Hi..I have a loop ileostomy (9/08) and I woke up this morning with a major leak (that's another story..lol) so I removed appliance and cleaned up in the shower. I noticed for the first time that there was stool coming from another
opening near the top of the stoma and not from the usual
opening at the end of the cylinder shape of my stoma. Is this normal?? I know that with a loop you have two
openings right?? But this is the first time that I have actually seen stool coming from this place. Also, it is almost flush where the skin is, so when I applied my new appliance, some of the paste got on the
opening and I wiped it off, but this is where my leak was originating from this morning...stool had gotten under the wafer at this spot. If I didn't get all the paste off the
opening, will this hurt?? Why is it coming out there after all these months, or has it before and I haven't noticed????
Diagnosed IBS 2000
Vaginal Prolapse Surgery 2001
3 Hernia Repairs, 2004
Repeat Vaginal Prolapse Surgery 2006 (the mesh from previous prolapse surgery had let go and fallen into my bowels)...
Removal of mesh from bowels (it was piercing holes all through my bowels and appendix and cecum, causing 2 fistulas and heavy bleeding vaginally and rectally)...mesh was removed, two pieces of large bowel removed and resectioned with a loop ileostomy. 2008
I have underlying connective tissue disorder (Ehlers Danloss Syndrome) which is the reason for the two failed surgeries)
Reversal surgery scheduled for end of March/09