supplements after surgery

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glaciergrl
Regular Member


Date Joined Apr 2005
Total Posts : 269
   Posted 3/2/2009 9:08 PM (GMT -6)   
I was curious, after proctocolectomy what are people taking for supplements/vitamins/minerals?
 
I have heard many different things! I'm just wondering what everyone here is doing. I absolutely LOVE the all the advice I am getting just by reading posts, especially the recent ones from smurf !
 
Thanks for your time,
Holly
25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 3/2/2009 10:11 PM (GMT -6)   
i try to remeber to take a b complex vitamin and a multi vitamin. but i usually forget, lol.

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 3/3/2009 6:47 AM (GMT -6)   
I take a Flintstone's everyday (doc's suggestion)...yummy...and a B-12 shot bi-monthly.

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 3/3/2009 7:41 AM (GMT -6)   
Same as summerstorm... B-50 Complex and Centrum multivitamin
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5691
   Posted 3/3/2009 8:10 AM (GMT -6)   
I have a jpouch and take a probiotic for that; Forvia multivitamin (made for those with IBD), and calcium citrate. I took all of these pre-surgery so I really haven't added anything new to the mix.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 3/3/2009 8:18 AM (GMT -6)   
I take a multi vitamin, and give myself a B12 injection bi-weekly (and have done so since 1984). As I have gotten older, I have added additional Vit. D (separate unrelated issues - my system is not absorbing Vit D).
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


glaciergrl
Regular Member


Date Joined Apr 2005
Total Posts : 269
   Posted 3/3/2009 10:31 AM (GMT -6)   
suebear, is it recommended to continue a probiotic with a jpouch?
25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5691
   Posted 3/3/2009 1:45 PM (GMT -6)   
It can't hurt. It's believed that pouchitis is caused by bacterial overgrowth. By keeping a constant stream of probiotic in the system it's thought you can keep pouchitis at bay. I have had my pouch for 8 years and have not had pouchitis so there might be something to this theory. However, I recommend you take only those that are considered "good" probiotics. FloraQ, Risquad, or Culturelle are best.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 3/4/2009 8:22 PM (GMT -6)   
summerstorm said...
i try to remeber to take a b complex vitamin and a multi vitamin. but i usually forget, lol.
Same here! I'm my own worst enemy!

glaciergrl
Regular Member


Date Joined Apr 2005
Total Posts : 269
   Posted 3/4/2009 10:19 PM (GMT -6)   
Thanks suebear, I will look into that.
25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006


vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 3/4/2009 11:12 PM (GMT -6)   
I just wanted to add that in '04 when I had my colostomy turned into an ileostomy and they removed my terminal ileum, the doctor advised that I get B12 shots evry month. I did that until I moved to Georgia 3 years ago. Thinking that I should start getting them again, my current GI tested my B12 levels and they were fine. I guess I never needed them all along. Please bear in mind that, in my case, it's possible they left just enough of my terminal ileum to get the proper absorption. I WOULD recommend having your B12 levels checked to see if you really need to take any vitamin injections. I found it was a hassle getting those shots every month, especially once I found out I never really needed them.
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