What have you accomplished since(or because of) your ostomy surgery????

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vette guy
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Date Joined Nov 2006
Total Posts : 650
   Posted 3/22/2009 9:29 AM (GMT -6)   
This question might be better for us "ostomy veterans". But, I know we  can all agree that we have more stamina and little pain since we've  had our ostomy. But, which of life's successes can you directly associate with the sudden loss of pain and increase of energy in your lives? 'Time to get a little introspective on this one, folks! Speaking for myself, when I first had my surgery, I thought my social and professional life was over. I know many of us did too. But, in short time I realized I was WAY WRONG! In, fact, it was just the opposite for me. It just took me a little time to realize it.
 
So, getting back to my original question, I'll go first:
My son, now 22, was only 2 years old when I first had my ostomy surgery. It took me a little while to realize that my surgery allowed me to become a better father. Prior to my surgery, I could barely spend any real quality time with him. But, since then, I've coached a couple of his soccer teams, baseball teams,  basketball teams, and a slew of other father/son activities. The surgery also allowed me to become a better husband because I was no longer cranky and tired all the time. And, as for my career, I have had far more professional successes since my surgery; not because I was 28 at my surgery and it's been 20 years since then, but because you can accomplish a whole lot more when you are no longer in pain....as long as you take advantage of it.
 
So, how about you guys? Did you decide to take up golf or any other new sport? Did you learn a new language? Have you had a few promotions since your surgery? Did your sudden liberation from pain allow you to meet your significant other? Don't be afraid to be brag on this one.
 
Hint: I hope this thread will prove to the "ostomy newbies" here that, in many ways, their live's are just beginning, and that their best years are ahead of them!!!

Post Edited (vette guy) : 3/22/2009 9:52:38 AM (GMT-6)


marymagdalen
New Member


Date Joined Mar 2009
Total Posts : 18
   Posted 3/22/2009 7:02 PM (GMT -6)   
I hope that you will get a lot of responses to this post. I am having surgery on March 30th, and I'm really scared. I'm fearing the surgery, the recovery, and adjusting to a bag, all of it. I hope to hear from more people like you who are happy they did it and not at all bothered by having a bag. Thanks!

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5692
   Posted 3/22/2009 7:18 PM (GMT -6)   

Since having my colectomy and jpouch surgery I have accomplished the following:

1.  Hiked 200 thru miles across England

2.  Hiked in and out of the Grand Canyon

3.  Hiked 100 thru miles in Scotland

4.  Hiked 100 thru miles in Ireland

5.  Hiked 80 thru miles on the John Muir Trail in the Sierras

I have also hiked and kayaked in Turkey, and the Chilean Patagonia.  I have traveled to Middle East, Italy, Argentina, Switzerland, and France.  Next stop Asia.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 3/22/2009 7:27 PM (GMT -6)   
suebear said...

Since having my colectomy and jpouch surgery I have accomplished the following:

1.  Hiked 200 thru miles across England

2.  Hiked in and out of the Grand Canyon

3.  Hiked 100 thru miles in Scotland

4.  Hiked 100 thru miles in Ireland

5.  Hiked 80 thru miles on the John Muir Trail in the Sierras

I have also hiked and kayaked in Turkey, and the Chilean Patagonia.  I have traveled to Middle East, Italy, Argentina, Switzerland, and France.  Next stop Asia.

Sue

WOW, Sue! That is absolutely awesome! Watch out Asia.....here comes Sue!!! That is terrific, and so are you!!!


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 3/22/2009 8:11 PM (GMT -6)   

I vote Sue and VG as this forums Ostomy Man and Ostomy Woman!!!  Wow, both of you are pretty amazing. 

I have to admit that most of my adult life, I have been fortunate to be disease free thanks to my ostomy, so therefore, it has just become a part of my life.  It's kind of like .... if you don't know life any other way, this way becomes your "normal" way.  I'm kinda like that now.   I just can't imagine living my life in the pain I was in before my surgery.  I would have been bathroom/house bound for my entire life and certainly not a happy person. 

Instead, I went to college for 2 years, worked at a civil service job full time in OH for 9 1/2 years, moved to IN with my fiancee, bought a home in IN, got married, worked full time at Indiana University for 11 years, then part time for 8 years; built a new home doing a majority of the labor ourselves, and on and on.  Just LIFE! 

Without this Bag, I would not have been well enough to be available to help my mom thru the sudden death of my father in 2000 and then the sole caregiver for my mother when she was diagnosed with cancer in 2003 and passed in 2005.  And now my DH has ALS, and I will be his caregiver.  I need to stay healthy for him, and this ostomy has allowed me to remain disease free!  My lifeline of sorts.  I blessed every day that I am able to stay healthy and not be malnourished or in pain to be there to help others. 

 


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


pepperann27
Regular Member


Date Joined Dec 2008
Total Posts : 147
   Posted 3/22/2009 9:42 PM (GMT -6)   
before my pain got in the way:

I was in a lot of plays
I rode my horse all the time
I was pretty active

Unfortuatley my pain now is making that too hard, and I so wish I could ride my horse more often, I love horses
thanks, Dusti

Diagnosed with colonic inertia at 13 years old, had my colon removed.
Diagnosed with rectal inertia at 16 years old, had my rectum removed and had a jpouch made.
Diagnosed with small bowel inertia at 18 years old, and got an ileostomy wich I still have. I am 27 now.
If you want to know more, just ask me!
"Don't worry about failure, worry about the chances you miss when you don't even try"
 


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 3/22/2009 9:50 PM (GMT -6)   
well i havent' done anything nearly as exciting as sue, i have done alot of the little things!
Things that everyday make me thankful i did this.
Even today, while i was workign my butt off cleanign out our shed for 6 hours i thought, i never could have done this two years ago.
Other things i have done
Gone to the beach 4 times
gone on a spur of hte moment road trip
spent tons of time wiht my kid
gone DANCING!!! (i would spend my whole life dancing, lol)
ate TONS of nachos, salads and all kinds of other things
Not worried where bathrooms were!
started drinking, lol
pudding wrestled!
today i rolled down a hill just for fun (yes i know how childish!)
gosh i cant even think of all the things, but there is something almost every day that makes me thankful i did this!

pepperann27
Regular Member


Date Joined Dec 2008
Total Posts : 147
   Posted 3/22/2009 10:10 PM (GMT -6)   
I forgot to say something

In high school, my junior year (the best year because I felt better than I have in a long time) I was in the swing dancing club at school, it was so much fun!
thanks, Dusti

Diagnosed with colonic inertia at 13 years old, had my colon removed.
Diagnosed with rectal inertia at 16 years old, had my rectum removed and had a jpouch made.
Diagnosed with small bowel inertia at 18 years old, and got an ileostomy wich I still have. I am 27 now.
If you want to know more, just ask me!
"Don't worry about failure, worry about the chances you miss when you don't even try"
 


Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1246
   Posted 3/23/2009 5:39 AM (GMT -6)   
Hmmm... let's see. Well, I've achieved most of my life basically. I've had my ileostomy for 3/4's of it lol I went through some primary school, all of high school, got into Uni (but only did a year of library studies before deciding I needed money more than further education) held full time jobs since leaving school.

I was in the school army cadets, the photography club and the drama club. I was leader of my local Church Youth Group for two years. Went on heaps of school and youth groups camps.

I've travelled the world - Thailand, Singapore, Hong Kong, USA, UK and most of Australia (I'm an Aussie). I travelled the USA and UK on my own for a total of 6 weeks, visiting ostomate net friends I've made over the years. The flight home took 18 hours. I've ridden roller coasters, camels and elephants. Been snorkelling at Ningaloo Reef up the north of Western Australia (got horribly sunburnt in the process).
 
As part of my job a few years ago, I travelled all around the state teaching people to use the new computer system. I'd fly to a town early in the morning and fly home again that evening (or the next day) - it's a huge state, some flights would take 3 - 4 hours just to get to my destination!

I bought my own place about 7 years ago and am perfectly content living here with my two furbabies.


I have had an ileostomy for 33 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!

Post Edited (Shaz032) : 3/23/2009 5:43:30 AM (GMT-6)


chelebel
Regular Member


Date Joined Mar 2009
Total Posts : 26
   Posted 3/23/2009 6:24 AM (GMT -6)   
Hi new to the forum. Just wanted to say how wonderful it is to hear how well everyone does after surgery and life with a stoma. I am having a panproctocolectomy, due to ulcerative colitis that I have had for 18 years, so will have permanent ileo, done on 3rd April. I am very nervous, but have been reading these posts for a couple of weeks now and they have made me feel so much more positive about it. Thanks everyone. x

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 3/23/2009 8:06 AM (GMT -6)   
Welcome Chelebel! Good to see you visit this forum. And best of luck on 4/3... you will regain your own life after you recuperate from surgery. Robin is a recent perfect example of such. If you can't find the answer to your question already posted on this forum, please feel free to ask us. We all have lots of experienced "opinions", and are quite willing to share.

Keep us posted on your upcoming surgery and recovery. Welcome again.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


2 RIS K
Regular Member


Date Joined Aug 2008
Total Posts : 367
   Posted 3/23/2009 10:47 AM (GMT -6)   
I had my total colectomy in September 08 with many complications and surgeries. I had my ileostomy reversed in December 08. It hasn't been very long but I was not able to do my job as a catering/event manager at a large conference center due to my pain and constipation. I have 9 years experience in event management and right now I'm starting my own event planning business "An Affair To Remember" which will specialize in weddings, anniversaries, birthdays and quinceaneras. I'm applying for my business license this week and I know this will be hard work but I feel more capable and able to work harder than ever before. I'm so grateful I had my surgery despite my complications and I would do it all over again. I can't wait to see how this turns out and what else I can accomplish along the way!
Amanda
35 years old
Chronic Lifetime Constipation
Diagnosed IBS - 1995
Rectal Prolapse - February 2007
Rectosigmoid Colectomy w/low anterior Anastomosis - March 13, 2007
Diagnosed with Colonic Inertia - June 08
Total Colectomy - September 22, 2008
Temporary Ileostomy due to small bowell perforation Septepmber 29, 2008
Ileostomy Reversal - December 15, 2008
Multiple Small Bowel Abscesses-December 22, 2008
Leak at original Anastamosis -December 25, 2008
JP Drain removed - January 23, 2009
Still adjusting to life without my large intestine...
 
The whole world is at your feet; so paint your toenails Red!
 


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 3/23/2009 11:39 AM (GMT -6)   
Well, there are so many 'everyday' things, I couldn't list them all!!

The one I am most thankful for is being able to be a healthy mom to my daughter, watching her grow up, doing things-that people take for granted-with her and continuing to travel the United States and eventually Europe with her and my hubby. My daughter was 3 years old when I started with my worst flair ever, 5 at the time of my first ileo...needless to say, I wasn't much help at that time but with the support of my wonderful hubby, she's is a well adjusted (but spoiled) 14 year old!!

Even though my first ileo was for surgery complications, I am so thankful I figured out I could live pain free!

chelebel
Regular Member


Date Joined Mar 2009
Total Posts : 26
   Posted 3/24/2009 8:31 AM (GMT -6)   
peggy113 said...
Keep us posted on your upcoming surgery and recovery. Welcome again.

Thank you for the warm welcome Peggy x
Panproctocolectomy scheduled for 3rd April.  Diagnosed Ulcerative Colitis 18 years ago.


marymagdalen
New Member


Date Joined Mar 2009
Total Posts : 18
   Posted 3/24/2009 9:51 AM (GMT -6)   
TO : 2 RISK K
I'm sorry that you have had such a rough ride. What kinds of complications did you have, and why? It looks like you have a J pouch. How long have you had it and how is it working? Did you also have pelvic floor weakness?

I too used to have a catering business.

Thanks for taking the time to answer. My surgery is scheduled for March 3oth.

sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 3/24/2009 10:45 AM (GMT -6)   
Within the last month I learned to ride ATVs and to Snowboard. Both were sooo exciting. I found out you can do anything at all without a colon. (except have formed poops. Ha.)

It's been quite a ride, but I am thrilled with my life disease free.
If at first you do not succeed, then skydiving is surely not meant for you.


Jo - UC, total colectomy and ileostomy on August 24, 2007. Step 2 & ileostomy switched to left side - May 27, 2008, and take down August 8, 2008. Gallbladder removed December 5, 2008. LIFE IS GOOD.


2 RIS K
Regular Member


Date Joined Aug 2008
Total Posts : 367
   Posted 3/24/2009 2:28 PM (GMT -6)   
to mary magdalen, no I don't have a j pouch. A week after my colectomy they found a one inch tear five inches above the anastomosis that had been leaking for five days and I was really sick. They repaired it and gave me a temp ileo which they reversed in December. I'm doing great now and am so grateful for the surgery even tho some days are better than others, they're ALL better than before surgery.

Good luck to you!!!
Amanda
35 years old
Chronic Lifetime Constipation
Diagnosed IBS - 1995
Rectal Prolapse - February 2007
Rectosigmoid Colectomy w/low anterior Anastomosis - March 13, 2007
Diagnosed with Colonic Inertia - June 08
Total Colectomy - September 22, 2008
Temporary Ileostomy due to small bowell perforation Septepmber 29, 2008
Ileostomy Reversal - December 15, 2008
Multiple Small Bowel Abscesses-December 22, 2008
Leak at original Anastamosis -December 25, 2008
JP Drain removed - January 23, 2009
Still adjusting to life without my large intestine...
 
The whole world is at your feet; so paint your toenails Red!
 


schrek-chewbacca hunk
Veteran Member


Date Joined Jun 2005
Total Posts : 2666
   Posted 3/24/2009 4:08 PM (GMT -6)   

As some others have said, thank ou for this post.  As someone who is waiting for their surgery on April 16, these types of posts make me feel like I can come out of this and be the better husband I haven't been to my wife over the last 10 years of UC. 

Thank you and love to all

bob


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 3/24/2009 5:34 PM (GMT -6)   
Now that I'm healthy, I'm able to...
... work all day and not be tired in the evenings or on weekends
... spend Saturdays at the beach
... go to the waterpark with my neices and nephews
... shop for hours without using the bathroom
... use my vacation days for vacation and not sick days
... walk my dog around the neighborhood
... drive three hours straight to my sister's house
... eat all of my favorite foods
... travel
and my personal favorite...
... sleep through the night! :)
 


Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 3/24/2009 5:53 PM (GMT -6)   
OOOOHHH - sleep through the night!! Yeah, that's one of my favorites, too!!!
If at first you do not succeed, then skydiving is surely not meant for you.


Jo - UC, total colectomy and ileostomy on August 24, 2007. Step 2 & ileostomy switched to left side - May 27, 2008, and take down August 8, 2008. Gallbladder removed December 5, 2008. LIFE IS GOOD.


psygirl6
Regular Member


Date Joined Aug 2008
Total Posts : 268
   Posted 3/24/2009 7:23 PM (GMT -6)   
Hi,
With my surgery, I am actually able to go back to school. I will be studying histo-tecnician(be working with the tissues of the body). Actually because of my surgery, I actually want to study the tissues relating to the digestive system and help find treatments and cures for all diseases, especially in the digestive system.( I had slow transit constipation). So my surgery helped pick my career path.
Maya
Rectal Prolapse Surgery: December 2006
diagnosed with slow transit constipation: June 2008
total colectomy with ileo-rectal anamastosis: Aug 7, 2008
Numerous food intolerances (gluten,lactose,msg,etc)


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 3/24/2009 7:32 PM (GMT -6)   
That's wonderful, Maya! :-)
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


psygirl6
Regular Member


Date Joined Aug 2008
Total Posts : 268
   Posted 3/25/2009 7:20 AM (GMT -6)   
Hi,
Thank you for the well wishes. I am very excited. I have to do 1 year of general studies and then I will start the Histo-tecnician program in the fall of 2010.
also, I just want to wish everyone good luck and I am very proud of all of you with your accomplishments. Having our surgeries, especially after years of being sick, that we can now accomplish everything. The doctor who did my surgery is my inspiration for me going back to school. Maybe if I am lucky, he can be the one I can work for, because being a histo-technician, i can examine and study the tissues of people who have different digestive problems and hopefully, cures can come from it. Well everyone I wish you all good luck in your journeys.
Maya
Rectal Prolapse Surgery: December 2006
diagnosed with slow transit constipation: June 2008
total colectomy with ileo-rectal anamastosis: Aug 7, 2008
Numerous food intolerances (gluten,lactose,msg,etc)


vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 3/28/2009 1:07 AM (GMT -6)   
psygirl6 said...
Hi,
With my surgery, I am actually able to go back to school. I will be studying histo-tecnician(be working with the tissues of the body). Actually because of my surgery, I actually want to study the tissues relating to the digestive system and help find treatments and cures for all diseases, especially in the digestive system.( I had slow transit constipation). So my surgery helped pick my career path.
Maya

Now, that's what I call serendipity! That sounds great, Maya!!!

lp
Regular Member


Date Joined Nov 2007
Total Posts : 29
   Posted 3/31/2009 9:20 PM (GMT -6)   
Horse trekking, backpacked much of the American West, salmon fishing in Alaska, horseback riding, scuba diving, downhill skiing, lots of plane travel and even more car travel, three college degrees (lived in a dorm with roommates), married 35 years and have two adult children, am still working and have a highly successful professional career including prestigious awards, travel for business (and share motel rooms as needed), eat almost anything....having an ostomy was my ticket to freedom!
In other words, I have - so far - lived almost 40 years longer than I would have if I hadn't had surgery...

And I have lived very well indeed, and don't plan on slowing down any time soon.
UC diagnosed 1964
Ileostomy 1969

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