Can I join your club-- I meet the requirements

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jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 3/14/2009 4:54 PM (GMT -6)   
I had a colectomy last night.... Thank God it was done laparoscopically (Sp). Unfortantely, I have to have a three step because I was so so sick. I haven't gotten over disappointment of that. The doctor convinced me that it will be best for me.

I feel ok today expecially now. During recovery, I was in extreme pain--- just kept asking for pain meds then I got the pain pump. Today, I am feeling better and got up for a walk.

The stoma is doing okay. We emptied the bag twice today. The nurse said that is s agood sign that everything is going well.

In about 2 months I will have the jpouch construct and then 6 weeks after that the connect. Oh well- I have faith this is best and that by the end of the year, I will be doing very well.

Once I have to deal with my ileostomy on my own, I am sure that I wll have many questions for you experts.


Thanks
Jackie, 43
Pancolitis, DX October 06

Lexapro, Colazal 3x3, Synthroid, Protonix, 6MP (100 mg)
Severely Anemic
Prednisone 20mg, Iron, Vitamin D
Surgery almost certain


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5690
   Posted 3/14/2009 5:41 PM (GMT -6)   

Well congratulations on your new life post UC!  I am sorry about your 3-step but don't despair.  Sometimes when a person is so sick this is necessary for the best outcome.  And also, if you have significant improvement in your health between now and step 2 your surgeon might opt to combine both steps.  Good luck in your recovery.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 3/14/2009 5:55 PM (GMT -6)   
Welcome to the group, Jackie. Sorry to hear that you have had to have surgery, but you will feel so much better. Be patient with the surgical pain, and you will feel that the underlying UC pain is GONE! Keep a positive attitude and touch base with us as you happen to have questions.

Good luck to you.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 3/14/2009 6:37 PM (GMT -6)   
well i already said this in the UC forum, but
YAY for being healthy! I hope all goes well for you, and we LOVE to answer questions around here, lol!

RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 3/14/2009 8:20 PM (GMT -6)   

Welcome to our COOL CLUB!!!  scool

Isn't it just amazing not feeling the UC?  After I got over the initial agonizing surgical pain I was in tears b/c the UC pain was gone...I knew it right away.  In fact, I love to just stop and think of it's absence...I love feeling the 'non-feeling'.

Oooo!  Also, your body is going to be so happy having that disease out of you!  Holy hell...it is unbelievable how sick you actually were prior to surgery...though you felt sick, and you knew you were very ill...you may have a moments of clearity during your recovery.  I'm five weeks post-surgery and still experiencing the ah-ha's of being UC free.

I am so so so happy for you!!!  Please ask away...any question or concern you have one or all of us have definitely experienced something close to the same thing.

smurf  


: )  Robin
 
28 year old Mommy of an amazing 1 year old and Wife for 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
 
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
 
"Your mind is like a parachute, it only works when it is open."  -Unknown


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 3/14/2009 8:53 PM (GMT -6)   
Jackie, Welcome!  cool
 
I'm blown away that you had surgery yesterday and are here posting today. You're lucky that your stoma started working right away. Mine was stubborn and took 10 days to work. I'm so happy for you. You're doing great!!
 
If you have any questions about anything, please feel free to ask. You're a Club Member now! :-)


Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 3/15/2009 3:55 AM (GMT -6)   
Thanks guys- I know I will have a ton of questions especially about the differently appliances . I have the convatec two piece with the clip and I like it. The bags are much smaller that I though. The nurse will come back tomorrw to help me change the whole thing.


I know I will have some bad days along the way, so i enjoy every good moment I have .Some gas today in the shoulder and and side/ back. I know that is normal for surgical stuff.

I am also looking forward to tapering pred.... I will feel even better then.

Take care guys and thanks again.

Look i changed by profile yeah
Jackie, 43
Pancolitis, DX October 06

Lexapro, Colazal 3x3, Synthroid, Protonix, 6MP (100 mg)
Severely Anemic
Prednisone 20mg, Iron, Vitamin D
Surgery almost certain


jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 3/15/2009 3:56 AM (GMT -6)   
Oh well the profile change didn't go through - gotta work on that :)
Jackie, 43
Pancolitis, DX October 06

Lexapro, Colazal 3x3, Synthroid, Protonix, 6MP (100 mg)
Severely Anemic
Prednisone 20mg, Iron, Vitamin D
Surgery almost certain


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 3/15/2009 5:57 AM (GMT -6)   
Wow...I am so jealous!! Laparoscopic surgeries are so much better!!!! I always looked at my "roomies" with envy when they'd be up and about with MUCH LESS pain...and you can use a TWO PIECE at this stage!! ET Nurses usually save those for a few weeks post op...

Walking and moving will get that trapped air our...I think that is the ONLY downside to lapro surgery...so stay active and push the button! (but I already mentioned that on your other post...)

jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 3/15/2009 7:25 AM (GMT -6)   
The pain pump is coming out but so is the foley catheter. Yeah!

The doctor gave me an option of another day on pain pump ( thought about it for a while) and I decided to start the Vicodin pills today.

He said I might be out by Wedesday.... tongue
Jackie, 43
Pancolitis, DX October 06

Lexapro, Synthroid, Protonix,

Prednisone40 mg- tapering slowing, Iron, Vitamin D
Surgery March 13th- total colectomy ( first step)
2nd step in about 3 months
3rd step in about 6 weeks after that


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 3/15/2009 10:33 AM (GMT -6)   
I had a two piece and i had regular surgery

Jblue-just be sure you keep that pain undercontrol, dont let yourself hurt, that slows recovery, but you probaby knew that,lol.
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