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jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 3/15/2009 4:02 PM (GMT -6)   
The gas is skull
Had some Tums and it helped initially. Trying to get Gas-x but it is Sunday and hospital is short staffed - they will have to call the doctor to get orders. Oi vey! I just might have hubbie smuggle some in.

Also, ice cream I ate could have been the culprit. It came in my lunch so did pudding. I am not going to eat that for a while. They sent ice cream, pudding and milk- what are they thinking.

Anywho- I had the broth and for dinner some tomato soup. That was good. My stoma is very active. Loud and making itself known. I find this very funny.

By the way, I emptied it out for the first time today. The nursing assistant showed me. I did okay. It still looks yucky. I want it changed asap. The stoma nurse will be here tomorrow to help. I also had some discharge from my butt.. No pain just like pink discharge when I went to pee.

I think that is normal? The doctor said that might happen? ANy thoughts?

Other than that- tired today.. but still in relatively high spirits.

Any all advice appreciated.

Thanks to all
Jackie, 43
Pancolitis, DX October 06

Lexapro, Synthroid, Protonix,

Prednisone40 mg- tapering slowing, Iron, Vitamin D
Surgery March 13th- total colectomy ( first step)
2nd step in about 3 months
3rd step in about 6 weeks after that


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 3/15/2009 6:33 PM (GMT -6)   
it may have been the ice cream, but probably not, probably just gas, its normal at frist to have a lot of gas!

the output wont be nearly as icky when you start eating real food, i PROMISE!!!

And the stuff coming out of your butt is normal, just so long as it doesnt smell really bad or look greenish, like what comes out of a sore that gets infected.

The tomato soup may make your output RED, like really RED if it does, dont freak, things that are red colored will do that! the firsst time i ate something with red coloring (red velvet cake) i thought i was bleeding to death!

i would have the hubbie smuggle some in, but thats just me, lol.

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 3/15/2009 7:22 PM (GMT -6)   
Don't forget your surgery was lapro, so you probably have a lot of air in you that has to find it's way out!!!

Like summerstorm said, it does get better...keep walking!

Personally, I'd eat the ice cream AND pudding!!!

jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 3/15/2009 8:05 PM (GMT -6)   
I got the wonton soup and drank the broth and chewed some of the noodles really well until they disintegrated. No ice cream... just in case. the night nurse came in and said start walking and I walked straight for 30 minutes. very slowly granted. This is something I just realized that I couldn't not have done when I was sick. I could barely walk to my kitchen without being winded.

Isn't that weird??? Of course I am off the 6mp and Colazal- still on pred- 30 mg.

Again, all of your comments are soooo helpful. I feel very alone right now. My best friend is sick with mono, my sister is sick with the flu- so they can't visit. My husband has been here three different times and finally went home to tend to the kids. So lonely at night. :(((
Jackie, 43
Pancolitis, DX October 06

Lexapro, Synthroid, Protonix,
Tapering prednisone from 40 mg


Surgery March 13th- Total Colectomy
Jpouch surgery to be done in 3 steps


jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 3/15/2009 8:19 PM (GMT -6)   
I got the wonton soup and drank the broth and chewed some of the noodles really well until they disintegrated. No ice cream... just in case. the night nurse came in and said start walking and I walked straight for 30 minutes. very slowly granted. This is something I just realized that I couldn't not have done when I was sick. I could barely walk to my kitchen without being winded.

Isn't that weird??? Of course I am off the 6mp and Colazal- still on pred- 30 mg.

Again, all of your comments are soooo helpful. I feel very alone right now. My best friend is sick with mono, my sister is sick with the flu- so they can't visit. My husband has been here three different times and finally went home to tend to the kids. So lonely at night. :(((
Jackie, 43
Pancolitis, DX October 06

Lexapro, Synthroid, Protonix,
Tapering prednisone from 40 mg


Surgery March 13th- Total Colectomy
Jpouch surgery to be done in 3 steps


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 3/15/2009 8:35 PM (GMT -6)   

Hey Jackie,

Did you ever get some Gas-X? I hope so, because the post-surgery gas pain is the worst! sad

Don't feel bad about asking for pain medicine, if you need some relief.

I remember feeling lonely in the hospital, too, so I spent a lot of time talking on the phone.

I just noticed that you live in South Florida. Which city? I'm in Fort Myers! :-)

I hope you are starting to feel better now, so you can get a good night's sleep.


Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


kimlin08
Regular Member


Date Joined Feb 2009
Total Posts : 46
   Posted 3/15/2009 9:07 PM (GMT -6)   
Key j blue.....the gas pain was sometimes unbearable for me as well....as they told you wlking helps so much.....also my husband would rub my back and it seems to pass....its been 2 months and three days since my colostomy and it all come in phases for me.....good luck to you and if your like me t v wasnt much fun...u know what i watched.....the andy griffin show.....green acres....all the old shows when time was simpler and we were much less stressed...goood luck and know it will get better....we all promise......maggie or kimlin in tennessee
Maggie in tennessee....coping


jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 3/16/2009 7:22 AM (GMT -6)   
Cecelia-
I live in Ft. Lauderdale- am at the Weston Cleveland Clinic ( suburb of Ft. Laud)
My husband is bringing Gas-x - it is a hassle to get something simple through the hospital. I walked a lot and it helped last night. I am on regular low residue food now and will start the Vicodin again. I had morphine shots last night to help with pain.

Kim- I was watching Andy Griffith the other night. It calmed me down. WIll try to look for it again today on TV land or TBS. Thanks

Thanks guys
Jackie, 43
Pancolitis, DX October 06

Lexapro, Synthroid, Protonix,
Tapering prednisone from 40 mg


Surgery March 13th- Total Colectomy
Jpouch surgery to be done in 3 steps


sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 3/16/2009 7:54 AM (GMT -6)   
jblue--glad you are doing so well. Jealous about your ice cream (I'm too scared to attempt that yet but tried 1/2 a yogurt this am). I too am battling the gas. On the advice from this forum, I brought the gas-x to the hospital and just asked the surgeon if I could take it. Closest I'll ever get to contraband. turn It really seems to work for me--sometimes it just gets the gas out and sometimes the gas actually stops. Wishing you well!
24+ years with Crohn's/colitis; fistulizing crohn's; ileostomy and proctocolectomy; propranolol and xanax; been on a ton of crohn's meds; praying to get through each day.


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 3/16/2009 8:57 AM (GMT -6)   
Jackie,
I know what you mean about it being difficult to get something simple like Gas-X or Tylenol in the hospital. That happened to me during my first hospital stay, so I learned to bring it with me in my purse. Go ahead and cuff me, I'm a smuggler of OTC (over the counter) drugs, too! tongue I'm glad the walking and morphine helped until your hubby can get there. I needed morphine to help with gas pain after surgery, too. I thought it was worse than the incision pain.

Fort Lauderdale isn't that far from Fort Myers. Are you happy with the Cleveland Clinic there? My mom and I were excited when IKEA opened up, since she's from Sweden. We had a good time Christmas Shopping there in December.

So, you think you'll be able to go home on Wednesday? You must be excited! I hope you have a really good day today. :-)
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 3/16/2009 10:54 AM (GMT -6)   
jackie, i dont know if i told you this or not, probably did, but take the gasx before you get the gas! its kind of hard to do that now, cause you have gas all the time, lol.
But now, i take two gas-x when i am going ot go out, or when i am giong to eat something that i know will make me gassy, and it keeps from getting as gassy!

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 3/16/2009 3:11 PM (GMT -6)   

Hey Jackie!

How are you feeling today? :-)


Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.

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