had iliostomy 10-19-08

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meadowlands
New Member


Date Joined Feb 2009
Total Posts : 3
   Posted 3/5/2009 12:16 PM (GMT -6)   
I am getting prepared for reversal surgery.  They want me to have a barium enema prior to meeting with the repair surgeon.  Prior to the barium enema I have to do a clensing the day before.  I am very confused.  Shouldn't they be doing a cat scan?  I don't understand the enema thing when my intestines are no longer attached to my butt.  Hope someone can answer my question because I am so very confused.

Roddiesgirl
Regular Member


Date Joined Oct 2008
Total Posts : 262
   Posted 3/5/2009 12:56 PM (GMT -6)   
Hi!  Perhaps each doctor is different, but I am having my reversal on Monday (Mar 9) and I don't have to do any prep at all!  I just have to not eat after 10 pm the previous evening and nothing by mouth at all after that.  I had a cat scan last month to check if things were ok to proceed with surgery and also a flexible sigmoidoscopy last Friday to check on things from the other end...I had to self administer an enema for that just to clean out any mucous but other than that its all I had to do.  I hope u can get some answers and some peace of mind over this...best of luck to you!!.....Cheryl

Hysterectomy 1998
Diagnosed IBS 2000
Vaginal Prolapse Surgery 2001
3 Hernia Repairs, 2004
Repeat Vaginal Prolapse Surgery 2006 (the mesh from previous prolapse surgery had let go and fallen into my bowels)...
Removal of mesh from bowels (it was piercing holes all through my bowels and appendix and cecum, causing 2 fistulas and heavy bleeding vaginally and rectally)...mesh was removed, two pieces of large bowel removed and resectioned with a loop ileostomy. 2008
 
I have underlying connective tissue disorder (Ehlers Danloss Syndrome) which is the reason for the two failed surgeries)
 Reversal surgery scheduled for March 9/09


meadowlands
New Member


Date Joined Feb 2009
Total Posts : 3
   Posted 3/5/2009 4:09 PM (GMT -6)   
good luck with your repair surgery. I would seriously like to know how everything is going. I still don't understand why they want a barium enema. I wish I could get out of it. My sister had a barium enema and was put into the hospital for 3 weeks after just to clean her up wich resulted in her iliostomy surgery. I wish I knew who to call, and or if any doctors really care.

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5691
   Posted 3/5/2009 4:34 PM (GMT -6)   
It might help to know why you originally had surgery and what your surgery was for? This board has people who have had surgery for UC, Crohn's, diverticulitis, and colonic inertia. Surgeries are different for the different ailments. You haven't shared much information but I do understand your frustration. It could be that the nurse got the information mixed up. I have noticed in my case that sometimes nurses give me prep directions for a person with a colon and I don't have a colon so I don't have to follow those directions. Let us know more so we can assist you.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Roddiesgirl
Regular Member


Date Joined Oct 2008
Total Posts : 262
   Posted 3/5/2009 5:00 PM (GMT -6)   
Yes I totally agree...when I was sheduled for my cat scan they told me I would have to drink this stuff the night before..I didn't see the sense to it because with an ileostomy everything passes through really quick.  I called and questioned them about the necessity of it and once they realized I have an ileostomy (should they not have already known that???), they told me to never mind,  I wouldn't need to drink the stuff!!...It doesn't hurt to question things if you are not sure.  It's better for you if you do ask questions...Cheryl

Hysterectomy 1998
Diagnosed IBS 2000
Vaginal Prolapse Surgery 2001
3 Hernia Repairs, 2004
Repeat Vaginal Prolapse Surgery 2006 (the mesh from previous prolapse surgery had let go and fallen into my bowels)...
Removal of mesh from bowels (it was piercing holes all through my bowels and appendix and cecum, causing 2 fistulas and heavy bleeding vaginally and rectally)...mesh was removed, two pieces of large bowel removed and resectioned with a loop ileostomy. 2008
 
I have underlying connective tissue disorder (Ehlers Danloss Syndrome) which is the reason for the two failed surgeries)
 Reversal surgery scheduled for March 9/09


Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1245
   Posted 3/6/2009 5:50 AM (GMT -6)   
With an ileostomy you should NEVER drink the prep - it can severely dehydrate you (I've know ileostomates who have had to go to the ER for emergency fluids because of it). 24 - 36 hours of clear fluids is usually sufficient. I've argued before with health professionals about it but they stick to their 'bowel intact' guidelineswhich is what they're used to, so, regardless of what they've said, I have always just done 24 hours of clear fluids and I'm always cleaned out enough for any procedure.
I have had an ileostomy for 33 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!

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