I almost felt "normal" tonight

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moreglorydays
Regular Member


Date Joined Feb 2009
Total Posts : 38
   Posted 3/13/2009 10:13 PM (GMT -6)   
Hi all.  This evening I met with four of my girlfriends, had a glass of wine, and almost forgot I am in an altered state.  Then, my husband took me to dinner with a group of his colleagues.  It has been three weeks since my surgery, and it felt good to be out on the town.  This was the first time I had to empty my appliance in a public restroom.  It was interesting, but not impossible.  I actually had to empty twice - once while with the girls, and once after dinner.  Gosh, I feel like I am growing up and going through the rites of passage.  It was interesting looking at menus and trying to decide what would be "safe" to order.  I never knew so many things had mushrooms in them (which I love)!  It was really nice to have a glass or two of wine.  I think I am beginning to see the light at the end of the tunnel.  After being house bound for so long - since the beginning of January - I loved being out among the living.  Just thought I would share my wine induced euphoria with you.
scheduled for permanent ileostomy surgery 2/19 proctocolectomy with permanent ileostomy 2/19
tried asacol, rowasa, remicade, humira
currently on 40 mgs.10 mgs. prednisone, 20mgs and tapering every ten days
51 years young


RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 3/13/2009 10:38 PM (GMT -6)   
I know what you mean!
 
Getting out and about and not having to plan for a possible emergency is AMAZING!  I'm going to post my 'thoughts' from this week, b/c seemingly I've had quite a few.  tongue
 
I'm so happy that you're out enjoying life and able to 'live' again.  I am in the same boat and enjoying EVERY MOMENT!!!
 
Glad to hear you're also enjoying the wine and finer things in life!!!
 
smurf  
: )  Robin
 
28 year old Mommy of an amazing 1 year old and Wife for 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
 
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
 
"Your mind is like a parachute, it only works when it is open."  -Unknown


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 3/13/2009 11:50 PM (GMT -6)   
YAY glad you had a good time, isnt' it awesome to finally get to have fun again???

Unless you are allergic to them or something, after a few weeks you should be able to eat mushrooms. they can just give you more gas, so take some gasx with them.

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 3/14/2009 6:16 AM (GMT -6)   
Congrats! you'll be able to eat mushrooms soon...just eat a small amount and chew twice as much as you would anything else!

Glad you were able to have fun!!

NEsailor
Regular Member


Date Joined Mar 2009
Total Posts : 31
   Posted 3/14/2009 7:01 AM (GMT -6)   
You ARE normal! We are all normal here. It's a relative term anyway.

Glad you got out. It IS a little freaky at first after however long your body functions consumed you (or if you were house bound and hospital bound for almost two months until the surgery as I was) to be out in public. Once you heal you can pretty much do anything. The only people who will know are the ones you tell.

sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 3/14/2009 9:15 AM (GMT -6)   
awesome to hear! Please keep us posted--you have given me hope! I can't wait to have a glass of wine--actually, I really want a frozen margarita--and to feel "normalish."

Went out to lunch and then spent an hour in the library yesterday--real low key. Just good to have a change of scenery.
24+ years with Crohn's/colitis; fistulizing crohn's; ileostomy and proctocolectomy; propranolol and xanax; been on a ton of crohn's meds; praying to get through each day.


moreglorydays
Regular Member


Date Joined Feb 2009
Total Posts : 38
   Posted 3/14/2009 9:45 AM (GMT -6)   
Thanks everyone! NEsailor you are right, we are normal and it is a relative term. I just have to get more used to my new "normal." Considering how diseased my colon was, this new normal is definitely a better normal. I do have to remind myself that I do not know what kind of issues other people I see out and about are dealing with.

It is good to know that one day I will be able to eat mushrooms. I am still quite paranoid about the "things that can cause a blockage" list. I guess as time goes by I will become more brave.

Sammies, it is good to hear that you were out and about. Getting out of the house, even for a walk, does wonders for my mental state. Yesterday was the first time I drove since my surgery, and even that bit of independence was refreshing......and I didn't have to turn around and go back home because I was on the verge of a "bathroom emergency" for a change. Hooray!
scheduled for permanent ileostomy surgery 2/19 proctocolectomy with permanent ileostomy 2/19
tried asacol, rowasa, remicade, humira
currently on 40 mgs.10 mgs  5mgs. prednisone, 20mgs and tapering every ten days
51 years young


tkctwbd
Regular Member


Date Joined Dec 2007
Total Posts : 82
   Posted 3/14/2009 10:15 AM (GMT -6)   
I am so happy for you. I look forward to getting out socially in near future myself. Thanks for the positive report!

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 3/14/2009 2:06 PM (GMT -6)   
lol i was petrified of the blockage list! And i followed that diet to the t for the first 6 weeks, and it took me forever to even get comfotable eating other stuff!
But you will get braver.
OOO and if you are gonna go out and drink, try some firefly with lemonade. thats some good stuff.

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 3/14/2009 2:34 PM (GMT -6)   

Moreglorydays ~ I'm so happy you had a night out on the town! :-)  Isn't it great to be driving again? There's no stopping you now!

Summer ~ Firefly and lemonade, you say? Hmmm... I think I should give it a try, since I still need to get over this stinkin' head cold! wink


Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


NEsailor
Regular Member


Date Joined Mar 2009
Total Posts : 31
   Posted 3/14/2009 4:12 PM (GMT -6)   
MGD, I recall that 'first' drive afterwards. So liberating.

More ah .... 'interesting' was the first attempt at jogging! I lost 50 odd pounds during the month I was in the hospital (which I needed to lose!). And with the new (and improved in SO many ways) body, I wanted to start getting back into shape. So walking was approved from the beginning. And about two months or so (less?) I was ok'd to TRY jogging, and warned about maybe needing some support. Support what? A girdle? (EEEEK I just turned 30 back then). Compression shorts? Then how was the stuff supposed to get out if ... well anyway, you get the idea. So I figured I'd just give it a shot. Now, as most of you know one is pretty much cut from gizzard down in this procedure ..... and dumb me is trying to bounce these muscles around. Good for about three steps maybe! OWWWW. But being a pig head, I tried a few more. More ow. And walked home holding up my poor, sad, stretched out, cut up tummy with both hands! However, also being a pig head, as noted before, I kept at it. The muscles got stronger, I got stronger, things healed. And life did progress! Each victory is new and special for every one of us. Savor them all!

And Sammies - that first margarita is wonderful! (let someone else drive!)

Miss UK
Regular Member


Date Joined Oct 2007
Total Posts : 128
   Posted 3/14/2009 4:27 PM (GMT -6)   
Thats just fantastic! here's to many more good times :-)
36 year old single mum to a 2.5 year old son
Suspected Crohns when 10 years ago had a very painful rectal abscess
Diagnosed with Crohns desease properly 6 years ago
2008 developed fistula bowel perforated onto bladder resulting in temporary ileostomy
hopefully a reversal around March 2009.


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 3/14/2009 7:02 PM (GMT -6)   
MGD,

So glad to hear that you are up and about... You and Robin and the others should start a TOPIC that keeps us up to date on your "firsts" since surgery.... like your experience at driving for the first time and not having to rush back for a bathroom pitstop, etc. It would be a good thing for others to read that are going into surgery. Just a thought.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


moreglorydays
Regular Member


Date Joined Feb 2009
Total Posts : 38
   Posted 3/15/2009 9:18 AM (GMT -6)   
Peggy, that is a good idea. I see Robin has started such a thread. I hope I will be able to add positive comments to it in the coming days.
scheduled for permanent ileostomy surgery 2/19 proctocolectomy with permanent ileostomy 2/19
tried asacol, rowasa, remicade, humira
currently on 40 mgs.10 mgs  5mgs. prednisone, 20mgs and tapering every ten days
51 years young

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