Appliance Advice...

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RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 2/3/2009 6:15 AM (GMT -6)   
My ostomy nurse explained that the hospital uses Holister products and showed me the wafer and bag that I would have while there...really it's not that bad...I was expecting something cheap and ucky.
 
Anyway, she told me that if there is a specific brand or style of bag that I would prefer she would be more than happy to order all that I needed so I would have it before leaving the hospital. 
 
My questions to you are:
 
What brand do you feel is the most reliable? 
 
I would really like a bag that is good for gas and odor...do you find that there is one that seems to work better than others?
 
Also...what type of closure do you prefer?  I know that once I've gained experienced and developed and adjustment and sense of comfort with having the ostomy I'll probably know more about what would best fit my needs...but in the beginning I would really appreciate to know what you have found works well for you so I have an idea of what avenue I should take.
 
Thanks and have a great day!!!
 
: )  Robin  smurf
Dx-May 2007  Asacol-2400mg bid  Prednisone-20mg  Remicade-5 Tx
Paxil-40mg  Prilosec-bid  Multivitamin  Moderate/Severe Pancolitis
28 year old Mommy of a 1 year old and a Wife for almost 2 years!
Life has never been so sweet!  I appreciate the small things in life...the little joys that occur every second of every day.  Though we struggle and have crazy complications, nothing can over ride our love and happiness.
Surgery is scheduled for February 6th!!!  : )   Yea!!!!!!!!!!


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 2/3/2009 7:06 AM (GMT -6)   

Like the smurf!!!

I LOVE my hollister...but it really depends on YOUR stoma.  For me, the filter on the Hollister WORKS, and you don't have to use a sticker on it!  It will fill up with some air at night, but after your first empty it goes back to working...something to do with the weight at the bottom helps the filter...I also got hooked on the "lock and roll" velcro bottom...what freedom smurf

That being said...everyone IS different.  You might like a feature on something else...and I would have loved to use the Sensura, but my uneven stomach prevents it sad   After you get home, and you know your size and whether or not you need convexity, order some through the websites...all the companies will send them out to you!

You are lucky that your hospital uses a decent one!  I didn't like the ones at mine but I put up with them until I got home tongue  


badbaggirl
Regular Member


Date Joined Jul 2007
Total Posts : 275
   Posted 2/3/2009 7:15 AM (GMT -6)   
Robin, I think it's hard for us to recommend appliances. What works best for some, don't work for others. I went home with Hollister "New Image" two piece products and I liked them just fine. I had no problems with them as far as leaks or anything. I just didn't like the hard ring that the bags snap into .... just a personal thing. I ended up with Coloplast Assura AC and the bag just adheres to the base rather than snapping and/or clicking it. Plus it has a mid-range size of bag. Not too long, not too short. Again, personal decision. I have tried others (MANY others) but my skin is sensitive and I broke out. I prefer not to wear ones with clips. Just one more thing to lose, fall in the toilet, or wonder what to do with when you are on the pot, but again, some people swear by them. Also I like 2 piece systems because I get more wear from them. I don't have to change the whole thing, just the bag.

Don't know about the rest of you but I do get ones with filters, but they clog within a couple of days anyway. Never found a filtered system that really worked!

What many here will suggest is go home with what your nurse ordered for you at first, consider it your 'training bag!' Then call your medical supplier. They will send you samples to try until you find something you are comfortable with. Best of luck!
BadBagGirl
Crohn's Disease, Colostomy due to cancer and I make darned good dill pickles.


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 2/3/2009 7:15 AM (GMT -6)   
Great questions!!

I love the Coloplast Assura Extended Wear Wafer (item #2833) with matching pouch (item #13986), since I get 7+ days wear time with the wafer. The pouch has a a flesh colored cloth covering with a velcro closure, which is great.

There is no odor whatsoever, since everything is sealed tight inside the pouch, and the gas stays in there, too.

The only time you might smell something is when you empty the pouch. However, if you put a few drops of ostomy deodorizer, hydrogen peroxide, or mouthwash into the pouch after each time you empty, there will be very little odor the next time you empty.

I would also ask her for a box of adhesive remover wipes to use when you remove the wafer and Stomahesive paste or Eakin Seals, which she will explain how they work.
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 2/3/2009 9:28 AM (GMT -6)   

THANKS!!!

I really just wanted to know what experiences you had with certain bags and if there were any major no-no's...b/c I would love to avoid those. 

I also like the idea of a 2-piece appliance...that's what I'll have at the hospital.  I just really wanted to know what bags are the best for odor, gas, etc.  I also am very curious about the closure part...I like the velcro idea, but didn't know how others thought of it and whether it was a good thing or not.  So, thank you for easing my mind. 

Since I've had the black mark on my tummy where the stoma will be, and I just bought the cutest Burberry babydoll tank, I am starting to get used to the idea and notion that there will be a little protrusion.  B/c this past year in particular has been extrodinarily difficulty I am going to spoil myself with cute clothes and shoes once I've lost weight and back to me again.  My first purchase was my tank top...next?  I don't know...I have super short hair, so I'm thinking a Burberry headband?  I do love Burberry...obviously.  My husband is aware of some of the price tags, but I have a feeling that I'll have to butter him up before some purchases!

smurf
: )  Robin
 
28 year old Mommy of a 1 year old and Wife for almost 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
 
"Your mind is like a parachute, it only works when it is open."
-Unknown
 
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 2/3/2009 11:45 AM (GMT -6)   
i like the velcro way better than the clip, the hospital used these clear bags with a clip and they were awful,lol.
I hated that clip i was terrified it was gonna pop off, it dug into my leg, i broke one of them.
I like the velcro way better. the first few months though, i was paranoid and open and closed that stupid thing about 100 times each time to make sure it was closed good! lol i dont do that anymore.
The only thing i dont like about the velcro is that when you first put it on it's hard to close becuase the plastic is sippery. So i solved that by covering the plastic part (not the velcro part) with medical tape. It also keeps it from getting little tears or if it does get a little tear then it just stays in there.

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 2/3/2009 8:13 PM (GMT -6)   
So, I guess I'll chime in with my "favorite". I came home from the hospital with 2 piece Convatec with a clip. I still use the same thing, only added a convex insert and use Eakin Seal "strips" instead of stomahesive paste.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 

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