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RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 2/18/2009 9:13 PM (GMT -6)   
So.  I asked Dr. ****** if I could have a smaller stoma b/c my ostomy nurse said he tends to make them fairly large.  He told me it had to be a certain size for the bag to stay on better.  Well, now that I have my bag I don't see how the size of the stoma really makes any difference on the adhesive and longivity of the wafers. 
 
My question to you is...what's the size of your stoma?  Obviously mine is about the size of a rose bud, but shrinking by the day b/c it was super swollen this past week or so.  I'm just curious b/c as I called around for my ostomy samples the companies asked if my stoma was flush to my stomach or if it protruded.  I didn't realize they could be flush to the skin.
 
Thanks!!!  smurf
: )  Robin
 
28 year old Mommy of a 1 year old and Wife for almost 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
 
"Your mind is like a parachute, it only works when it is open."
-Unknown
 
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!


Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 2/18/2009 9:40 PM (GMT -6)   
HI ROBIN!
I just read your e-mail. I'll write back tomorrow. I'm tired and going to bed after I post-no more pred insomnia.
BUT about your ?'s
I don't think the stomas are SUPPOSED to be flush with the skin. But if they heal that way, then the companies offer convex appliances.
Mine is still shrinking. It was like 1 1/2 in. at first and now it's just over an inch.

I don't know that the size makes a difference with the bag staying on, but it will help prevent leaks. If the stoma doesn't stick out into the bag, stool can easily get under the wafer.

Size matters! he he he :)
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 1/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
pred. taper, coumadin, carafate, prenatal vit., and pain meds
(ileostomy temporary....not so sure?)

"Things turn out the best for those who make the best of the way things turn out."


awesomeame
Veteran Member


Date Joined Feb 2006
Total Posts : 625
   Posted 2/18/2009 9:54 PM (GMT -6)   
no, size doesn't matter. (bahahaha) I don't understand why size would effect how the bag stays on?? My stoma was over 2.5" after surgery, but it's been a solid 1-1/8" for the past two years. And yes, stomas can be flush with the skin but like chasblah said you need to use the proper flange...

Matt
Dec 2006: Proctocolectomy/permanent ileostomy
Since 1991: Indeterminate crohn's/ulserative colitis


RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 2/18/2009 9:55 PM (GMT -6)   
I got edited!!! : )

Ooops.

BUT! If you all had a chance to meet this surgeon and go through the pain I did post surgery you'd call him an ass too!!!

Sorry for my potty writing. I'll try to do better in the future.

: )
: )  Robin
 
28 year old Mommy of a 1 year old and Wife for almost 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
 
"Your mind is like a parachute, it only works when it is open."
-Unknown
 
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!


Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 2/18/2009 9:57 PM (GMT -6)   
OOOOOHHHH.
You bad girl.
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 1/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
pred. taper, coumadin, carafate, prenatal vit., and pain meds
(ileostomy temporary....not so sure?)

"Things turn out the best for those who make the best of the way things turn out."


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 2/18/2009 10:08 PM (GMT -6)   
the only thing i could see about size is maybe they meant how much it stuck out.
Mine is right about the 1inch line. it started out up at the 2 though!

Tinamarie
Regular Member


Date Joined Feb 2009
Total Posts : 28
   Posted 2/18/2009 10:10 PM (GMT -6)   
The stoma will shrink. It is always a little bigger in the beginning. The wafers are larger too but it begins to shrink pretty quickly. Mine went down to 7/8". I had to switch to the convex wafers because they fit better than the flat ones. I had visiting nurses come out that were specialized with ostomies for the first few weeks. They were very helpful.

Take care,

Tina

Tinamarie
Regular Member


Date Joined Feb 2009
Total Posts : 28
   Posted 2/18/2009 10:13 PM (GMT -6)   
Oh and the convex wafers help the stoma stick out a little more making it less likely for anything to get under the wafer.

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 2/19/2009 6:04 AM (GMT -6)   
I've posted before that mine is VERY small...its 16mm (5/8") and on the short side. It really isn't a big deal for me, but this one is smaller than my last one...that one was 1" for more than 8 years!!

I have more of an issue with the high/low spots on my tummy from all the scars...those tend to limit the wafers I can use.

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 2/19/2009 6:28 AM (GMT -6)   

Robin, I love how the smurf has become your signature icon! smurf

My stoma is 35 mm or 1-3/8 inches.


Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 2/19/2009 5:04 PM (GMT -6)   
19mm exactly and no u dont want a flush stoma
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 Temp Ileostomy performed 1/29/08
Still Adusting
 Healingwell.com has been my Godsend...Thank you


RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 2/19/2009 7:37 PM (GMT -6)   
Very cool you guys...thanks for the reassurance!

Now...about the comment regarding stuff getting under the wafer. That is super ucky...it happened to me yesterday, and how do you feel it can be prevented? I thought I was doing everything correctly, but it leaked.

Then on another note, I wore normal dress slacks today for our outing out of town and to my appointment with Dr. Ass---- (is that acceptable?...as that is his permanent name as far as I'm concerned)...and my stoma was super sore! I guess the pressure from my pants even below the site was still too much...my abdomin is still pretty swollen. I was just pleased that pants without elastic fit me!!!

: )
: )  Robin
 
28 year old Mommy of a 1 year old and Wife for almost 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
 
"Your mind is like a parachute, it only works when it is open."
-Unknown
 
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 2/19/2009 8:12 PM (GMT -6)   
eakin seals!! learned about them here, have used them ever since, they come in big rings (the ones i order) or strips. and u cut them into trips ( i just tear them w/my fingers) and u place them around ur stoma under or over the wafer ( i use them under) and they prevent leaks. they kinda mold to ur body and provide an extra seal to prevent leakage
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 Temp Ileostomy performed 1/29/08
Still Adusting
 Healingwell.com has been my Godsend...Thank you


Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 2/19/2009 8:28 PM (GMT -6)   
Try the seal. I tried them and don't like them, but everyone is different. I prefer paste.
The best thing to do is experiment with different appliances until you find one that works (no leaks). If you've been using the same appliance and this is the only time it leaked, then it may just be an error in the way you applied it.
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 1/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
pred. taper, coumadin, carafate, prenatal vit., and pain meds
(ileostomy temporary....not so sure?)

"Things turn out the best for those who make the best of the way things turn out."


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 2/20/2009 9:59 AM (GMT -6)   
That's a good name for him, since he actually is an ass doctor! smilewinkgrin
 
I agree with the others. If you put an Eakin Seal or Stomahesive Paste around the hole that you cut in the wafer before applying it, it will keep the output from leaking under the wafer.



Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 2/20/2009 12:37 PM (GMT -6)   
When I changed my wafer this last time I put a bit more paste than the time before, so hopefully it will work this time.

Thank you guys!!!
: )  Robin
 
28 year old Mommy of a 1 year old and Wife for almost 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
 
"Your mind is like a parachute, it only works when it is open."
-Unknown
 
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!


Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 2/20/2009 10:34 PM (GMT -6)   
Also, your stoma is still shrinking. Sometimes mine would shrink in the middle of using a wafer. Meaning: if I applied the wafer on Mon., then the stoma seemed to be even smaller by Thurs. and sometimes that caused leaks. I also think my stoma is a bit larger after a warm shower (maybe that's just my imagination, but it seems like that).
I find that if I cut the hole to be very close to the stoma, the wafer lasts longer than if I leave the 1/8 in. like the ET nurse told me to do. I don't have it actually touch the stoma, just pretty darn close!
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 1/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
pred. taper, coumadin, carafate, prenatal vit., and pain meds
(ileostomy temporary....not so sure?)

"Things turn out the best for those who make the best of the way things turn out."


RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 2/21/2009 11:20 AM (GMT -6)   
I didn't get much helpful information from my nurses. They just kind of made sure I knew how to change everything and sent me home.

My stoma was not bright red in the beginning b/c it had a layer of funky skin stuff on it. I'm assuming most doctors may do a complimentary cleaning of this skin stuff, but mine didn't. My stoma is doing pretty good...but it hurts right now. Not really the stoma itself, but the area around it. Is that normal? I keep telling myself there's just cause for my discomfort b/c I do have a hole cut in my tummy and part of my organ has been pulled through, stitched in and is healing. : ) I would say that may cause some discomfort.

Anyway, it's all still pretty new, but I'm sure I'll get the hang of this soon!

Thank you guys!!!
: )  Robin
 
28 year old Mommy of a 1 year old and Wife for almost 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
 
"Your mind is like a parachute, it only works when it is open."
-Unknown
 
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!

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