active crohns 7 months after reversal surgery....pissed

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bella3250
Regular Member


Date Joined Aug 2008
Total Posts : 351
   Posted 3/29/2009 7:34 PM (GMT -6)   
Hi everyone.  I had a small bowel ressection in august of 08' with a temp ileostomy.  i was reversed on october 23 08'.  Everything was going great.  Then the diareah started again and knew something wasn't right.  i went to my gi doc and we did a colonsocopy and sure enough i have active crohn's at the reconnection site.  i also have inactive crohns in my rectum and a little higher up before my reconnection.  i'm so angry.  i was told the average remission was 2 to 5 years.  i got 7 months.  to top it all off i also have c diff which i was put on flagyl for.  hate flagyl.  i'm sure you guys know what i mean.  anyone here had a similiar experience.  thanks in advance.

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 3/29/2009 7:43 PM (GMT -6)   
I'm so sorry to hear this.  sad  I hope you can get it into remission with one of the newer medicines, like Humira.

Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 3/29/2009 11:46 PM (GMT -6)   
Check out my signature... that explains it for me. Been in your shoes. Many resections, temp ostomy, reconnection was not successful for me. I fought very hard not to have perm ileostomy, I was in high school at the time, but it was the best move I was forced to make. I have been free from CD since and that was July 1984 when I had my perm ileostomy done. No Kidding.

Best of luck to you. What is the game plan for you? Are you gonna try meds to get it in remission again? Flagyl may help the CD too. C diff sucks!
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 3/30/2009 6:22 AM (GMT -6)   
Yup, been there...It is such a personal decision, but I opted for an ileo again (about 7 years ago) and just did the proctocolectomy last year. Unfortunately, meds failed for me, but I had to try them first!

Keep your chin up, you'll get through this...one benefit is that you know what life is like with an ileo so you can make more informed decisions!
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