Quick question for those who have had total colectomy

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2 RIS K
Regular Member


Date Joined Aug 2008
Total Posts : 367
   Posted 2/16/2009 4:28 PM (GMT -6)   
I know this may sound strange, but can you tell me how much fluids you drink in a day?  I know I'm not drinking enough, but my husband and I keep having this "discussion" about how much I should be drinking.  I can't believe people are actually drinking as much as 64-80 ounces a day which is what he and my doctor say I should be drinkng. 
 
I guess you all will prove me right or wrong.  Please be honest. I am just not one to drink very much during the day, it's hard for me to force the liquids it just doesn't come natural to me.  For example in a typical day I drink one can of diet coke, and then maybe two regular size glasses of water.  That's it.  I open my diet coke first thing in the morning and it takes me till about noon to finish it.  I'm just a slow drinker.  It used to work for me but now I notice my hair and skin is much drier, but I don't know if it's because of my new condition (no colon) and not having enough water, or if it's just because it's winter again.  We've only lived here in Idaho for two years and it is so dry in the winter. I'm still not used to it so I can't tell which is to blame.  Please help me out on this.  I'm very interested to hear your answers.
Amanda
35 years old
Chronic Lifetime Constipation
Diagnosed IBS - 1995
Rectal Prolapse - February 2007
Rectosigmoid Colectomy w/low anterior Anastomosis - March 13, 2007
Diagnosed with Colonic Inertia - June 08
Total Colectomy - September 22, 2008
Temporary Ileostomy due to small bowell perforation Septepmber 29, 2008
Ileostomy Reversal - December 15, 2008
Multiple Small Bowel Abscesses-December 22, 2008
Leak at original Anastamosis -December 25, 2008
JP Drain removed - January 23, 2009
 
The whole world is at your feet; so paint your toenails Red!
 


psygirl6
Regular Member


Date Joined Aug 2008
Total Posts : 268
   Posted 2/16/2009 7:21 PM (GMT -6)   
Hi Amanda,
I only drink with my meals, and an occasional iced coffee when I go out. I drink Diet Green tea with powdered metamucil in it for both Breakfast and Dinner, which having the metamucil with my breakfast and dinner drinks help me bulk up stool and slow my BM's a lot better. Plus the green tea is great for energy. For lunch, I drink Silk Soy Milk, because it has all of the nutrients the body needs, and has omega 3's and pretty much all of the vitamins I need to keep my body strong and healthy, especailly since my surgery, I have a hard time with low weight, and on top of all my food intolerances I have(no relation to the surgery), This is they only way I can safely get my vitamins, as vitamins go right through me. I only drink with meals because if I drink without food, I am more likely to have more BM's, especailly very watery ones, since the liquid would push everything out to easier and quickly. At least with food, the food kind of slows the liquid down a bit from getting to the rectum to fast. Well, Good luck with everything. I hope all is well.

Maya

justjenjen
Veteran Member


Date Joined Nov 2003
Total Posts : 518
   Posted 2/16/2009 7:23 PM (GMT -6)   
Well, we do need to watch our fluid intake but like anything and everything is this life--WE ARE ALL DIFFERENT!! YOU are the best judge of if you need more fluid. Personally, I've always needed more than most folks I know and this was before I had my colon removed. Your hair and nails may be trying to tell you you need more fluids, but it may be you need more vitamins. It could be just the dryness of the climate you in...there really are many other possible reasons other than fluid intake.

I do think trying to increase your fluid intake is a good idea and maybe your hair and nails will get better with that simple fix. It's just something your gonna have to use trial and error to figure out. --I hope that didn't sound bossy! I didn't mean for it to sound that way. :)

peggy113
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Date Joined Aug 2007
Total Posts : 1998
   Posted 2/16/2009 7:51 PM (GMT -6)   
One of the things that I notice is that coffee and tea, as you know, are natural diuretics so I watch how much of those that I drink. When my lips start to feel a little dry (chapped), I know that I need to increase fluids. Esp. in the winter time when you don't FeeL thirsty. If you can find an herbal tea that is not a natural diuretic, that would be a good thing to just learn to drink in the winter to keep you warm. Even iced herbals in the summer are ok, or low sugar juices like cranberry/black cherry (my favorite). I just try to drink as much as I can, with something at hand all the time, even if I don't feel thirsty. Increasing your sodium intake will make you want something more to drink if you can tolerate that.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Equestrian Mom
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Date Joined Mar 2008
Total Posts : 3115
   Posted 2/17/2009 5:25 AM (GMT -6)   
you'll definitely have to find what works for you...if you are thirsty, drink!! You can do more harm to your body if you don't:( I am not necessarily a fan of water so I drink lemonade (the Simply brand) and cut it with water...I don't need all the sugar and it tastes fine:) I do drink a couple cups of coffee throughout the day...I know its bad, but I take that into account and drink more non-caffeinated liquid to offset it...

Soda really isn't good for you any way you look at it...maybe try something else? You'll find the right amount you need...watch the skin on the back of your hand, if you pinch it and it doesn't spring back, you need fluids.

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5690
   Posted 2/17/2009 9:21 AM (GMT -6)   
I agree that this is completely subjective. I drink 20 ounces of coffee in the morning and in the evening I drink about 20 ounces of water. If I am at the gym I may drink another 20 ounces of water. I have a diet that is very high in fresh fruit which supplies a lot of water. If your urine is pale yellow then you are hydrated. If it's dark yellow you need more fluids.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


2 RIS K
Regular Member


Date Joined Aug 2008
Total Posts : 367
   Posted 2/17/2009 3:03 PM (GMT -6)   
That all makes sense, but I thought we had to worry about things like kidney stones and gall stones even more now that we had this surgery; and I was told the best way to prevent those was to drink more fluids.

I don't drink coffee or tea or alcohol. I only drink one diet soda each day. The rest of the time I drink water, well, half water half powerade (for electrolytes).

I am not allowed to eat fresh fruit yet according to my doctor, so there's one water source I don't have. My only sources right now are from drinking and I was just curious.

It's my skin that is so dry and also my hair, which is still falling out in huge clumps. It has gotten so thin it's pitiful! I take vitamins, but to no avail and right now I'm suffering from a teribble cold/flu.

Thank you for all the input though, I appreciate it.
Amanda
35 years old
Chronic Lifetime Constipation
Diagnosed IBS - 1995
Rectal Prolapse - February 2007
Rectosigmoid Colectomy w/low anterior Anastomosis - March 13, 2007
Diagnosed with Colonic Inertia - June 08
Total Colectomy - September 22, 2008
Temporary Ileostomy due to small bowell perforation Septepmber 29, 2008
Ileostomy Reversal - December 15, 2008
Multiple Small Bowel Abscesses-December 22, 2008
Leak at original Anastamosis -December 25, 2008
JP Drain removed - January 23, 2009
 
The whole world is at your feet; so paint your toenails Red!
 


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 2/17/2009 6:33 PM (GMT -6)   
amanda, the hair loss could be from drugs that you were on...it took almost a year until mine stopped falling out! I used to have long hair but cut it shorter and it isn't as noticable now, plus it seems healthier:) It should get better.

Bella_lostmybag
Regular Member


Date Joined Dec 2008
Total Posts : 104
   Posted 2/17/2009 7:07 PM (GMT -6)   
I got yelled at too by my mom and doctor about that lol I only drink a few glasses of anything a day so Im only drinking about 12 oz. rolleyes I hate drinking. I dont know why. It just doesnt appeal to me. So I know how you feel..and my hair is dry and my skin is crazy dry but I never associated the two together..hmm..made me think about that :-)
17, SENIOR in high school
Dx with Ulcerative Colitis on March 18,2008
Step1 Ileostomy on Nov.19,2008..waiting on Step2 =]
"The past is history, the future is a mystery. Today is a gift, that's why it's called the present"


2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 2/18/2009 5:08 AM (GMT -6)   

Hey Amanda!

I have been wondering how you are doing?? Is the bowels behaving??? I am anxious to know...

Sorry to hear about the hair loss etc.  Yes i am also one to not drink much but i try to ensure i get at least 4 pints of fluid a day (not sure how many ounces) by drinking from largish mugs.

it helps that i drink tea and coffee of which i have one of each in the morning and then another cup of tea lunchtime then mid afternoon it is a watered down apple or grape juice with lemon juice and ginger and i have it warm.  then i might have a green tea before teatime and then a milky drink (which doesnt count) before bed.

i dont eat fruit at all because it just blows me up, the same goes for fizzy drinks. You could try flavoured water with no added sugar. 

i dont think coke is a good thing to drink at all actually.  i have heard on a programme i watch regularly on TV that it depletes your system of essential vitamins. you could eat soup which is fluid based.

i am surprised you havent been referred to a dietician as that would put you at ease i am sure.


Karen 46 yrs
1997: Diagnosed IBS
2003: Pelvic floor repair surgery (rectocele/cystocele)
2006: STARR surgery for mucosal prolapse/Obstruction
2006: Diagnosed with slow transit constipation
2007: Sigmoid resection because of partial volvulus resulting in immediate colonic inertia
 
15 JANUARY 2009: scheduled for T/C
12 FEBRUARY 2009 - Re-scheduled T/C- (postponed as the Professor is away)
 
17 MARCH 2009 - re-scheduled (but I wont hold my breathe :( )
 


spasman
Regular Member


Date Joined Jul 2006
Total Posts : 361
   Posted 2/18/2009 4:04 PM (GMT -6)   
Are you more thirsty since the colon removal?
-IBS induced by NSAID
-IBS-A,C with meteorism(trapped gas) and pubic burning-
 


2 RIS K
Regular Member


Date Joined Aug 2008
Total Posts : 367
   Posted 2/19/2009 9:15 PM (GMT -6)   
No, I'm not more thirsty although I thought I would be. It would make sense anyway and it sure would make drinking a lot easier. I've pretty much decided to try to find something I really enjoy drinking and just "suck it up" pardon the pun!

Karen, I am actually doing well and my bowels are moving quite nicely. I've added benefiber to my diet (2 tsps) daily per my doctors orders and it has worked wonders. I go about 2-3 times a day. Overall I feel great and I'm just trying to get my strength back so I can work out at the gym again and get rid of this flab I have now that I've lost so much weight. I was going to the gym before surgery but with the colonic inertia I was miserable. I can't wait to get back now that I'm light and fit!
Amanda
35 years old
Chronic Lifetime Constipation
Diagnosed IBS - 1995
Rectal Prolapse - February 2007
Rectosigmoid Colectomy w/low anterior Anastomosis - March 13, 2007
Diagnosed with Colonic Inertia - June 08
Total Colectomy - September 22, 2008
Temporary Ileostomy due to small bowell perforation Septepmber 29, 2008
Ileostomy Reversal - December 15, 2008
Multiple Small Bowel Abscesses-December 22, 2008
Leak at original Anastamosis -December 25, 2008
JP Drain removed - January 23, 2009
 
The whole world is at your feet; so paint your toenails Red!
 


2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 2/20/2009 2:52 AM (GMT -6)   
hey Amanda, i'm glad you're doing good :o)
you know, Judy said something before about drinking coconut water (you can but them in health stores). i made a note of that to remember that after the surgery. why don't you try it? i think she said she mixs it with water, like half and half.


Hodaya
 
06/05/2007 - STARR procedure 
colonic inertia w/ pelvic floor dysfunction


psygirl6
Regular Member


Date Joined Aug 2008
Total Posts : 268
   Posted 2/20/2009 8:12 AM (GMT -6)   
Hi everyone,
I also have a suggestion for what to drink that would give everybody vitamins and eneergy they nedd, as well. You know what's good too for vitamins and energy to drink, is Silk Soy Milk. I am lactose intolerant, so this is the only way I get my milk cravings. It has so much vitamins in it. It has omega-3's, B-vitamins and a ton of other important vitamins, as well. It has given me so much energy. Also,

Amanda,
I am also very happy happy about your recovery and that you are doing so well. I take metamucil 2x a day to help form and slow my bowel movemnets down. Since I started taking that I only go about 3-4 times a day. My doctor was telling me that the powdered stuff works alot more better, since it there is the actually fibers inti to help bind us up. The pills would just go right through me without even working. I am so glad you are doing well.

Maya

2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 2/20/2009 9:23 AM (GMT -6)   

Amanda that is so great to know!  yeah that has really encouraged me seeing as your op history is similar to mine (pre t/c of course) and i just cant wait.

i also drink soya milk - it says it has vitamins calcium and omegas - i drink it from habit really going back to when i did an elimination of dairy.  i quite like the taste especially on cereal and in coffee - u should try it.  though i am sorely lacking in energy and vitality but that's because of the constipation i suppose.

wow i cant wait to get better and have energy again - have a good time at the gym.


Karen 46 yrs
1997: Diagnosed IBS
2003: Pelvic floor repair surgery (rectocele/cystocele)
2006: STARR surgery for mucosal prolapse/Obstruction
2006: Diagnosed with slow transit constipation
2007: Sigmoid resection because of partial volvulus resulting in immediate colonic inertia
 
15 JANUARY 2009: scheduled for T/C
12 FEBRUARY 2009 - Re-scheduled T/C- (postponed as the Professor is away)
 
17 MARCH 2009 - re-scheduled (but I wont hold my breathe :( )
 


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 2/20/2009 9:49 AM (GMT -6)   
Amanda,
 
That's good that you like to drink Powerade with water. From everything I've read, it really is best to try to drink about 64 oz. of water, juice, sports drinks, or some other non-caffeinated beverage throughout the day. If a Solo cup is 16 oz., then you should try to drink about 4 of those a day. Coffee, sodas, or other drinks that contain caffeine are diuretics, so try to drink those in smaller quantities.
 
You can jazz up water by making it into iced tea, lemonade, or fruit punch. If you exercise, you should drink a little more. If you eat soups, cooked veggies, and fruits without the skins, you won't have to drink as much. Juicing fruits and veggies is a great way to get all the nutrients and fluid without the bulk.
 
I found that vitamins for hair and nails and Rogaine for women helped stop the hair loss when I was losing my hair.


Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


2 RIS K
Regular Member


Date Joined Aug 2008
Total Posts : 367
   Posted 2/20/2009 10:46 AM (GMT -6)   
Last night I ordered some diet caffeine free green tea powder mix. I used to drink it but I can't find it anywhere here so I ordered it online. I can't wait to get it. This should help me get the fluids I need and it's supposed to be good for you too.

Just an FYI - the benefiber I take is powder also and you can mix it in any drink that's not carbonated. It works great and you can't taste it at all. It's what helps my stools to be formed and I only go a couple of times a day.

I probably won't try the Soy Milk only because I'm not a milk drinker at all. The only milk I ever drink is when I have cereal, and when the cereal is gone I dump out the rest of the milk in the bowl. I know, that's awful isn't it?
Amanda
35 years old
Chronic Lifetime Constipation
Diagnosed IBS - 1995
Rectal Prolapse - February 2007
Rectosigmoid Colectomy w/low anterior Anastomosis - March 13, 2007
Diagnosed with Colonic Inertia - June 08
Total Colectomy - September 22, 2008
Temporary Ileostomy due to small bowell perforation Septepmber 29, 2008
Ileostomy Reversal - December 15, 2008
Multiple Small Bowel Abscesses-December 22, 2008
Leak at original Anastamosis -December 25, 2008
JP Drain removed - January 23, 2009
 
The whole world is at your feet; so paint your toenails Red!
 

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