so weak and can't eat

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sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 2/20/2009 11:27 PM (GMT -6)   
Saturday is my last eating day. I am on clear liquids for Sunday and Monday (surgery Tuesday). I get so hungry, start to eat, and then get nausea or just can't eat. Then, of course, it's huge D. Today, I got a waffle and had to force feed myself. Made a cup of pasta for clear broth and barely got a few Tablespoons down. Even let myself order some clamstrips--I had 12 and 1 chix strip. 2 oreos (they tasted good and I never have trouble with them). I'm guessing it's the anxiety about the surgery??

Today was the first day I really flipped about the whole appliance and life change. I've been trying to be strong.

Well, any thoughts of what to eat for Saturday?

Sunday I've got my green jello, chix broth, white grape juice, teas, popsicles, lollipops. Any other ideas?

I'm really getting scared and the weakness is making it worse. Thanks to you all for being here!!
24+ years with Crohn's/colitis; fistulizing crohn's; pentasa; started humira 7/1/08;codeine for D; sometimes supplements: MSM, e, selenium, C, B complex, multi, iron; recent meds to get through til surgery include propranolol and xanax


pepperann27
Regular Member


Date Joined Dec 2008
Total Posts : 147
   Posted 2/21/2009 2:28 AM (GMT -6)   
for me, I would eat my absolute favorite thing before the clear liquids. My favorite thing is Chinese food! Thats my idea
thanks, Dusti

Diagnosed with colonic inertia at 13 years old, had my colon removed.
Diagnosed with rectal inertia at 16 years old, had my rectum removed and had a jpouch made.
Diagnosed with small bowel inertia at 18 years old, and got an ileostomy wich I still have. I am 27 now.
If you want to know more, just ask me!


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 2/21/2009 7:32 AM (GMT -6)   

sammies--I am so sorry you are feeling so bad!!  Don't worry too much about eating a "favorite" right now, especially if it will make you sick...save those foods for the other side when you'll be able to eat things and they won't make you sick smilewinkgrin    Yes, you will be able to eat again, just hold on!

Those foods you listed sound perfect for clear liquids day...btw, this will be the LAST prep you will have to do!!  Can you eat saltines?  If you can just keep a little bit of something in your stomach at all times, you might not feel the nausea?...

Keep in mind that you will probably crave some type of food when you can eat again...I DEMANDED peanut butter and jelly on toast...and my wonderful nurse made sure it happened!  I then ate that until I couldn't stand it anymore.  Let your hubby know that he may have to fulfill your request for something weird tongue

Do you have any questions regarding the appliance?  Don't worry too much about it (easier said than done) you just have to know that things will be so much better is a few days.  Don't forget to bring slippers that slip to make getting out of bed easier smurf

:-)   :-) :-) :-) :-) :-) :-) :-) :-)


Miss UK
Regular Member


Date Joined Oct 2007
Total Posts : 128
   Posted 2/21/2009 2:05 PM (GMT -6)   
Wishing you the best of luck for Tuesday! you will be fine.  There are a lot of bonuses to having this operation just keep thinking posotive and you will get through   :-)
36 year old single mum to a 2.5 year old son
Suspected Crohns when 10 years ago had a very painful rectal abscess
Diagnosed with Crohns desease properly 6 years ago
2008 developed fistula bowel perforated onto bladder resulting in temporary ileostomy
hopefully a reversal around March 2009.


pepperann27
Regular Member


Date Joined Dec 2008
Total Posts : 147
   Posted 2/21/2009 2:23 PM (GMT -6)   
I hope your surgery goes well! Having a bag isn't bad at all, I've had mine for 9 years now
thanks, Dusti

Diagnosed with colonic inertia at 13 years old, had my colon removed.
Diagnosed with rectal inertia at 16 years old, had my rectum removed and had a jpouch made.
Diagnosed with small bowel inertia at 18 years old, and got an ileostomy wich I still have. I am 27 now.
If you want to know more, just ask me!
"Don't worry about failure, worry about the chances you miss when you don't even try"
 


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 2/21/2009 7:54 PM (GMT -6)   
Since you're having a lot of diarrhea and nausea, it sounds like you're having a Crohn's flare, which is making you unable to eat and weak. I remember those days, and they were not fun. sad
 
The good news is, the surgery is going to remove the diseased bowel, so you will not be sick like this anymore. The ostomy is going to be instrumental in making you healthy and is something that you will get used to. I promise!
 
Good luck on Tuesday. I'll be thinking about you and praying for you. Remember that this is the first step to a disease-free and healthy new life, and you're going to be just fine. :-)
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


finallyfree
Regular Member


Date Joined Aug 2008
Total Posts : 470
   Posted 2/22/2009 3:35 PM (GMT -6)   

Sammies,

Just want you to know that I'll be thinking of you on Tuesday and will keep you in my prayers.  :-)


 
 
Judy
 
spleen/appendix/gall bladder  removed/endometriosis/complete hysterectomy at 29/sinus surgery/numerous allergies & asthma/chronic kidney stones/ pancreatitis 3x's/2 knee surgeries-now need replacement/shoulder surgery w/ pins-which also froze following surgery/severe adhesions & scar tissue-stomach to chest-liver to ribs-colon to pelvis/severe IBS w/ constipation/subtotal colectomy 7/08-
 
Am now down from 17 meds a day to 8 and VERY healthy:)
 
There's always hope and things will get better :)


Pibbin
Regular Member


Date Joined Apr 2008
Total Posts : 163
   Posted 2/22/2009 4:24 PM (GMT -6)   
Being scared is so normal, if you weren't, that would be a problem. :) Know that you are going to feel a gazillion percent better after surgery, and you will deal with what you need to deal with. After a couple of weeks, you will be a pro with the appliance. You are several steps ahead of where I was before surgery, I was too chicken to even look at this board. I had it bookmarked, but just couldn't deal. Hang in there!!
Dx Mild Proctitis 7/06 at age 33, Dx Severe Pan Colitis 5/07, Dx Crohn's Colitis 10/07
Failed Asacol, Lialda, 6-MP, Canasa, Rowasa, Proctofoam, Entocort, Remicade, Humira
10/10/08 colon removed, temporary ileostomy
11/10/08 FINALLY off prednisone after 18 months
2nd of 3 surgeries planned for '09 to form j-pouch

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