Flying with ileostomy

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Pibbin
Regular Member


Date Joined Apr 2008
Total Posts : 163
   Posted 3/25/2009 2:18 PM (GMT -6)   
I am enjoying not having had to call my surgeon with any issues lately, and would like to continue my winning streak. :-) So I will ask y'all: Are there any issues I need to be aware of if planning a flight with a temporary ileostomy? There will likely be a funeral that I need to attend in the upcoming weeks, and I would really like to be able to attend. I am not currently on any meds, and am managing with my stoma/appliance just fine. Prior to my surgery, flying always triggered a flare for me, so just want to make sure that I am in the clear now that I have no colon.
Dx Mild Proctitis 7/06 at age 33, Dx Severe Pan Colitis 5/07, Dx Crohn's Colitis 10/07
Failed Asacol, Lialda, 6-MP, Canasa, Rowasa, Proctofoam, Entocort, Remicade, Humira
10/10/08 colon removed, temporary ileostomy
11/10/08 FINALLY off prednisone after 18 months
2nd of 3 surgeries planned for '09 to form j-pouch


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 3/25/2009 4:43 PM (GMT -6)   
i havent flown, and have no plans too, lol. But the only thing i can say is make sure that your flange is precut so that you dont have to take the little scissors on the plane with your travel bag.

NEsailor
Regular Member


Date Joined Mar 2009
Total Posts : 31
   Posted 3/25/2009 5:40 PM (GMT -6)   
only possibility is someone from TSA going through your stuff, pretty much. Happened to me once and I told the woman what it was (they'd wondered on the x ray and stupid me had left hand sanitizer in my brief case ..... liquids concealed, bad!). She looked sort of freaked and handed me back my back without tossing the stuff all over the airport! tongue If you're concerned get a note from your doctor explaining your condition. I've been flying with this since the mid 1980s. I can't think of any issues. Anything I can do on terra firma, I can do on a plane!

Pibbin
Regular Member


Date Joined Apr 2008
Total Posts : 163
   Posted 3/25/2009 5:54 PM (GMT -6)   
I never would have thought about the scissors -- thanks Summer for the good advice to cut the wafers first!

I caved, and called the surgeon's office. Medically, no reason I can't do it, which is good news.
Dx Mild Proctitis 7/06 at age 33, Dx Severe Pan Colitis 5/07, Dx Crohn's Colitis 10/07
Failed Asacol, Lialda, 6-MP, Canasa, Rowasa, Proctofoam, Entocort, Remicade, Humira
10/10/08 colon removed, temporary ileostomy
11/10/08 FINALLY off prednisone after 18 months
2nd of 3 surgeries planned for '09 to form j-pouch


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 3/25/2009 6:56 PM (GMT -6)   
Also, you can pre-cut any waterproof tape and stick it to a plastic bag...just one of those things that "what it" you've got a bandaid!!

Go to www.UOAA.org for a link on what to do...

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 3/25/2009 9:10 PM (GMT -6)   
the only reason i thought about the scissors is cause i had to do that when i had jury duty! they search your stuff and wouldnt have let me take my scissors in, so in the parkign lot of the bank (that's where it hought of this on the way to the courthouse) i pulled out my stuff and cut out the holes, lol.

dilatante
Regular Member


Date Joined Jan 2009
Total Posts : 125
   Posted 3/26/2009 3:30 AM (GMT -6)   
I flew in february, on a small plane, without any problems. Like someone said, don't forget to pack your scissors in something besides your carryon bag. OR precut your appliances. I took 5 extras with me, and only had a leak once. I was well prepared. Probably over prepared, but didn't want to have to think about having to find some place to buy stuff while out of town. I would put your paste in a ziplock bag. good luck!!

Pibbin
Regular Member


Date Joined Apr 2008
Total Posts : 163
   Posted 3/26/2009 9:26 AM (GMT -6)   
Thank you for all of the good suggestions. I am just going for 48 hours, so won't be checking luggage, and will leave my trusty scissors at home. Will definitely pack a few wafers that I will cut ahead of time. And I will also bring some extra ziplock bags, just in case anything stinky needs to be disposed of.

Summer, you made me LOL imagining you in a parking lot, furiously cutting away. :)
Dx Mild Proctitis 7/06 at age 33, Dx Severe Pan Colitis 5/07, Dx Crohn's Colitis 10/07
Failed Asacol, Lialda, 6-MP, Canasa, Rowasa, Proctofoam, Entocort, Remicade, Humira
10/10/08 colon removed, temporary ileostomy
11/10/08 FINALLY off prednisone after 18 months
2nd of 3 surgeries planned for '09 to form j-pouch

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