I have a question....

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Roddiesgirl
Regular Member


Date Joined Oct 2008
Total Posts : 262
   Posted 2/22/2009 8:13 AM (GMT -6)   
Hi..I have a loop ileostomy (9/08) and I woke up this morning with a major leak (that's another story..lol) so I removed appliance and cleaned up in the shower.  I noticed for the first time that there was stool coming from another opening near the top of the stoma and not from the usual opening at the end of the cylinder shape of my stoma.  Is this normal??  I know that with a loop you have two openings right?? But this is the first time that I have actually seen stool coming from this place.  Also, it is almost flush where the skin is, so when I applied my new appliance, some of the paste got on the opening and I wiped it off, but this is where my leak was originating from this morning...stool had gotten under the wafer at this spot.  If I didn't get all the paste off the opening, will this hurt??  Why is it coming out there after all these months, or has it before and I haven't noticed???? confused Thanks guys!....Cheryl
Hysterectomy 1998
Diagnosed IBS 2000
Vaginal Prolapse Surgery 2001
3 Hernia Repairs, 2004
Repeat Vaginal Prolapse Surgery 2006 (the mesh from previous prolapse surgery had let go and fallen into my bowels)...
Removal of mesh from bowels (it was piercing holes all through my bowels and appendix and cecum, causing 2 fistulas and heavy bleeding vaginally and rectally)...mesh was removed, two pieces of large bowel removed and resectioned with a loop ileostomy. 2008
 
I have underlying connective tissue disorder (Ehlers Danloss Syndrome) which is the reason for the two failed surgeries)
 Reversal surgery scheduled for end of March/09


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 2/22/2009 8:19 AM (GMT -6)   
That happens...it depends how the wafer/flange is placed. Stool can get down there, it isn't a big deal, but that is probably why you had the leak...it can come back out. Just be prepared, if there was a lot that went down, it's going to come out the other end, too...

Your reversal is soon, but my doc put a couple stitches to close the lower hole, because I hated the stuff coming out my butt!!! Worked great, too:)

Roddiesgirl
Regular Member


Date Joined Oct 2008
Total Posts : 262
   Posted 2/22/2009 8:45 AM (GMT -6)   
Thanks for your reply Ohio, but now I am more confused than ever!!  What do you mean...your doctor put some stitches in the lower hole so stuff wouldn't come out your butt??  Maybe I'm being dense here, but I can't figure out what you mean exactly!!  Thanks..Cheryl

Hysterectomy 1998
Diagnosed IBS 2000
Vaginal Prolapse Surgery 2001
3 Hernia Repairs, 2004
Repeat Vaginal Prolapse Surgery 2006 (the mesh from previous prolapse surgery had let go and fallen into my bowels)...
Removal of mesh from bowels (it was piercing holes all through my bowels and appendix and cecum, causing 2 fistulas and heavy bleeding vaginally and rectally)...mesh was removed, two pieces of large bowel removed and resectioned with a loop ileostomy. 2008
 
I have underlying connective tissue disorder (Ehlers Danloss Syndrome) which is the reason for the two failed surgeries)
 Reversal surgery scheduled for end of March/09


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 2/22/2009 11:57 AM (GMT -6)   

the stuff that passes down the "lower hole" will come out one way or another...back through the hole (into your pouch) or pass through your bottom (aka bowel movement).  I hated the bm's and when I complained to my c/r surgeon, he suggested the stitches.  That it's not a big deal but if a patient doesn't want to deal with an occasional bm (they were unpredictable for me) the stitches could help.  I would have to have them done about every year since they do eventually fall out.

I hope that clears it up tongue


Roddiesgirl
Regular Member


Date Joined Oct 2008
Total Posts : 262
   Posted 2/22/2009 12:55 PM (GMT -6)   
NOW I got ya!!  Thanks Ohio....now it makes sense to me...lol.  I do get mucous passing rectally quite often, and usually just before I do I get that "gotta go" feeling. Probably I have passed stool from this other opening in stoma before and just not noticed.  I think I am being extra paranoid now cuz I don't want anything to screw up my reversal!  I am very anxious to have it done.  smilewinkgrin Especially after waking up to a mess this morning!!  Thank goodness none got on my bedding!!...Thanks again!....Cheryl
Hysterectomy 1998
Diagnosed IBS 2000
Vaginal Prolapse Surgery 2001
3 Hernia Repairs, 2004
Repeat Vaginal Prolapse Surgery 2006 (the mesh from previous prolapse surgery had let go and fallen into my bowels)...
Removal of mesh from bowels (it was piercing holes all through my bowels and appendix and cecum, causing 2 fistulas and heavy bleeding vaginally and rectally)...mesh was removed, two pieces of large bowel removed and resectioned with a loop ileostomy. 2008
 
I have underlying connective tissue disorder (Ehlers Danloss Syndrome) which is the reason for the two failed surgeries)
 Reversal surgery scheduled for end of March/09

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