Questions about Reconnection

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Bella_lostmybag
Regular Member


Date Joined Dec 2008
Total Posts : 104
   Posted 2/10/2009 5:09 PM (GMT -6)   
I've had my ostomy since Nov.19,08 and honestly..I wouldn't mind keeping it. I'm so used to it now. I don't have to run to the bathroom anymore..99% of time I can eat anything I want without pain. There's still a few things that give me heartburn and make my belly hurt but I'm sure that's normal. I go the 18th of this month to see my surgeon for my fourth anal dialation. Hopefully then she gives me a better idea of when I can have my re-connection surgery..I mean, I want to be able to use to bathroom like a normal person, but I don't mind it a bit to have my bag. I know what the problem is..I'm so scared! Im scared because I'm used to not having to run to the potty and not having pain and my surgeon said im going to "poop my brains out" hahah So for all of you who had an ostomy and had the re-connection surgery, did you poop your brains out? Did you have pain? Did you have to run to the bathroom and when you went somewhere..were you always making sure you knew where the closest bathroom was like you had to do before your got the surgeries? Please calm my fears lol smhair
    
       Thanks and God Bless everyone :-)


2 RIS K
Regular Member


Date Joined Aug 2008
Total Posts : 367
   Posted 2/10/2009 5:48 PM (GMT -6)   
I'm almost 8 weeks out since my reconnect and I don't run to the bathroom at all. I did for the first couple of weeks but then it slowed way down. Now I just go to the bathroom like a normal person. I might go two or three times a day but I have complete control and there is no more urgency than there was before I had any of these problems. I don't even think of scoping out the bathrooms until I realize I have to go. I know everyone is different and I'm sure you'll hear from others, but this has been my experience. I really hope that helps. Oh and I only had the bag for two months. I don't think that makes a difference but I thought you might be wondering.

Good luck to you!!
Amanda
35 years old
Chronic Lifetime Constipation
Diagnosed IBS - 1995
Rectal Prolapse - February 2007
Rectosigmoid Colectomy w/low anterior Anastomosis - March 13, 2007
Diagnosed with Colonic Inertia - June 08
Total Colectomy - September 22, 2008
Temporary Ileostomy due to small bowell perforation Septepmber 29, 2008
Ileostomy Reversal - December 15, 2008
Multiple Small Bowel Abscesses-December 22, 2008
Leak at original Anastamosis -December 25, 2008
JP Drain removed - January 23, 2009
 
The whole world is at your feet; so paint your toenails Red!
 


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 2/10/2009 7:16 PM (GMT -6)   
Bella-if you will take some gasx everyday, like in the morning and then in the afternoon, before you get gas and whatever it will help alot.

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 2/10/2009 7:38 PM (GMT -6)   
I hope suebear comes along soon...she is a great advocate for the possitives of a j-pouch! Sadly, that was never an option for me:( Have you checked out jpouch.org?

tbraz
Regular Member


Date Joined Jul 2007
Total Posts : 280
   Posted 2/10/2009 9:15 PM (GMT -6)   
I had my takedown surgery in April of last year and in the beginning you will be going more while your pouch adapts. But honestly 2-3 times a day is not the norm, more like 6-10 sounds realistic. It's not at all like UC where you have to run to make it, you feel gas and can hold it, sometimes for an hour or more. In the first few months you are figuring out which foods you can tolerate, butt burn is usually attributed to spicier/acidic foods that you might need to hold off for awhile. They say that it takes a full year for the adjustment period, and I would say that I really don't think about bathrooms every where I go.

A good idea would be to go to jpouch.org and you can get questions answered there. Just remember that a majority of people on that site are there due to issues that they are having and it doesn't mean that you will experience the same. I wanted to know all the good and bad, My surgeon didn't really tell me what to expect and both healingwell and jpouch have been a life saver for me.

I had to have a dialation at the same time as my takedown and I haven't had any stricture issues since, so don't worry about that.

Good luck with your appointment, hope you hear good news!
Theresa

Originally diagnosed with CD in 1991
Now saying "Undetermined Colitis"
3 step Jpoucher as of 4-15-08

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