Reversal Advantages?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

inkboom
New Member


Date Joined Feb 2009
Total Posts : 8
   Posted 2/28/2009 6:33 PM (GMT -6)   
Hi everone,

Im 19 years young and had an end-ileostomy just 3 months ago. My doc says hes willing to reverse it (give me the pouch i understand) next sumer if im willing, so i came here for help..

I was diagnoses with UC over a year ago and finally had an emergency operation to have total collectomy and of course, ileostomy. I am very cool about my stoma, which we named "Lee." So its the the social thing im worried about. I want to here from anyone whose had a reversal about other advantages. I heard one can go to the toilet up even 10 times after reversal, but i dont know how real that is, so i really need someones help before i make this big decision.

Also, more importantly, after how long after surgery do u recommend exersise, for those who do sports. I (used to) do gymnastics, skateboarding, football and badminton) From your experiences, do u realistically think i can keep doing these things? competitively? thanks A LOT!

Thanks a lot bros (and sis' ;)
Essam

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 2/28/2009 6:54 PM (GMT -6)   
welcome to the site...you could also check out jpouch.org for some info on j-pouches...I am sure someone will be along with info on frequency and things following a pouch connection...Glad to hear you are doing well with your ileo:)

What has your doc said about your sports? You can do anything you want with an ileo, but contact sports might be a little over the top...

inkboom
New Member


Date Joined Feb 2009
Total Posts : 8
   Posted 3/4/2009 2:07 AM (GMT -6)   
Hey.
My doc says i should be able able to do everything again, but i was worried about getting a parastomal hernia if i exersize my abs too much.
Im sure contact sports are dangerous, but what about gymnastics?

NEsailor
Regular Member


Date Joined Mar 2009
Total Posts : 31
   Posted 3/4/2009 5:25 AM (GMT -6)   
If you are talking abs/core, stronger is better for all reasons. You can't WORK them until you have healed fully. But that said having strong muscles supporting the surrounding area beats ones not getting used. Also helps with back issues. Get an image of beer gut (figured I'd get a universal, not ostomy specific image!) sagging. It pulls the back forward from the weight. And long term this can hurt!

Since having the surgery I've done a lot of activities and sports .. including ones I hear I shouldn't have done. eyes Used to be a heavy weight lifter - think 300# squats. I JUST read in the past month I shouldn't have been doing that ... 10 years ago. Go figure! I teach fitness part time and hold multiple certifications. I know other ostomates who are very active. Would I avoid contact sports ... yes. Gymnastics? Depends on what you do - AND being healed fully. And keeping your medical types in the loop before you start something.

I figured my surgery gave me a second chance to live (literally from what they told me would have happened otherwise) so I have!

inkboom
New Member


Date Joined Feb 2009
Total Posts : 8
   Posted 3/4/2009 7:12 AM (GMT -6)   
Thanks a lot for the advice. Yeah man, it gave me a second chance too because "they" told me the same thing otherwise haha. Its not about what i can't do anymore its more about the tons of oppertunities its opened my eyes to now. I was just curious about when and to what degree i should workout my abs. I did tumbling, like back flip and front flips which work out the shoulders and hips but also the tummy. Btw, do you think 6 months is good enough rest? Thanks again and live up life man!!!

lipgloss
Regular Member


Date Joined Jan 2008
Total Posts : 70
   Posted 3/4/2009 7:58 AM (GMT -6)   
hi Essam, congrats on your first step to recovery.
i had a reversal on 16/12/08, i am alot better and have started the gym, only running not like you, i would only advice not to do too much too soon. like you i was worried about hernia's so i made sure i did no chores, got a cleaner and family helped out, cos if you look after yourself than you will be able to do other things.
as far as the ileostomy goes(i had mine done on the 24/01/08)i was really happy with mine, i had UC for 7 years so my life had changed, i had a planned surgery, they got it on time other wise i wopuld have had to have an emergency. my doc wanted to do reversal last summer, but i was so wishing to spend time with my children, feeling scared of the surgery, but i would definetly recomend it. you know no one knows wat lys ahead so don't think of wat if, as you know anything can happen and wat happens to one person doesn't have to happen to the next.

as far as going to the toilet goes i now go between 4-7 times but thats early days and to be honest i'm very happy as long as a can wait to go, i'm happy. but always expect the worst then everything seems better.

sorry can't help you on the sports. but good luck and always remember everyone here is there for help. they really helped me thru my surgeries.

tc

samie xxx

lipgloss
Regular Member


Date Joined Jan 2008
Total Posts : 70
   Posted 3/4/2009 8:00 AM (GMT -6)   
Essam i justed checked the tyme of your last message.
are u from the U.K?

SAMIE

NEsailor
Regular Member


Date Joined Mar 2009
Total Posts : 31
   Posted 3/4/2009 3:05 PM (GMT -6)   
Back to the start .. the reversal part I can't tell you about ... I had the one surgery and that was that. Dead wasn't an option I was up for (I hear it's a big rush .. but only once!) so the surgery was the end. Who KNOWS if it was being done in the 21st century what I might have chosen!

Tumbles and flips .... I'm going to defer to the medical professionals who will oversee your healing time wise, as every body's body acts differently (that unique thing, yah know?). Once healed and approved? As long as you are comfortable trying it - baby steps, please first - and no one said 'that will destroy all the good work, doing that!' ... it is then a trial and error of what your body will go for. You have the youth advantage on your side. And also 'muscle memory'. Your body once knew how to do things .... allowing for the damage and healing of some of them during the surgery ... you can relearn how to do many things. And the body will adapt.

I might shy away from bungee jumping ... but that's me! Seriously though I can't think of much I wanted to do that I haven't been able to over the years.

inkboom
New Member


Date Joined Feb 2009
Total Posts : 8
   Posted 3/4/2009 3:15 PM (GMT -6)   
Hey Samie

Thanks for that it makes me a little more confident in the option to reverse. I was studying in the University of Manchester (first year) when i had a flare and was hospitalised, Had operation in November, and since then have been recovering in Abu Dhabi, UAE, with my family (which helps a lot haha). I look forward to finish my studies in Manchester as soon as i recover:)

Essam

2 RIS K
Regular Member


Date Joined Aug 2008
Total Posts : 367
   Posted 3/4/2009 4:51 PM (GMT -6)   
Essam, I had a reversal December 15, 2008 and as of yesterday my doctor told me I could start weight training again at my own pace. Four weeks ago she told me I was able to start a walking regimen and now I can go back to my work out routine - slowly. It hasn't been that long since surgery. My doctor said if there are no other problems I can do whatever I want at my own pace, but just to be careful and go slow, see how it feels.

I only had the ileostomy for two months but I'm glad I don't have it anymore and I only go to the bathroom about 2-3 times a day and on a "bad" day I might go 4-5. But it's not like you think, it doesn't take me any longer to do that than it does to pee and it is never urgent. I don't spend my days searching for bathrooms everywhere I go either. As a matter of fact, I don't even think about it.

I just wanted to give you my experience...if you have any questions let me know. I hope I helped.
Amanda
35 years old
Chronic Lifetime Constipation
Diagnosed IBS - 1995
Rectal Prolapse - February 2007
Rectosigmoid Colectomy w/low anterior Anastomosis - March 13, 2007
Diagnosed with Colonic Inertia - June 08
Total Colectomy - September 22, 2008
Temporary Ileostomy due to small bowell perforation Septepmber 29, 2008
Ileostomy Reversal - December 15, 2008
Multiple Small Bowel Abscesses-December 22, 2008
Leak at original Anastamosis -December 25, 2008
JP Drain removed - January 23, 2009
 
The whole world is at your feet; so paint your toenails Red!
 


tbraz
Regular Member


Date Joined Jul 2007
Total Posts : 280
   Posted 3/4/2009 10:59 PM (GMT -6)   
The 8-10 bathroom trips is correct, 2-5 would be lucky for those of us with UC. I would also advise to go to jpouch.org and you will see a wide variety of experiences, some good, some bad, some horrible. I think that it's the best way to see what life "could" be like in any situation, but realize that you probably won't have any complications. I am one that wants to know what I am getting myself into and we all know that surgeon's don't tell you everything. They didn't tell me about "butt burn" or the chance of chronic pouchitis which I've dealt with, but I will also say that I can live like this and do everything I did before surgery.

It sounds like your next surgery would be the creation of the pouch and takedown all in one step? This is considered a major surgery and I would think that the no lifting anything heavier than 10lbs would apply for at least 6 weeks. I wouldn't worry about how soon you can get back to heavy sports, just know that you will and you should take your time as to avoid a hernia.

Hope you can find the answers you are looking for and good luck if you have another surgery!

smilewinkgrin
Theresa

Originally diagnosed with CD in 1991
Now saying "Undetermined Colitis"
3 step Jpoucher as of 4-15-08

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, October 23, 2017 11:29 AM (GMT -6)
There are a total of 2,886,092 posts in 316,671 threads.
View Active Threads


Who's Online
This forum has 157775 registered members. Please welcome our newest member, Badbackbarry.
943 Guest(s), 18 Registered Member(s) are currently online.  Details
countingstarsx, aphysicalwreck, Melissa D., AndLo, Dahlias, Rikky1, Aggiemom98, Dogdays, hogo2000, Skypilot56, CM., NiceCupOfTea, FlowersGal, Sheeks175, gabybee, mareish, Munchmom, k07


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer