to my cwocn nurse(s)

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

dilatante
Regular Member


Date Joined Jan 2009
Total Posts : 125
   Posted 2/14/2009 12:18 AM (GMT -6)   
thank you so much for listening to my rant this morning, about my night at work last night. your listening, and making suggestions is really helpful. Heck, just the listening is helpful. I don't know what else to do, to prevent it from leaking.

justjenjen
Veteran Member


Date Joined Nov 2003
Total Posts : 518
   Posted 2/14/2009 9:00 AM (GMT -6)   
You are a newbie (for all intent and purposes) right??? I really think your et nurse needs to steer you to something new to help with this situation. Having to change so often is not only frustrating but it is downright painful. Perhaps, one of us could give you some suggestions? I have no idea what you have or have not tried. I, too, really liked my et nurses, but I think they are limited. We all have every different bodies, skin types, etc. yet we all go through the same trials. I don't know...I just think our collective knowledge and experience may get you what you need quicker. Please don't think I'm knocking your nurse at all. But, I know that some of them have very set views about certain bags, paste, rings, etc. and would disagree with me on what worked. Hello?? I think I'm the best judge on what works based on leaks, outfit changes, skin breakdown etc. I'm not sure at times if the nurses get brainwashed by their sales rep or what but it was very frustrating all the same. Hang in there, it will get better.

dilatante
Regular Member


Date Joined Jan 2009
Total Posts : 125
   Posted 2/14/2009 6:05 PM (GMT -6)   
Oh yes, i've only had this since 10/31/08. Diana and Nancy, are very willing to try different stuff. I seem to have more problems when i'm working. She's tried multiple different appliances, convex, flat, eakin's rings, light paste, no paste, paste and paste strips, paste, paste strips and eakins rings, thin duoderm, with appliance over it, and just the appliance with some mixture of the above listed things. She isn't stuck on one type of appliance only. I use a convetec appliance, with convexity. I need the convexity, due to the way my stoma is. The one thing that is keeping me going, is that hopefully in about 3 weeks, we'll be talking reversal.

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 2/14/2009 8:26 PM (GMT -6)   

Hmmmm...my guess is that you are using a product that is not allowing your flange/wafer to seal to your skin the way it is supposed to!  I am a very active person and use (need) a convex wafer, too, but have NEVER had the problems you've described...what type of soap do you use?  Do you use adhesive remover/skin prep/stoma powder?  What brand of wafer are you currently using?  What exactly are you doing at work that causes the leaks?  Do you get leaks at home, too?

I'm trying to brainstorm what might be your problem...even if it's only for a few weeks more, you shouldn't have to live like that!!  Lets get it fixed...


dilatante
Regular Member


Date Joined Jan 2009
Total Posts : 125
   Posted 2/14/2009 8:58 PM (GMT -6)   
I get leaks at home also, not just at work. I don't use any soap around the stoma. I use washcloths, with plain water, to clean around the stoma. I don't use any adhesive remover. I only use skin prep and powder, if i'm starting to get breakdown. Diana, my ET nurse, doesn't want me to use skin prep, unless there is breakdown. I'm currently using a convatec convex wafer. I think at work, i'm either bumping it on a bed rail, or the desk when i'm sitting down. I'm a registered nurse. I don't lift, and am very concious of how I twist and turn, and try to not to do anything that could be causing it to leak.
 
I appreciate the brainstorming!! I want to get it fixed. I was at wound care for something entirely different than for the "normal" ostomy change or dressing change, and what did I feel but it leaking!! I have a double barrel ileostomy, and the "non" functioning side is oozing out liquid, and we think that may be what's causing the leaks. I'd forgotten about that till now. doh!!

justjenjen
Veteran Member


Date Joined Nov 2003
Total Posts : 518
   Posted 2/15/2009 1:19 PM (GMT -6)   
What's a double barrel?? My temp had a little 'vent' but I don't know if that's the same or not. Are you currently suffering from skin breakdown?? If not, try nixing the powder. I always use skin prep with no problem so I don't know why the et nurse would say not to use it. Of course, many here don't use it ever. Also, some brands of paste/pouches and the like just may not work with your body. For instance, Adapt paste works so much better for me than Convetec or Coloplast ever did. I don't know why but that paste just works better for my body.

Roddiesgirl
Regular Member


Date Joined Oct 2008
Total Posts : 262
   Posted 2/15/2009 3:10 PM (GMT -6)   
Hi..sorry you are having such trouble!...I found I was having leaks as well and the problem seemed to be that when I would use the powder on irritated skin, I wasn't getting enough of it off before I put the wafer on...now when I use it, I blow away the excess with a hair dryer, or I just dust it lightly with a tissue.  Then if I have to use a barrier spray or wipe, I make sure that it's completely dry before I appy the wafer.  This has worked for me so far.  I always use soap to cleanse the area around the stoma when I change appliance also.  I only use dial soap, as it's the one my ET nurse recommended.  I use Dove to shower but don't use it around stoma as it has moisturizing cream in it.  Hopefully you can find something that will work for you among the replies here.  Best of luck to you!  NOthing worse than feeling that darn old tell tale itch of a leak huh?... shocked
Hysterectomy 1998
Diagnosed IBS 2000
Vaginal Prolapse Surgery 2001
3 Hernia Repairs, 2004
Repeat Vaginal Prolapse Surgery 2006 (the mesh from previous prolapse surgery had let go and fallen into my bowels)...
Removal of mesh from bowels (it was piercing holes all through my bowels and appendix and cecum, causing 2 fistulas and heavy bleeding vaginally and rectally)...mesh was removed, two pieces of large bowel removed and resectioned with a loop ileostomy. 2008
 
I have underlying connective tissue disorder (Ehlers Danloss Syndrome) which is the reason for the two failed surgeries)
 Reversal surgery scheduled for end of March/09


dilatante
Regular Member


Date Joined Jan 2009
Total Posts : 125
   Posted 2/15/2009 4:02 PM (GMT -6)   
my ileostomy has one side that puts out poop, and one side that puts out mucous, and we think from what was seen yesterday, that the mucus side is putting out just enough, before we get the appliance on, to cause it to not seal good. We think it's all nice and dry, and wham!! the mucus side has put out a little bit, and it isn't noticed, and therefore the seal isn't there, that we think we're getting. I only use powder, if I have redness and irritation. IF yesterday's holds, I should have no skin breakdown tomorrow morning, when i'm supposed to get it changed again at wound care. I didn't have any "breakdown" yesterday, just some redness, that was heading for breakdown, if I hadn't changed it. I hope that makes sense!! I am very on top of catching any leaks before they lead to breakdown. I've been in the position where I was scalded from my ostomy to my left iliac crest, and underneath my pannus.
 
I appreciate any and all suggestions!!
 
I don't use a blowdryer to get rid of excess powder, because most of the time, I am at work when I have leaks. I have the little mirror that came with my original scissors etc, and use that as a fan, to get rid of excess powder and try to make sure everything is dry. When i'm at work, I take a ton of washclothes, and towels with me to change it. I started only taking a few, and always ran out. <G> I don't have to do the laundry, just pick up after myself, so I don't worry about how much I use.
 
I'm listening to what everyone has to say, and keep reminding myself that March is less than two weeks away. My appointment to discuss reconnection is less than 3 weeks away. (march 5th). I can do this!!

dilatante
Regular Member


Date Joined Jan 2009
Total Posts : 125
   Posted 2/15/2009 4:05 PM (GMT -6)   
OH!! one thing about blow dryers....if you wear a belt, don't wear the belt when you're warming the wafer up, after applying it. You might melt the little thingies that hold the belt. also, if you use a blow dryer, don't hold it on one spot too long, or you might melt the appliance together. How do I know?? i've done both!!

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 2/15/2009 8:50 PM (GMT -6)   
I'm not sure the second opening is really the problem...I had a temp ileo for 8 years and that was never an issue...it sounds more like you have another issue. I even have an end-loop ileo now (with the bottom hole that can hold stuff) and my issue isn't the "stuff" but the way my stoma retracts which can allow output to get where it shouldn't.

What size does you stoma measure? What size opening are you using? I am going to guess you have an issue there, too.

As far as what Roddiesgirl said you MUST blow the extra powder off...nothing special is needed to do that...just blow it like you were blowing out candles or use a tissue.

If you don't mind me asking, why do you have to go to wound care for the change?

dilatante
Regular Member


Date Joined Jan 2009
Total Posts : 125
   Posted 2/16/2009 1:44 AM (GMT -6)   
I don't know what the problem is, other than that I want to get the whole thing reversed next month. <G> I agree there may be other issues with it also. I used half a coloplast strip, right where it's been leaking when I changed it tonight. Plus some paste on the appliance, and so far so good. i'm at work, and surprised I can get on here.
 
My stoma is oval shaped, and I don't remember the size it measures right now. I check it every time I put a new appliance on it.
 
Every time I use the powder, I blow it off. I don't leave any extra on there.
 
I'm going to wound care right now, because until this past week, I still had an open wound on my abdomen from the original surgery. It would have been closed much earlier, but I started messing with it. I'm hoping that soon i'll not have to go other than to get the ostomy changed. OR because i've had my reversal surgery.

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 2/16/2009 7:39 AM (GMT -6)   
OK - I'm gonna chime in on this one too. I know you are using wash cloths to clean up... try soft paper towels, like VIVA brand. Maybe there is just something in the cloths that is causing a seal problem.

The other recommendation is to wear a snug fitting, high waisted panty. Maybe if you are bumping it, this will help some.

Everyone is covering all of the other things pretty well.

Good luck to you and just a few more weeks until your reversal!
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


justjenjen
Veteran Member


Date Joined Nov 2003
Total Posts : 518
   Posted 2/16/2009 11:34 AM (GMT -6)   
Good point about the clothes, Peggy!! -things like fabric softener could be a culprit.

dilatante
Regular Member


Date Joined Jan 2009
Total Posts : 125
   Posted 2/17/2009 12:58 AM (GMT -6)   
I'll definitely try using the paper towels at home. I'd been using toilet paper, and washclothes, but i'm going to try the paper towels. I don't add any fabric softener at home to my laundry. Thanks for thinking of that!!

dilatante
Regular Member


Date Joined Jan 2009
Total Posts : 125
   Posted 2/22/2009 4:40 PM (GMT -6)   
I don't have any hair around my stoma. I think most of my leaks, are caused by moving, or bumping it while at work. At least from what i've been able to figure out.
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, August 19, 2017 3:34 AM (GMT -6)
There are a total of 2,857,401 posts in 313,515 threads.
View Active Threads


Who's Online
This forum has 155118 registered members. Please welcome our newest member, alvinbenton.
281 Guest(s), 1 Registered Member(s) are currently online.  Details
Chask


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer