has always been the best sleeping pill for me!!!! but i bet you've tried that already, haven't you? you poor thing, sleeping only 3 hrs a night. i would fall appart after 3 days..
well, it's midnight here and i'm so tired, but i'll check out that facebook tomorrow morning.
night... (actually, not for sure, i'll may check in againg after i brush my teeth )
AJ-Hello.....So your situation os somewhat similar to mine. I had a TC one year ago and nearly six months later started having troubles. I too was sent to Physical therapy (biofeedback) for 3 continuous months with little to no improvement. I also tried botox injections into the rectum with no relief at all. I have been dx with sever anismun (a pelvic floor dysfunction) and am seeking a second opinion and facing a possible ileostomy.
I hope the threapy helps you!!!1 and you get the results I did not.
Having a horrible horrible day....inside and out. Want to crawl in a hole.
Post Edited (2b ColonFree) : 2/4/2009 1:05:46 PM (GMT-7)
Amanda- Good to hear from you and glad you are doing so well!!!! You son and my husband have the same birthday!!! Koodos on all the "normalcy" you can start bringing back into your life. I hope this continues to go in the right direction and over the next months you will heal and begin to enjoy this new life and forget about the past and all your complications.
I tried to get into U of M earlier than March 30, but I had no luck and they do not have a cancellation list. Oh well....about 8 weeks I guess. Still have not heard anything back from my surgeon on his consults, but it has been only a week today. I am sure it takes longer than that.
Thanks for the suggestions for sleeping. I actually slept last night....i think my exhaustion caught up with me. I slep in till 10 am and it felt so good. I have nothing to do today except study for grad school entrance exam so I think i will take a pill and try and nap a little and enjoy my day of nothing.
Hodaya.....There is a huge part of me that would look into the reflexology, but it is so hard to be positive on simple corrections when nothing has worked so far. I know its a bad attitude, but all of the work I have put into therapy and exercises, etc has given me nothing but disappointment. I am super super constipated right now. I have been having right lower abd pain and righ back pain for 2 days. All i have been doing is laying on a heating pad and ibuprofen will not touch the pain. I was tempted to call the doctor, but i will wait.
Hope you all are well.
So I need your help.....
I have had abdominal pain the last couple days from being backed up. SO I took my MOM today and liquid and thats it came out of me, but I know there is stool. I have been eating little, but eating and not going at all.....So,
tonight I went to the bathroom and just liquid again, but it was blood mixed (noticeably) and when i wiped (sorry to be graphic) it was blood...bright red. So....again just now it happened again. What should I do?
Amanda i am so glad you are doing well been thinking of you and wondering if all was well. Well at last you can start enjoying life again - at least you are enthusiastic - i dont have any desire for bedroom aerobics - but i never really did when i was your age either.
Lizzie i really feel for you - i also think it could be external or internal piles - have you got them? even so - i would keep an eye on that - bright red is usually fresh blood. i cant understand why you arent going how frustrating for you. have you tried something else instead of milk of magnesia??? just a thought - maybe something more stimulating than that?
take care now.xxx
Well I am not bleeding this am....I was examined last week rectally when I had my second defecography and there was no evidence of hemorhoids or fissures, but I dont know. The only pain I have is just these last few days and even this morning is a generalized knawing pain (not excruciating, just annoying) pain straight across my abdomen in the lower quandrants and back pain.
I have not called my surgeon for the mere fact that I cannot stand his nurse and we all know this. I know its not an excuse, but It really stresses me out. I have had this blood before and this was right before my botox. My surgeon did a rectal exam and hemacoult and things were fine, but he never explained where it may be coming from?
Anyways....did not sleep again last night. Too afraid my bowel is going to perforate.....i know its stupid, but this not knowing stuff is really messing with my head. Ok enough of my pity party. i need to stop.
Hope you all are well.....thanks for your constant support.