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moreglorydays
Regular Member


Date Joined Feb 2009
Total Posts : 38
   Posted 2/13/2009 3:38 PM (GMT -6)   
Hi everyone.  I have been visiting this site for several weeks now, and have found the love and support the members give each other is amazing.  I have UC and am scheduled for a proctocolectomy and permanent ileostomy on 2/19.  I have found the questions RobinByrd has been asking are the same questions that have been floating through my mind, and the answers she has received have been very reassuring.  This is such a huge step, but I can't live like this anymore.  I want my life back, and I want to be off all the meds. Right now I am on 40 mgs of prednisone, after having a flair up on Humira.   I became malnourished and have been drinking three ensures a day to pump myself up before surgery.  The flare up is better, but the UC is still lurking in the background.  Thank you, all of you for being so candid and caring with your personal experiences.

Roddiesgirl
Regular Member


Date Joined Oct 2008
Total Posts : 262
   Posted 2/13/2009 3:47 PM (GMT -6)   
Hi!  I'm happy you found this site...it's a wonderful source of information and support.  You are going to feel SO GOOD after you have your surgery.  I am so thankful for my ileostomy.  Mine is a temporary one which I will be having reversed in a month or so.  I feel so healthy, and you will too!  Yes surgery is a big step, but it is SO worth it.  When I had mine in September I was way past worrying about the surgery part..I just wanted to feel good again.  And I do!!  All the best to you with your upcoming ordeal.  Keep us posted ok?....Cheryl

Hysterectomy 1998
Diagnosed IBS 2000
Vaginal Prolapse Surgery 2001
3 Hernia Repairs, 2004
Repeat Vaginal Prolapse Surgery 2006 (the mesh from previous prolapse surgery had let go and fallen into my bowels)...
Removal of mesh from bowels (it was piercing holes all through my bowels and appendix and cecum, causing 2 fistulas and heavy bleeding vaginally and rectally)...mesh was removed, two pieces of large bowel removed and resectioned with a loop ileostomy. 2008
 
I have underlying connective tissue disorder (Ehlers Danloss Syndrome) which is the reason for the two failed surgeries)
 Reversal surgery scheduled for end of March/09


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 2/13/2009 7:38 PM (GMT -6)   
moreglorydays---welcome to the site! I am glad you were able to get the answers you needed:) Just a few more days and you will be on to a new disease free life! Good for you:)

Keep us posted on your recovery, when you can, and ask away if you have any questions of your own!

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 2/14/2009 2:53 PM (GMT -6)   
welcome! and YAY for being healthy soon!

nene205
Regular Member


Date Joined Jun 2007
Total Posts : 302
   Posted 2/14/2009 11:31 PM (GMT -6)   
moreglorydays, will be thinking and praying for you on 2/19. good-bye UC forever! yippee

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 2/15/2009 5:21 AM (GMT -6)   
Welcome, I'm glad you found us! :-) Good luck with your surgery on Thursday. It will be the beginning of your new, disease-free life. Come back and let us know how you're doing once you're home from the hospital.

Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


moreglorydays
Regular Member


Date Joined Feb 2009
Total Posts : 38
   Posted 2/15/2009 10:48 AM (GMT -6)   
Thank you, everyone, for the warm welcome. I do look forward to feeling disease free.
scheduled for permanent ileostomy surgery 2/19
tried asacol, rowasa, remicade, humira
currently on 40 mgs. prednisone
51 years young


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 2/16/2009 7:23 AM (GMT -6)   
MGD - Welcome to our wonderful, informative and very friendly and supportive site. Please feel free to ask any questions you may have if we haven't already answered them.

Best of luck to you and you will be totally amazed at how much better you will feel after you get that nasty disease out of you! The others that you have been following, esp Robin, can attest to that, right?

Take care and keep us updated as we will be looking for your update.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 

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