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Janiepain
Veteran Member


Date Joined Jan 2007
Total Posts : 662
   Posted 3/26/2009 1:08 PM (GMT -6)   
Well crap, just posted a long post about just getting home but I am WAY too tired to type again.  I must have hit cancel instead of submit?  I'm not surprised. 
 
I'm fine, will write all about it after a nap!
Janie

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 3/26/2009 1:29 PM (GMT -6)   
hey Janie.... WELCOME HOME!!! so glad to hear from you, oh never mind about the post, just knowing you're home and doing o.k is great, but...... can't wait to hear all about it.

just take your time and get some rest.
Hodaya
 
06/05/2007 - STARR procedure 
colonic inertia w/ pelvic floor dysfunction


XtremeMisery
Veteran Member


Date Joined Sep 2007
Total Posts : 687
   Posted 3/26/2009 1:53 PM (GMT -6)   

So good to know your home!!!!! When you muster up the energy let us know how it went. Take your time!!!

Lizzie


Chronic Lifetime Constipation
Diagnosed IBS-C 2000
Diagnosed Colonic Inertia-Oct 2007
Total Colectomy with ileorectal anastamosis- Jan 28, 2008
Ileus with suspected leak- Feb 1, 2008
Four abdominal abscesses- Feb 2008
2 JP drains- Feb 2008
Diagnosed with small bowel Fistula- March 6 2008
Drains removed- End of March 2008
Continued Constipation- biofeedback for 3 mo Aug 2008
Botox injections Dec. 17 2008
Currently Diagnosed with Anismus and getting second opinion
 @ U of M March 30
 
"The Greatest Healing Therapy is Friendship and Love"


Janiepain
Veteran Member


Date Joined Jan 2007
Total Posts : 662
   Posted 3/26/2009 5:25 PM (GMT -6)   
Hi everyone,

Well, finally got home today after 8 nights. It went ok, operation took 5.5 hours and the doctor said my colon was 8 feet long--normal is 5-6 feet. He thinks that might one of the problems with my lifetime constipation.

First, let me just say that I pray I never have to spend 8 nights in the hospital again. I am not a patient patient!! LOL Even though I felt horrible the first few days, I was going stir crazy. My husband stayed the entire week with me since the hopsital is about 50 miles away and bless his heart, he slept every night on the pull up couch....or my hospital bed..or the lounger in the room. Neither of us could get comfortable anywhere so during the night we'd often change locations....which isn't that easy to do when you're hooked up to all kinds of tubes and contraptions with a catheter between your leg! The nurses joked that they had to do double checks throughout the night to make sure they were taking the right person's vitals!

I came out with an NJ tube which I had for 5 days. My bowels didn't want to wake up. Neither did my bladder. Surgery was Wed. and they took my catheter out on Sunday only to have to put it back in on Monday. It finally came out on Wednesday and I was finally able to pee. They tried disconnecting me from the NJ tube on Sunday as well, but I started getting nauseous so they hooked it back up until Monday evening. It was wonderful to get rid of that thing!

Monday night and all day Tuesday I was on a liquid diet, and I immediately got the squirts....everywhere. Without any notice at all. I was completely comfined to the room from about 8pm Monday night until late Tuesday. Monday night all I had was 1/2 cup bowl of beef broth and about 5 bites of jello, but I know I went over 30 times that night and the next day before noon. I would just lie there and go on pads in the bed. I had no control whatsoever. My hubby went out and bought some depends and with a little imagination, figured out how to get some on with a catheter still in me! I was so depressed all day Monday because I thought life was over....how could I live a normal life if I couldn't control my liquidy mess??? Anyway, the depends made a huge difference and the next day I had a nomal diet.

My first meal was french toast with syrup. about 15 minutes after I ate, I got the urge, went to the bathroom and did that about 4 times over the next 1/5 hours. Lunch was spaghetti--same thing. 4 bm's in an hour and a half. Very liquidy but controllable. Dinner was rice, chicken roll and sherbet and the same thing. Doc said all is well and go home...eat whatever you want, and if it doesn't agree with me, try again in a couple weeks.

However, today is different. I only ate a little cereal for breakfast because we were coming home and I didn't want to have to go alot. I went a couple times, very little, and then haven't gone hardly at all since. I had rice for lunch and for dinner 1/2 ham sandwich and a little watermelon. Since12:00 I've only gone 2 times and it's been very very smal amounts, less than the amounts from any of the times in the hospital, even when I was going every 15 minutes.

I feel full. I lost 9.5 pounds while in the hospital but since eating lunch and dinner and not going, I'm pretty uncomfortable This was what I've been so afraid of. I'm pretty bummed, but I'm not going to panic yet. I had rice in the hospital but it was brown rice and today I ate white. Wonder if that matters?

I haven't had a chance to catch up much here, but want to check and see how everyone is doing tomorrow. I have to say surgery was definitely not a picnic. I felt like I'd been run over by a truck. I don't think I've ever felt so completely shut down in my life, but remember most of you are much younger than me. I'm 53 and you all are young spring chickens!!

Will catch up with you all on the CI thread tomorrow. This time I hope I press submit instead of cancel. My first post was much funnier and I was feeling so optomistic. Well, poop.

Janie

kimlin08
Regular Member


Date Joined Feb 2009
Total Posts : 46
   Posted 3/26/2009 6:17 PM (GMT -6)   
Glad you are home Janie...I just spend 26 days in teh hospital in january  and have a upcoming reversal in August.....What was your surgery.....did you have a reversal? and good luck and i wish you many good days ahead of u...kim/maggie
Maggie in tennessee....coping


2 RIS K
Regular Member


Date Joined Aug 2008
Total Posts : 367
   Posted 3/26/2009 6:35 PM (GMT -6)   
Janie I'm so glad you are home!! I was worried about you! 8 days huh, that's no fun. I know exactly what you mean about not being able to control it in the beginning. It's horrible, I too wondered if life was over or if I'd made a mistake. Overall you sound like you are in good spirits and that makes me happy. Just follow your doctor's orders, be sure to take it easy and be good to yourself.

Thinking of you!!
Amanda
35 years old
Chronic Lifetime Constipation
Diagnosed IBS - 1995
Rectal Prolapse - February 2007
Rectosigmoid Colectomy w/low anterior Anastomosis - March 13, 2007
Diagnosed with Colonic Inertia - June 08
Total Colectomy - September 22, 2008
Temporary Ileostomy due to small bowell perforation Septepmber 29, 2008
Ileostomy Reversal - December 15, 2008
Multiple Small Bowel Abscesses-December 22, 2008
Leak at original Anastamosis -December 25, 2008
JP Drain removed - January 23, 2009
Still adjusting to life without my large intestine...
 
The whole world is at your feet; so paint your toenails Red!
 


2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 3/27/2009 3:24 AM (GMT -6)   
LOL Janie... you ARE too funny!! after going through such major surgery and you're able to keep such good spirit. i hope i'll be able to be like that after mine!

i'm so glad it went well, no major complications. things still are suppose to change for a while, so don't panic yet. i've read here before about others that things were slowing down for a while right in the beginning, but got better after a short while, so maybe there's some disorder in the beginning, but it will all become more stable and your bms will be put in order!

don't forget to keep hydrated.

love you, my friend, and praying for you!!
Hodaya
 
06/05/2007 - STARR procedure 
colonic inertia w/ pelvic floor dysfunction


Janiepain
Veteran Member


Date Joined Jan 2007
Total Posts : 662
   Posted 3/27/2009 8:48 AM (GMT -6)   
Kim,
 
My surgery was for colon inertia.  I have suffered my entire life, and I finally decided to do something about it.   I don't have any bags, appliances, etc.  My small intestine is connected to my rectum.  I do have some pelvic floor dysfunction, and tried biofeedback before surgery with no luck, so I'm hoping that won't be an additional problem. 
 
When I posted yesterday I wasn't feeling that great, but this morning at 4 am I had to go the bathroom. and again at 8:00. so I'm feeling better.  I'm going to try to not panic if I don't go, I guess one day's schedule is not necessarily the next day's schedule!  It's only been a few days, but like most of you know, we're all so afraid we'll either go too much (well, I'm not nearly as afraid of that as I was) or not be able to still go.
 
Lots of company (family) coming for the weekend, but they'll take care of me!  Actually I'm up, dressed and straightening up the house a little.  My doctor said no heavy lifting for 6 weeks (over 10 lbs) but other than that,  activity as tolerated.  I'm not telling my family all that though, I'm looking forward to a little R&R this weekend!!

Janiepain
Veteran Member


Date Joined Jan 2007
Total Posts : 662
   Posted 3/27/2009 8:51 AM (GMT -6)   

P.S. Thanks Amanda and Hodaya. It's so good to be home!

Amanda, are you feeling better?  Are you sleeping now?  I want to check out your website, sounds like it's pretty cool!

Hodaya, I've been praying for your mom, and I'm proud of you for at least cutting back to 1/2 the cigarattes.  I know with all the stress you're under it can't be easy, but I'm proud of you sweetie!!


2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 3/27/2009 9:03 AM (GMT -6)   
i'm glad you feel better now. i can so understand your fears, as i have them too. lets hope for the best.

thanks so much for your encouragment and prayers!! it means so much to me.

o.k i'm off for the sabbath, but thinking of you!
Hodaya
 
06/05/2007 - STARR procedure 
colonic inertia w/ pelvic floor dysfunction


psygirl6
Regular Member


Date Joined Aug 2008
Total Posts : 268
   Posted 3/28/2009 6:57 AM (GMT -6)   
Hi Janie,
Welcome home and congrats on your recovery. I am very glad everything went well. i just want to wish you good luck with everything and get lots of rest. Have fun with the family.
Maya
Rectal Prolapse Surgery: December 2006
diagnosed with slow transit constipation: June 2008
total colectomy with ileo-rectal anamastosis: Aug 7, 2008
Numerous food intolerances (gluten,lactose,msg,etc)


XtremeMisery
Veteran Member


Date Joined Sep 2007
Total Posts : 687
   Posted 3/28/2009 9:06 AM (GMT -6)   

Janie....so glad you are Home and sounds like doing well!!!! Take advantage of that R/R....you need it. Your body needs to fully heal!!!! Praying for you!

Lizzie


Chronic Lifetime Constipation
Diagnosed IBS-C 2000
Diagnosed Colonic Inertia-Oct 2007
Total Colectomy with ileorectal anastamosis- Jan 28, 2008
Ileus with suspected leak- Feb 1, 2008
Four abdominal abscesses- Feb 2008
2 JP drains- Feb 2008
Diagnosed with small bowel Fistula- March 6 2008
Drains removed- End of March 2008
Continued Constipation- biofeedback for 3 mo Aug 2008
Botox injections Dec. 17 2008
Currently Diagnosed with Anismus and getting second opinion
 @ U of M March 30
 
"The Greatest Healing Therapy is Friendship and Love"

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