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SurferDude
New Member


Date Joined Feb 2009
Total Posts : 7
   Posted 2/11/2009 6:41 AM (GMT -6)   
Hello Everyone
This forum seems to me to be the closest to my problem. I have no ostomies. Yesterday my Doc told me the news, i have anal cancer confirmed from biopsy. Cancer isn't internal but rather an external wart. still have a colonoscopy and cat scans before treatment will begin all within the next week.

A friend refered me here.
Anyway....Time for coffee isn't it?
Diagnosed anal cancer Feb 10 2009
Diabetes diagnosed Mar. 2007
Gall bladder removed Jan. 2000
Neck Injury 1996, limited hand/arm function
5 lower lumbar fused 1971(congenital defect)
Lumbar Fusion seperating beginnng 1996, not repaired
First but not least, Tonsillectomy age 3(only time in my childhood i was allowed to eat that much ice cream).


Miss UK
Regular Member


Date Joined Oct 2007
Total Posts : 128
   Posted 2/11/2009 4:00 PM (GMT -6)   
I don't know anything about what you have but just wanted to wish you all the luck in the world with the treatment you are going to have.

36 year old single mum to a 2.5 year old son
Suspected Crohns when 10 years ago had a very painful rectal abscess
Diagnosed with Crohns desease properly 6 years ago
2008 developed fistula bowel perforated onto bladder resulting in temporary ileostomy
hopefully a reversal around March 2009.


badbaggirl
Regular Member


Date Joined Jul 2007
Total Posts : 275
   Posted 2/11/2009 5:13 PM (GMT -6)   
Hi Surfer Dude!

Welcome! So sorry to hear your news. I had anal cancer diagnosed in 2007. It was found after seeing the doctor for over 6 months for a 'fissure' that would not heal. They finally did a biopsy and it was squamous cell carcinoma - is that what yours is? Anyway I had 6 weeks of radiation every day and chemo until I lost too much weight (I weighed 72 pounds). Since I had Crohn's disease anyway, the surgeon and oncologist agreed that it was best to remove the anus and forego the rest of the chemo so I have a colostomy. I know a couple of people that have made it through just fine without ending up with an ostomy though. I am happy to say that I am cancer free so far!

I wish you the best of luck. I just remember how scared I was when I found out. I was lucky to have such good friends and family but I wish I would have known about this group when I was going through it. PLEASE keep us posted concerning how you are doing.
BadBagGirl
Crohn's Disease, Colostomy due to cancer and I make darned good dill pickles.


Roddiesgirl
Regular Member


Date Joined Oct 2008
Total Posts : 262
   Posted 2/11/2009 5:36 PM (GMT -6)   
Hi SurferDude...just want to say "welcome"...This forum is a great place for support.  Best of luck to you with your treatment.  Keep us all posted ok???

Hysterectomy 1998
Diagnosed IBS 2000
Vaginal Prolapse Surgery 2001
3 Hernia Repairs, 2004
Repeat Vaginal Prolapse Surgery 2006 (the mesh from previous prolapse surgery had let go and fallen into my bowels)...
Removal of mesh from bowels (it was piercing holes all through my bowels and appendix and cecum, causing 2 fistulas and heavy bleeding vaginally and rectally)...mesh was removed, two pieces of large bowel removed and resectioned with a loop ileostomy. 2008
 
I have underlying connective tissue disorder (Ehlers Danloss Syndrome) which is the reason for the two failed surgeries)
 


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 2/11/2009 6:02 PM (GMT -6)   
welcome SurferDude! You have found a great site to help you through this time of treatment...are you from California? I always associate surfing with CA! my daughter just learned last summer and wants to move...

Keep us posted on the outcome of your test!

SurferDude
New Member


Date Joined Feb 2009
Total Posts : 7
   Posted 2/11/2009 6:13 PM (GMT -6)   
thanks for the welcome. i do appreciate your kind words.

Roddiesgirl
i will keep y'all posted, thanks.



badbaggirl
yes that's what it is, squamous cell carcinoma. 6 months of radiation is a lot so i wonder what it'll take in my case. i don't have crohn's so maybe i'll have it a bit better. i have no idea what to expect and that's a big concern, worry, fear. at the moment i'm on auto-pilot you know like i've been left out of something important in my life. at least i have good pain meds now. last night i slept the night through pain free for the first time in nearly 2 weeks. i'll make the decision about whether to undergo radiation/chemo after the cat scans and colonoscopy and i see the onchologist and i have no idea what i'll see the oncologist but my surgeon has talked with the oncologist. i'm pretty tired and worn out and don't know if i can deal with all this least of all afford it.
Diagnosed anal cancer Feb 10 2009
Diabetes diagnosed Mar. 2007
Gall bladder removed Jan. 2000
Neck Injury 1996, limited hand/arm function
5 lower lumbar fused 1971(congenital defect)
Lumbar Fusion seperating beginnng 1996, not repaired
First but not least, Tonsillectomy age 3(only time in my childhood i was allowed to eat that much ice cream).


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 2/11/2009 7:51 PM (GMT -6)   
SurferDude,

You have hit the potluck finding this site! I hope you find some comfort with your pain meds and that we can help you with coping. We are a nice group of folk and a really good group when you need a shoulder to lean on! I also have crohn's, no cancer. just wanted to stop by and say hello.

Best of luck to you.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


finallyfree
Regular Member


Date Joined Aug 2008
Total Posts : 470
   Posted 2/11/2009 10:05 PM (GMT -6)   

SurferDude,

Just want you to know that we are all here for you.  I will keep you in my prayers.  Keep us posted.

Wishing you the very best.


 
 
Judy
 
spleen/appendix/gall bladder  removed/endometriosis/complete hysterectomy at 29/sinus surgery/numerous allergies & asthma/chronic kidney stones/ pancreatitis 3x's/2 knee surgeries-now need replacement/shoulder surgery w/ pins-which also froze following surgery/severe adhesions & scar tissue-stomach to chest-liver to ribs-colon to pelvis/severe IBS w/ constipation/subtotal colectomy 7/08-
 
Am now down from 17 meds a day to 8 and VERY healthy:)
 
There's always hope and things will get better :)


SurferDude
New Member


Date Joined Feb 2009
Total Posts : 7
   Posted 2/12/2009 1:22 AM (GMT -6)   
finallyfree
thank you! i love pot luck!! :)

peggy113
thank you! i'll take every prayer offered!
Diagnosed anal cancer Feb 10 2009
Diabetes diagnosed Mar. 2007
Gall bladder removed Jan. 2000
Neck Injury 1996, limited hand/arm function
5 lower lumbar fused 1971(congenital defect)
Lumbar Fusion seperating beginnng 1996, not repaired
First but not least, Tonsillectomy age 3(only time in my childhood i was allowed to eat that much ice cream).


badbaggirl
Regular Member


Date Joined Jul 2007
Total Posts : 275
   Posted 2/13/2009 10:27 AM (GMT -6)   
SurferDude ... how are you doing now? I found that taking Ativan took a lot of the edge off my worries. Also the radiation was 6 WEEKS not months so at least that's a little better! I'll be thinking of you.
BadBagGirl
Crohn's Disease, Colostomy due to cancer and I make darned good dill pickles.


badbaggirl
Regular Member


Date Joined Jul 2007
Total Posts : 275
   Posted 2/13/2009 10:28 AM (GMT -6)   
Oh. And feel free to email me anytime....
BadBagGirl
Crohn's Disease, Colostomy due to cancer and I make darned good dill pickles.


SurferDude
New Member


Date Joined Feb 2009
Total Posts : 7
   Posted 2/13/2009 1:13 PM (GMT -6)   
hibadbaggirl
just got back from colonoscopy and the news is most excellent, there's no polyps. the doc says everything looks very good. HoooooooRaaayyyyyy!
six weeks sounds much better than 6 months. i'll can do 6 weeks standing on my head.
so now it'll just be the wait til next tuesday and the cat scans.

hehehe i'm still feeling the anesthetic. typing is kinda strange when your fingers can't coordinate with your eyes.

PS...i want a pickle.
Diagnosed anal cancer Feb 10 2009
Diabetes diagnosed Mar. 2007
Gall bladder removed Jan. 2000
Neck Injury 1996, limited hand/arm function
Lumbar Fusion seperating beginnng 1995, not repaired
5 lower lumbar fused 1971(congenital defect)
First but not least, Tonsillectomy age 3(only time in my childhood i was allowed to eat that much ice cream).

Post Edited (SurferDude) : 2/13/2009 12:16:18 PM (GMT-7)

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