Just Some Thoughts...

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RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 3/13/2009 11:00 PM (GMT -6)   
I've had a some thoughts this week...but just haven't really taken the time to post.
 
1)  I'm not sure how I feel about the Activia commercials.  I actually think it's a little bit of jealousy that people have 'irregularity' issues regarding the lack of going...I wish that would have been remotely my problem.  I think to myself...'she has her colon...and she feels super good by eating that nummy treat...I had to take a couple dozen pills and infusions to attempt a feel-good state...she sucks.' 
 
I also find myself just observing women my age every so often out in public and think to myself...'she has her colon I bet...I'm sure she's not thought about what life would be like without...she sucks.'
 
:-)    See the pattern?  So, I've concluded that I have...
 
Dun-dun-dun-DUN...
 
Colon Envy!!!  yeah    
 
Granted, I really do not feel the jealousy regarding the ability to poo again...but I think I'm just a little resentful right now b/c I've suffered a great deal, and now that I'm feeling better it's kind of like...'What?  No consulation prize?'  smilewinkgrin
 
 
2)  I'm feel very disappointed with the Adapt lubricating deotorizing stuff.  I was really hoping it would be great to have while out of the house for the day, work and night class.  However, today I learned it doesn't necessarily clean my accessory better, nor does is deotorize as well as the M9.  Such a let down.  I rinse my accessory with a water bottle each time I empty it at home...so when it public or at work or school I really do not want to take the time to put water in the bottle and go about my normal routine.  I was so hoping the lubricating stuff would be great.  Is there another brand that works well?  I LOVE the M9...I just wish is were lubricating or something.
 
 
3)  I'm finally feeling more like me.  I'm going to wait about a week or two before working out at the Y a few times a week, and this week I'll start with my little home workouts.  My stoma has shrunk more, and it doesn't hurt anymore.  I'm able to be more active with my son and I'm almost doing everything I was before the surgery and more!  It's AWESOME!!!  I totally broke the lifting rules, but with a week and a half on bedrest and really light activity I was almost as good as new!  I just get really exhausted easy...but oh well...I have no pain...and I get to do things I had figured I'd never be able to to again!!!  I love being UC Free!!!
 
 
4)  I about peed my pants today and I LOVED IT!!!  I'm sure you can understand that with super angry UC or CD the urge to pee was far and few between b/c we were in the bathroom all the time for our disease issues.  My bladder never really had the opportunity to fill up!  So, today I drank an entire super huge cup of tea (from Subway) with my lunch, and continued to sip on another one on our trip to KC.  Half way there I had to use the powder room super bad, but my son was sleeping and if we slowed down (we were on the interstate) or opened a door he would wake up and be a little cranky b/c his nap wouldn't have been all in.  SO...I decide to wait until we're closer to our destination.  I almost make it, but requested my husband take me to the nearest facility be it a fast food establishment or a gas station...the closest available had to have been the oldest Taco Bell in Kansas...seriously...the looks, decoration and smell took me back to the late 80's and early 90's...Taco Bell has always been my favorite fast food (next to Taco Johns...yum!). 
 
Anyway, aside from my rambling, I loved the idea that I had to pee as bad as I did and there were no bm issues!!!  WOW!!! shocked
 
 
5)  It's been five weeks today since my surgery!  Whoo-Hoo!!!
 
 
6)  I am a control freak and really like routine and schedule.  Now that I'm getting my game back we are slowly starting a routine for our son and ourselves!  I LOVE IT!!!
 
 
7)  I forget I have my ostomy all the time.  I only remember that it's there if I happen to hear the plastic of the bag or feel the pressure on my tummy b/c i'ts getting full.  It's been so long since I've felt normal and stress-free regarding medical conditions.  I'm just so happy...so appreciative...and just so much more like 'me'...it's AWESOME!!!
 
smurf  
: )  Robin
 
28 year old Mommy of an amazing 1 year old and Wife for 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
 
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
 
"Your mind is like a parachute, it only works when it is open."  -Unknown


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 3/13/2009 11:48 PM (GMT -6)   
YAY!!!!!!!
So glad you are happy! it doesnt take logn to forget you have it, lol.

I noticed the peeing thing too and that makes sense as to why it is so much worse. Also of course we have to drink more too.

Those yogurt commericals, i have a thougt about them. If 70% of your immune system is in your intestines, then we are now missing that 70% or our immune system. HOWEVER the commercial also says that like 70% of germs are absorbed through your intestines, so does that cancel each other out?

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 3/14/2009 2:14 AM (GMT -6)   

I'm ROFL at your 'Colon Envy' comment! turn That's hilarious! Woo Hoo on being UC-free!! yeah

I'm so happy that you're happy and healthy.  :-) Isn't it cool when you forget it's there? That's something that's hard for someone who is about to have surgery to believe, but it's true!

You're so right about never having had the urge to pee before. Since we were in the bathroom every 30 minutes with IBD problems, our bladders never had the chance to fill up. Now, I only go to the bathroom to pee and empty while I'm there. We've saved thousands in toilet paper!

I love Taco Bell, too! smilewinkgrin


Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 3/14/2009 6:26 AM (GMT -6)   
Its an individual thing, but I don't rinse anymore....you may get to that eventually!

Being disease free is wonderful:) Glad you are doing so well.

moreglorydays
Regular Member


Date Joined Feb 2009
Total Posts : 38
   Posted 3/14/2009 9:25 AM (GMT -6)   
robinbyrd said...
  My stoma has shrunk more, and it doesn't hurt anymore.
When did your stoma stop hurting?  I still ache around the stoma, and when I go walking I have to make sure I don't walk too fast, or the pain will increase.  It is more like a nagging pain, but I am not taking any pain meds for it.  My stoma hasn't shrunk yet.
 
I, too, have had thoughts about the Activia commercials, and all the bowel cleanse, colon health, gas x, etc. advertisements.  It makes me think that there are many many people who are on the verge of or have UC or Crohns and don't even know it.  It is like we live in a diseased colon world. 
 
I am glad you are doing so well.  You encourage me.
scheduled for permanent ileostomy surgery 2/19 proctocolectomy with permanent ileostomy 2/19
tried asacol, rowasa, remicade, humira
currently on 40 mgs.10 mgs  5mgs. prednisone, 20mgs and tapering every ten days
51 years young


RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 3/14/2009 11:18 AM (GMT -6)   
moreglorydays...

My ostomy area quit hurting after the 4th week post-surgery. I was bad and picked my son up a lot, and I did do things around the house. I just can't sit around and do nothing all day...except today...I walked a ton yesterday and did a lot of city driving, so I'm exhausted. : )

It was almost as though I woke up one morning and it just didn't hurt. Kind of amazing really. Oh, and you know what? I helped my husband move dining tables around the house this morning...from the basement to the dining room, and vice versa. It's pretty awesome! Really the only issue I have with pain and discomfort is my back and the place where my bootie used to be. : ) I mean, I still have pretty large kaboos, but you know...the 'bootie'. : ) I'm the most shy person when it comes to using actual terms...I'm very blunt when in a professional setting (for educational purposes), but on a personal basis I can't stand dirty jokes/comments, and if I try to make a funny in that area I turn red before I even stop talking. : )

Considering it's only been five weeks since I was cured I am amazed with how good I feel...I know you will too...for awhile I thought the discomfort and pain I felt would never go away...but it does...and when you feel your complete freedom it's a very emotional moment.

I wish you the best!
: )  Robin
 
28 year old Mommy of an amazing 1 year old and Wife for 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
 
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
 
"Your mind is like a parachute, it only works when it is open."  -Unknown


emma12s
Regular Member


Date Joined Nov 2008
Total Posts : 25
   Posted 3/14/2009 11:31 AM (GMT -6)   

I'm glad you are feeling so well!!!  I feel the same way you do about the Activia commercials--even though I've only lost 1/2 my colon and my colostomy is only temporary.  I actually tried it once, I thought it caused an obstruction, never went near it again--

It's great that you feel so well, but, in my case, about 2 months after my colostomy I caught a stomach flu and developed a parastomal hernia, which has gradually worsened to now 2 months later is about the size of a bowling ball.  It's not a lot of fun, so use caution when lifting or straining (like sneezing...I can feel it pulling).  I am waiting for my reversal next month that will hopefully resolve this, but, I truly look now like I'm about 9 months pregnant, can't wear normal clothing...  It's about the worst thing going on with me right now through all of this.  I was doing well in recovery until this started, I'm actually having more discomfort now 5 months later than I did at 2 months, so take care.

But, have fun and enjoy life!! 

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