I think I'm going to cry...

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2 RIS K
Regular Member


Date Joined Aug 2008
Total Posts : 367
   Posted 3/25/2009 6:49 AM (GMT -6)   
I can't sleep.  I've been taking generic Ambien for two weeks and I fall asleep right away but I wake up anywhere between 2 and 4am and am awake the rest of the day.  Yesterday I had the doctor call in some Ambien CR for me, the controlled release one which is supposed to help you fall asleep and STAY asleep and again this morning I woke up at 4am.  I even got the real Ambien and not the generic. 
 
Do controlled release meds not work on us anymore??  What's the deal with me not sleeping suddenly, any suggestions?  This has been going on too long and I've tried everything from the hot tub to drinking hot cocoa...I'm miserable and sleep deprived....
Amanda
35 years old
Chronic Lifetime Constipation
Diagnosed IBS - 1995
Rectal Prolapse - February 2007
Rectosigmoid Colectomy w/low anterior Anastomosis - March 13, 2007
Diagnosed with Colonic Inertia - June 08
Total Colectomy - September 22, 2008
Temporary Ileostomy due to small bowell perforation Septepmber 29, 2008
Ileostomy Reversal - December 15, 2008
Multiple Small Bowel Abscesses-December 22, 2008
Leak at original Anastamosis -December 25, 2008
JP Drain removed - January 23, 2009
Still adjusting to life without my large intestine...
 
The whole world is at your feet; so paint your toenails Red!
 


XtremeMisery
Veteran Member


Date Joined Sep 2007
Total Posts : 687
   Posted 3/25/2009 7:18 AM (GMT -6)   

Oh Amanda....

I feel for you. I have been having sleeping issues for months. I usually fall asleep about 1-2 am and wake up every 2-3 hrs and get up at 645 am and up all day. I do better when I take my xanax versus ambien. I am not a huge fan of ambien, but thats just me. My problem is I can never shut off my head. The xanax or ativan too (benzodiazapines) are anti-anxiety, help with nausea, but also help with sleep. I was put on it for sleep nearly four years ago. They are less prescribed becuase of addiction, but I have never been addicted to them and do not have an addictive personality. They gave this to me in the hospital as well. Maybe if your doctor will let you you can try .5-1mg of either one. Hope you get some rest....

Lizzie


Chronic Lifetime Constipation
Diagnosed IBS-C 2000
Diagnosed Colonic Inertia-Oct 2007
Total Colectomy with ileorectal anastamosis- Jan 28, 2008
Ileus with suspected leak- Feb 1, 2008
Four abdominal abscesses- Feb 2008
2 JP drains- Feb 2008
Diagnosed with small bowel Fistula- March 6 2008
Drains removed- End of March 2008
Continued Constipation- biofeedback for 3 mo Aug 2008
Botox injections Dec. 17 2008
Currently Diagnosed with Anismus and getting second opinion
 @ U of M March 30
 
"The Greatest Healing Therapy is Friendship and Love"


2 RIS K
Regular Member


Date Joined Aug 2008
Total Posts : 367
   Posted 3/25/2009 7:45 AM (GMT -6)   
Thanks Lizzie, I have xanax too but I tried the ambien because the xanax stopped working. Then I got desperate and took .5 xanax and the ambien and still I woke up at 4am. I know that's dangerous but I was desperate; it didn't work so now I give up!!!
Amanda
35 years old
Chronic Lifetime Constipation
Diagnosed IBS - 1995
Rectal Prolapse - February 2007
Rectosigmoid Colectomy w/low anterior Anastomosis - March 13, 2007
Diagnosed with Colonic Inertia - June 08
Total Colectomy - September 22, 2008
Temporary Ileostomy due to small bowell perforation Septepmber 29, 2008
Ileostomy Reversal - December 15, 2008
Multiple Small Bowel Abscesses-December 22, 2008
Leak at original Anastamosis -December 25, 2008
JP Drain removed - January 23, 2009
Still adjusting to life without my large intestine...
 
The whole world is at your feet; so paint your toenails Red!
 


XtremeMisery
Veteran Member


Date Joined Sep 2007
Total Posts : 687
   Posted 3/25/2009 7:52 AM (GMT -6)   
I know this may sound crazy, but my mother in law has to take it for sleep. Its called seroquel. Its an antipsychotic. My husband took it one night and I ended having to write his grad school paper....he was so out he was slurring his speech :) What dose of your xanax did you take to try and sleep....you could safely take probably 2 mg. It does take some time for the CR to get into your system. Seroquel would most likely work. Had to use it on some pts here at work. Hope this helps.

Chronic Lifetime Constipation
Diagnosed IBS-C 2000
Diagnosed Colonic Inertia-Oct 2007
Total Colectomy with ileorectal anastamosis- Jan 28, 2008
Ileus with suspected leak- Feb 1, 2008
Four abdominal abscesses- Feb 2008
2 JP drains- Feb 2008
Diagnosed with small bowel Fistula- March 6 2008
Drains removed- End of March 2008
Continued Constipation- biofeedback for 3 mo Aug 2008
Botox injections Dec. 17 2008
Currently Diagnosed with Anismus and getting second opinion
 @ U of M March 30
 
"The Greatest Healing Therapy is Friendship and Love"


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5690
   Posted 3/25/2009 8:08 AM (GMT -6)   

I have the perfect drugless solution to difficulty of sleep and it's called exercise.  If you could find an aerobic exercise that you like, and perform it for one hour every day you will sleep.  I take cardio strength training 3X per week and there is nothing that fatigues my muscles more.  I can be under an enormous amount of stress from work but this class will allow me to sleep at night.  The trick is you have to exercise to complete exhaustion.  There are other great benefits to exercise too which you probably already know.

 

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 3/25/2009 9:05 AM (GMT -6)   
CR meds dont work as well on us, cause stuff doesnt stay in us that long! I even cut all my meds that are scored in half cause transit time is so fast, and i wasnt getting all the meds in my system
You could try (i used to do this) takign half the ambien at bedtime, then takign the other half when you wake up at 2.
Or try phenogren, that stuff will knock you OUT i slept for like 16 hours the toher day on that stuff

2 RIS K
Regular Member


Date Joined Aug 2008
Total Posts : 367
   Posted 3/25/2009 9:33 AM (GMT -6)   
thanks summer! I thought that might be the problem. I'll try the half thing...i don't have any phenergan.

I updated my website and there's a picture of me on there if you want to see!

www.anaffairtoremember@amandasevents.com

Do you see what I do with all the extra free time with no sleep, lol!!
Amanda
35 years old
Chronic Lifetime Constipation
Diagnosed IBS - 1995
Rectal Prolapse - February 2007
Rectosigmoid Colectomy w/low anterior Anastomosis - March 13, 2007
Diagnosed with Colonic Inertia - June 08
Total Colectomy - September 22, 2008
Temporary Ileostomy due to small bowell perforation Septepmber 29, 2008
Ileostomy Reversal - December 15, 2008
Multiple Small Bowel Abscesses-December 22, 2008
Leak at original Anastamosis -December 25, 2008
JP Drain removed - January 23, 2009
Still adjusting to life without my large intestine...
 
The whole world is at your feet; so paint your toenails Red!
 


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 3/25/2009 4:50 PM (GMT -6)   
I like your site amanda, very nice, and you look very happy in your pic!

I was sort of kidding about the phenogren, if the ambien doesnt help though, a couple (10, lol) shots of vodka might work!

Really though, cutting the med and taking it half like that should work pretty good. Hope you get some sleep!

ohcountrybear
Regular Member


Date Joined Mar 2009
Total Posts : 192
   Posted 3/25/2009 6:01 PM (GMT -6)   
Melatonin is good as well..... u get it over the counter where you bye the vitamins. Works well for me. You may take one or even two if one isnt sufficient.

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 3/25/2009 6:09 PM (GMT -6)   
Amanda,
I'm sorry you're having trouble sleeping. I went through that when I was on prednisone, and it was awful. It's true that extended or time release tablets do not dissolve for us. I had an extended release B-vitamin come out whole once! With some pills, you can remove the outer coating, and then it will dissolve. I hope you get some good sleep tonight. I like your website. Great picture!
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 3/25/2009 6:47 PM (GMT -6)   
Ditto on the time release pills...they just don't do it for most of us!

I also believe that the more active you are (exercise) the better you sleep. Even an hour walk can be beneficial!

I hope you get some sleep soon!

2 RIS K
Regular Member


Date Joined Aug 2008
Total Posts : 367
   Posted 3/26/2009 3:25 AM (GMT -6)   
Thank you friends for all the good advice on sleep. Unfortunately nothing is working!! It's so early am here and I'm wide awake. I went to bed at 10pm and woke up at 1:30am and have been up for two hours. I'm going to go and try to sleep again in a second but thought I'd check in and vent a little more...i'm so miserable and I have a full day tomorrow. It wouldn't even be so bad if I could supplement with a nap during the day but even that doesn't work. Well, wish me luck! I'm off to lie down and try it again....
Amanda
35 years old
Chronic Lifetime Constipation
Diagnosed IBS - 1995
Rectal Prolapse - February 2007
Rectosigmoid Colectomy w/low anterior Anastomosis - March 13, 2007
Diagnosed with Colonic Inertia - June 08
Total Colectomy - September 22, 2008
Temporary Ileostomy due to small bowell perforation Septepmber 29, 2008
Ileostomy Reversal - December 15, 2008
Multiple Small Bowel Abscesses-December 22, 2008
Leak at original Anastamosis -December 25, 2008
JP Drain removed - January 23, 2009
Still adjusting to life without my large intestine...
 
The whole world is at your feet; so paint your toenails Red!
 


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 3/26/2009 3:55 AM (GMT -6)   
I get my sleep cycles messed up every now and then too. I have been taking a xanax at night for a while now for anxiiety, but only take it at night. When I haven't had a good night's sleep for a couple of nights, I go back on the ambien for a little while to try to get my body's "clock" back in sync. It's been working pretty well for me. I don't have any issues with xanax and ambien, except I have to plan on at least 8 hrs of sleep IF I am lucky enough to be asleep that long. I am a very light sleeper and noises wake me -- ie. toilet flushing when DH is up in the middle of the night, cat meowing outside, etc. I hate it. That's why I am up now. My alarm is set for 6:30. I would definitely try the exercise... even if you are feeling tired from your hectic schedule, go for a walk in the fresh air after supper. I love to take a hot shower before I go to bed - it's relaxing for me. But some folks use their showers to "wake" up. That would be a personal decision for you. I sympathize and emphathize on this subject. Best of luck to you and let us know what you find that works.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 3/26/2009 4:03 AM (GMT -6)   

I thought of a couple of more things.... time released drugs don't work for most of us because of transit time.

I also read a really good article in one of those airplane magazines in Feb.  Here are a couple of suggestions, some of which you already know:  No caffeine after morning, watch sugar intake late afternoon/evening; get exercise and 2 of the ones that I have now adopted:

  turn all clocks where you cannot see the time when you wake up (I like this one).  Then you are not counting down the hours until you are supposed to be getting up.  This one really hit the mark for me.  If your alarm hasn't gone off, and you would know that, then you are supposed to be asleep, right?

and

  use a sleep mask to keep out all light, even if you have curtains pulled and it is dark in your room .... I have done this as well.  I really have adjusted to mine and love it.  $3 at Walmart! 

Now all I need to do is get EAR PLUGS!!!  Wish I could tolerate wearing them, but I just can't.  Besides, personally I just don't think it is safe doing that at night.


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


2 RIS K
Regular Member


Date Joined Aug 2008
Total Posts : 367
   Posted 3/26/2009 8:18 AM (GMT -6)   
That's great Peggy; I never thought of those suggestions. I'm also going to pick up my xanax refill today. I've been out of it for a week and I normally take it before bed too, otherwise my mind just goes and goes and goes...it's awful!
Amanda
35 years old
Chronic Lifetime Constipation
Diagnosed IBS - 1995
Rectal Prolapse - February 2007
Rectosigmoid Colectomy w/low anterior Anastomosis - March 13, 2007
Diagnosed with Colonic Inertia - June 08
Total Colectomy - September 22, 2008
Temporary Ileostomy due to small bowell perforation Septepmber 29, 2008
Ileostomy Reversal - December 15, 2008
Multiple Small Bowel Abscesses-December 22, 2008
Leak at original Anastamosis -December 25, 2008
JP Drain removed - January 23, 2009
Still adjusting to life without my large intestine...
 
The whole world is at your feet; so paint your toenails Red!
 


2 RIS K
Regular Member


Date Joined Aug 2008
Total Posts : 367
   Posted 3/26/2009 6:29 PM (GMT -6)   
I got my xanax refilled today. Maybe I'll be able to sleep tonight...Anyone wanna take bets??
Amanda
35 years old
Chronic Lifetime Constipation
Diagnosed IBS - 1995
Rectal Prolapse - February 2007
Rectosigmoid Colectomy w/low anterior Anastomosis - March 13, 2007
Diagnosed with Colonic Inertia - June 08
Total Colectomy - September 22, 2008
Temporary Ileostomy due to small bowell perforation Septepmber 29, 2008
Ileostomy Reversal - December 15, 2008
Multiple Small Bowel Abscesses-December 22, 2008
Leak at original Anastamosis -December 25, 2008
JP Drain removed - January 23, 2009
Still adjusting to life without my large intestine...
 
The whole world is at your feet; so paint your toenails Red!
 


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 3/27/2009 5:44 PM (GMT -6)   
So, Amanda, did you sleep last night?  I'm curious...

Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 

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