Hi Sammies. I came home from the hospital on Tuesday, and have been too out of it to post anything. I am sorry you have so much pain. My doc gave me vicodin with tylenol and told me I could take one every 4 hours, or two every 6 hours. I only took two a couple of times because they knocked me over, but can you call someone to increase your dosage of pain meds, or give you something else? Today I haven't taken any pain meds. for the first time, and my surgery was on the 19th. As far as eating goes, if you are nauseous I would think you would want to stick to crackers, toast, tea, maybe some applesauce? I have been somewhat cautious with my food choices..... kind of the same diet I followed when I was flaring. I have added smooth peanut butter, cream cheese, and today I had some string cheese. I have been sticking with soup, toast, toasted bagels, canned peaches, and fresh bananas. I have eaten some cheese spinach raviolis and oatmeal, too. I also have been drinking an ensure a day, because I am so skinny after this process, and figure the protein will do me some good. When I saw my surgeon on Friday, he told me there were no restrictions on what I could eat. This information doesn't agree with what the stoma nurse gave me, and I told him I was too afraid to try just anything. He did say to try something new each day (string cheese today). Hang in there. You do need to get your pain under control, so your body can heal. We will get through this with the help of all the amazing people on this site!
sammies--I am so sorry you are having such pain The first thing you have to do is get ahead of the pain AND stay ahead of it. Start by taking the max dose per the allotted time period (if it is two pills every four hours, do that 3 times) and see how things are after that. My proctocolectomy experience was more difficult than I expected and I was taking 2 vicodin EVERY 6 hours for TWO WEEKS...but I needed to and once I was able, I started cutting back to 1 pill than just 1 pill only am and pm than only 1 pill pm until I could live with the discomfort (no longer painful)...you could do a similar "step down" to your activities/life...don't worry about addiction as long as you know when your body doesn't need them anymore you taper until you don't take them anymore.
Your body WILL heal better when you are comfortable...and not in constant pain.
With all that, you MUST eat. Make sure you are eating protein to help with the healing process...I craved peanut butter and jelly and ate that for breakfast/lunch/dinner during the first 2 weeks at home...is there something that you are craving? Make sure you take any meds with food...crackers if that is all you are interested in...but your body won't start feeling better until you nourish it with food and water!!
You will start to feel better, I promise. I know that doesn't sound like much right now, but I've been there, too, and everyday is BETTER than the one before.
Do you have a home health nurse coming in? When is your follow up? Were they able to do your surgery laproscopically like they thought? Okay, enough questions from me...You are okay and you will not believe how much better things will be in a week...hang in there
I am so so so sorry to hear about your pain issues!!! I can completely relate. My surgeon is a shmuck and Rx a lesser dosage of vicodin that what I had during my open wound issues. So that was a joke.
I called my GI nurse for help b/c I just don't like my surgeon's office (who didn't end up calling me back till the end of the day instead of right away, and they knew I was in extreme pain). Anyway, my GI nurse is absolutely amazing. She called in a stronger Rx of vicadin and oxycodone (sp)...well, that was was faxed and then mailed. Anyway, I took two of one and then two hours later took two of the other. I did this strictly for two or three days. Then I kind of lengthened the time to three to four hours...then I started taking just one of each every two hours until I quit the oxycodone all together and took the vicodin.
I had my surgery three weeks ago yesterday, and I still take my lower dose of vicodin every so often. Normally after a day of being out and about I take it while I'm out. Last night after be out and about I was super sore so I took the oxycodone before bed.
I will tell you that I've had a hard time adhearing to the lifting rules...and just the overall relaxing. I'm sure that had I been better at the resting part I wouldn't hurt around my stoma. I think I sprained my muscles and harmed areas that were seriously traumatized...so now my tummy is just super pissed b/c I had been using my stomach musles.
But I'll tell ya...just having the UC gone gives me the feeling that I conquer the world! I am very excited about going back to work and start back to my chores and basic daily responsibilities. I'm really not one to lay around AT ALL!!!
I wish you the best of luck, and please do contact someone about a higher dose of vicadin. My low dose was 5/500 and my higher dose I think was 7/750 or something like that...I know the first number was 7. The oxycodone really made a HUGE difference.