I am worried that...

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jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 3/9/2009 6:02 PM (GMT -6)   
I will have the colectomy then jpouch and then I will still be sick. Isn't that weird?
I have been soooo sick and in so much pain that I feel that even the colectomy will not cure it.

Why do I feel that way?

What does it feel like right after the surgery? Do you feel differently ( besides the pain of course)


Thanks
Jackie, 43
Pancolitis, DX October 06

Lexapro, Colazal 3x3, Synthroid, Protonix, 6MP (100 mg)
Severely Anemic
Prednisone 20mg, Iron, Vitamin D
Surgery almost certain


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 3/9/2009 6:53 PM (GMT -6)   

Jackie, you are not alone. I used to think that, too, because nobody ever told me that I would actually feel good after surgery. That's the main reason why I avoided it for so many years. Had I talked with someone who had had the surgery and could tell me that I was going to feel good after it, then I probably would have done it much sooner. That's why this site is so wonderful! I felt disease-free right after surgery and have felt that way ever since. :-)


Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 3/10/2009 7:41 PM (GMT -6)   
I KNEW I was better right after my proctocolectomy. I know Crohn's is never cured, but I knew the nasty stuff was gone and couldn't believe it...there is a recovery period, but that is a different "pain" and does get better daily.

I think anyone who lives with UC/Crohn's is sick for so long, we lose ourselves for a little while, and doubt every decision...it's a normal feeling to think it's not going to change...but it will.

jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 3/10/2009 7:58 PM (GMT -6)   
Thanks for the reassurance. I do feel like I am lost in this and it is hard to think something good could happen....
Jackie, 43
Pancolitis, DX October 06

Lexapro, Colazal 3x3, Synthroid, Protonix, 6MP (100 mg)
Severely Anemic
Prednisone 20mg, Iron, Vitamin D
Surgery almost certain


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5692
   Posted 3/11/2009 7:55 AM (GMT -6)   
This is normal for any type of surgery due to chronic illness. It's hard for you to imagine a life without health problems-yes it happened to me too. I think when you awake from surgery and feel that sensation, that we all do, that UC is gone will help you to get passed those worries. It's been 8 years since my surgery and I have not needed a doctor for anything other than a case of rhinitis a few years ago. I have never seen my GI and only have an annual physical. I take no prescription medications and my GP is envious of my excellent CBCs. Who would have thought that I would have gone from 22 pills per day to perfect health? It will happen.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


NEsailor
Regular Member


Date Joined Mar 2009
Total Posts : 31
   Posted 3/11/2009 5:10 PM (GMT -6)   
Ditto, here. I had NO idea how sick I was until I started healing up after the surgery.

jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 3/15/2009 4:08 AM (GMT -6)   
Yeah feeling differently today- a lot of gas but now super painful. walking and sitting in the chair a lot. Hopefully surgeon wil come in today even though it is Sunday.
Jackie, 43
Pancolitis, DX October 06

Lexapro, Synthroid, Protonix,

Prednisone40 mg- tapering slowing, Iron, Vitamin D
Surgery March 13th- total colectomy ( first step)
2nd step in about 3 months
3rd step in about 6 weeks after that


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 3/15/2009 5:50 AM (GMT -6)   
Glad things went well...everyday gets better! Keep walking, even if you are sick of it, it will get your guts to wake up and move so you can feel better. Take the pain meds so you stay ahead of the pain! You should see the surgeon or his "side kick" everyday...

Let us know how things are going:)
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