Leaking ileostomy

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LoveMyHubby
New Member


Date Joined Mar 2009
Total Posts : 1
   Posted 3/19/2009 7:59 PM (GMT -7)   
My husband has a genetic condition called FAP which predisposes him to get colon cancer. He went in for surgery on March 4 to have his colon removed. The plan was to get a j-pouch, but for a lot of reasons, they couldn't do it. So he had to get a permanent ileostomy. It's a tough adjustment, and we'd be willing to deal with it except for the fact that it KEEPS leaking. Today we went through about 4 wafers and bags. We don't know what we are doing wrong. His stoma doesn't stick out very much from his body, so I'm thinking that one of the problems is that when he lies on his back, stool pools right at the stoma and eventually pushes up the wafer. And then he leaks all over the place. We've tried everything and nothing seems to work. We're total novices at this, so any suggestions would be appreciated. We are beyond frustrated. Thank you so much.

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3075
   Posted 3/19/2009 8:18 PM (GMT -7)   

LoveMyHubby--Welcome to the forum!! scool

Sorry to hear your husband (and YOU) are having such a difficult adjustment period...My initial guess is that he needs a wafer with CONVEXITY...that means that it is cupped by the opening which will pull the stoma up...how it works, I don't know!!!  BUT I do know it makes a HUGE difference!!  Mine is very small and short and I wouldn't make it one hour without it smilewinkgrin

Soaps and prep wipes can be another issue, but from your description of his stoma, I'd guess that the wafer is a cause.  Let us know how things work out!


andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 3/20/2009 2:03 AM (GMT -7)   
Hi Im also new to having an ileostomy and I to have had a couple of leaks. 2 days ago and again today. It got the better of me so I called the stoma nurse and I ended up going to see her to sort it out. I was happy it wasnt anything I had done wrong it was simply my stoma had changed since surgery already so the bag I was using which was the single coloplast one was no longer good for me since I have a dip next to my stoma I am now using convatex, so far so good, the stoma nurse also gave me some of the adhesive powder and paste. Perhaps your husband needs resizing too. Although I am still learning myself its only been 2 weeks for me but thought I would share and hopefully it helps you a little. take care and good luck

Scrappyjrt
Regular Member


Date Joined Jul 2006
Total Posts : 212
   Posted 3/20/2009 7:38 AM (GMT -7)   
Check the Forums on United Ostomy Association website. wwwUOA.org

 SUPPORT RESCUE

             


dilatante
Regular Member


Date Joined Jan 2009
Total Posts : 125
   Posted 3/20/2009 8:15 AM (GMT -7)   
Someone suggested a convex wafer, they can be a life saver!! That is what I use, along with a belt. I know some say, you don't have to wear the belt all the time, but I feel safer with it. Also, is his skin absolutely dry when you apply the appliance?? and is there any skin breakdown? If there is any dampness, that can affect the seal, along with skin breakdown. I also use a blow dryer around the edges of my appliance, until it's really warm, and then hold my hand over the appliance until it has cooled down. Plus, I use adhesive spray on the appliance before I place it. Am I an expert, heck no?? but i know what is working for me currently.

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 3/20/2009 8:49 AM (GMT -7)   
Convex wafers or convex inserts into the regular wafers also made a huge difference for me several years ago! Also, any residue left on the skin or dampness can cause a problem with a good seal. Try the convex --- hopefully that will resolve your problems.

And welcome to HW.com!!!
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 3/20/2009 8:49 AM (GMT -7)   
Convex wafers or convex inserts into the regular wafers also made a huge difference for me several years ago! Also, any residue left on the skin or dampness can cause a problem with a good seal. Try the convex --- hopefully that will resolve your problems.

And welcome to HW.com!!!
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 3/22/2009 9:09 AM (GMT -7)   
I agree with Peggy and views of other members on this issue. I had several problems with my bag, or to put it in nutshell, the worst of problems one can think about the bags. Well are you using the adhesive on your abdomen before applying the bag. Generally the adhesive used on the bag is not sufficient and one needs to use the adhesive and thereafter put the bag on that, while holding down the bag for sometime so that it sticks. My ET used to put Micro pro tape on the sides. Mine was a different case as it used to leak despite all precautions because of skin infections on the stoma site.
Please consult your ET. Please ensure that the skin is dry before applying the adhesive.
Wish you good health and leak free stoma.
45 years Male
Diagnosed UC October 1989
Had two stage J Pouch Surgery Nov 2005 March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
on Combiflam, Multivitamins and restricted diet.
Tried Sallaki/Turmeric/Homoepathy/Allopathy/Chinese/Unani/Ayuvedic/Yoga before going for surgery


vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 3/22/2009 10:37 AM (GMT -7)   
OHIO76 said...
My initial guess is that he needs a wafer with CONVEXITY...that means that it is cupped by the opening which will pull the stoma up...how it works, I don't know!!!  BUT I do know it makes a HUGE difference!! 
I think this is spot on correct! Plus, using Eakins Seals or Stomahesive past can make a hard to fit appliance very forgiving. Also, when finished with changing your appliance, "pictureframe" some waterproof medical tape around the edges. I had a lot of leaks in the beginning, and this worked for me. And, as I've posted here several times.....I haven't had a leak that I didn't cause myself(wearing an appliance for a little longer than I should have) in almost 19 years!!!
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