Can you be approved for Disablity because of an Ileostomy?

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Fribster
New Member


Date Joined May 2008
Total Posts : 14
   Posted 3/30/2009 7:39 PM (GMT -6)   
I work for UPS or did until 2 years ago when I began this adventure to the ileostomy zone.  I don't know whether I can go back to work or if I will be able to get on Soc Sec Disablity. 
 
Does anyone know the percentage of people who do work after surgery.

pepperann27
Regular Member


Date Joined Dec 2008
Total Posts : 147
   Posted 3/30/2009 10:57 PM (GMT -6)   
I don't know a percentage but I get SSI and I have an ostomy, I have alot of pain though that causes me not to be able to work. So you can always try.
thanks, Dusti

Diagnosed with colonic inertia at 13 years old, had my colon removed.
Diagnosed with rectal inertia at 16 years old, had my rectum removed and had a jpouch made.
Diagnosed with small bowel inertia at 18 years old, and got an ileostomy wich I still have. I am 27 now.
If you want to know more, just ask me!
"Don't worry about failure, worry about the chances you miss when you don't even try"
 


Shaz032
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Date Joined Feb 2003
Total Posts : 1194
   Posted 3/30/2009 11:34 PM (GMT -6)   
An Ostomy itself is not usually a cause for disability as for the most part, people are more 'abled' than before surgery once they've healed... however, the reason behind the surgery might be if you're still suffering despite surgery.
I have had an ileostomy for 33 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!


slim18996
Regular Member


Date Joined Apr 2008
Total Posts : 99
   Posted 3/31/2009 3:48 PM (GMT -6)   
I'm no expert with SSI but thanks to all I have been through I have a little knowledge of it. From what I have learned, the decision is based on if your "disability", in your case your ostomy, impedes your ability to perform your job. They also look back to find any previous jobs you held that you might be able to do. If your primary doctor has decided that due to your situation that you shouldn't say lift over a certain amount but your job requires it then you stand a good chance. There are other scenarios but that was the first one I could think of. Also like pepperann27 mentioned if there is uncontrolled pain associated with your after surgery status that could be an reason also.

As far as the percentage of people who get SSI after surgery goes, I would guess, and it is only a guess, that it is small. That does not mean that everyone is able to return to work after having the surgery. If you feel you cannot continue to work then apply, if denied the first time file an appeal and be prepared to wait. If you plan on filing an appeal that might be when you want to take it to a lawyer. By federal laws they (the lawyers) can not charge you any fees unless you receive a settlement and then it is a percentage up to a set amount.

Just what little I know.

John

Total Colectomy with End Ileostomy May 27th, 2008


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3067
   Posted 4/1/2009 6:47 AM (GMT -6)   
have you had the surgery?

I would think that even if you cannot do the job you were doing before because of doctor restrictions, you'd be able to find something else with them...it wouldn't hurt to ask! But, finding a new job wouldn't be impeded by an ileo...vetteguy just posted that he's been hired recently...and you might find something that you like better:) Personally, I worked for a major retailer and was able to lift/stand on my feet/drive equipment without a problem, but it is an individual thing.

Hopefully, it you've had the surgery already, you are feeling better:)

Arundinaria
Regular Member


Date Joined Apr 2007
Total Posts : 160
   Posted 4/2/2009 10:42 AM (GMT -6)   
The information that John gsve is right on. I used to be a SSA office manager and I counseled everyone to file a claim and if necessary appeal. ,
Ralph
When there are no more choices, tha decision is easy!


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5402
   Posted 4/2/2009 11:30 AM (GMT -6)   
It's also very possible that you would be offered job re-training. There are plenty of jobs you could do with an ostomy; an ostomy itself isn't reason enough for permanent disability.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 4/2/2009 9:19 PM (GMT -6)   
Arundinaria --- good to see you posting again!!!! Welcome Back!!!!
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


slim18996
Regular Member


Date Joined Apr 2008
Total Posts : 99
   Posted 4/3/2009 7:20 PM (GMT -6)   
Actually suebear an ostomy can be a reason for disability. Retraining, or otherwise known as Vocational Rehabilitation is handled at the State level. Social Security/Disability is handled at the Federal level. Each program is a separate entity and in no way collaborates with the other. SS/Disability does not determine your status based on whether or not you can be retrained, it is based on whether you can return to any employment you have had within the last 10 or so years. If you are found to meet those standards you are granted SS/Disability based on that, not on what you may possibly be able to do in the future.

An example of an ostomy being a disability by itself comes to play in my situation. After the initial surgery, prior to all of my hernia problems, which has intensified my situation, it was deemed by the surgeon that I shouldn't lift over 25 lbs. My job as an over the road truck driver required me to take a DOT physical (Federally mandated) that one of the requirements is to be able to lift 75 lbs. from the ground to chest level. Also in the job description there is a requirement to be able to unload a truckload of freight by hand that could weigh up to 45,000 total pounds. This would have been enough to make me a candidate except in my job history there was a period when I was first diagnosed with UC that my employer moved me from driving to a position that was classified as a "dispatch" position. In the normal sense a dispatch job would be able to be done with an ostomy but this position doesn't fit the Government's definition of dispatcher. The only dispatch work I did was to make a weekly schedule of what driver went where then on days that I wasn't having major UC symptoms I would drive and was required to be able to fit the requirements of a truck driver. If it wasn't for my hernia issues that are still unresolved I would still have a case for disability base on the surgeons recommendations and the lifting requirements of the job that I preformed for the last fifteen years.

Vocational Rehab is a nice program but it doesn't pay the bills the two plus years I would be going to school. Some people who have ostomy surgery seem to have no problems and return to work within a few weeks after the surgery but then there are those of us who have had problems or work histories that don't coincide with an ostomy.

John

Total Colectomy with End Ileostomy May 27th, 2008


GISGuy31
Regular Member


Date Joined Feb 2008
Total Posts : 79
   Posted 4/4/2009 10:25 PM (GMT -6)   
When I had my ileostomy, I was not allowed to lift more than 30 pounds at a time. That was my only restriction. If you work for UPS they may need to reclassify you to a different position where you don't have to lift heavy items.
Age 0 to 30 - 100% healthy, no meds, no doctor visits, no hospital stays
Oct. 2006 - Symptoms of UC began
3/5/2007 - Diagnosed with UC - Severe Pancolitis
20mg-40mg/day Prednisone, 4.8 g/day Asacol - didn't work at all
10/12/2007 - Steroid Induced Osteoporosis from Prednisone and Anemic
add Actonel (75mgx2 pills/month) and daily iron pills
2/12/2008 - open Subtotal Colectomy with Temporary Ileostomy Surgery
8/05/2008 - Unexpected surgery to remove blockage caused by scar tissue
11/20/2008 - J-Pouch + Reversal Surgery - Now living happily ever after!!!
"When life gives you lemons...make lemonade"


trey123
New Member


Date Joined May 2014
Total Posts : 9
   Posted 6/11/2014 9:49 AM (GMT -6)   
I work for a major freight company and I'm required to lift 70 lbs and push a hand cart that can weigh 100's of lbs. Please let me know what happen in your situation because I'm on the fence about trying to return to work with those duties after the Loop Stoma Reversal .. My surgery was in May and I'm still hurting when I overdo simple housework ... I'm leaning towards applying for SS Disability but I feel I won't have my surgeon's support .. I have had 3 hernia's already when I was a boy and I'm very afraid of another ... Any help ??

not creative
Regular Member


Date Joined Mar 2007
Total Posts : 392
   Posted 6/11/2014 5:12 PM (GMT -6)   
I have been working full-time since I got my ostomy 4 years ago. I have a desk job and generally do not have to lift things but I have been told not to life over 15-20 lbs to avoid hernia so I just ask for help if the need arises.
Laurenne
Dx'd w/ IBS and CD in 2002. 3-9-10: Total proctectomy and Sigmoid colostomy
1-2014: Diagnosed with Fibromyalgia after long flare- Cymbalta started and very helpful with pain, depression, and anxiety
On: Simponi, 6MP, Cymbalta, Strattera, synthroid, iron, multivitamin

LinCee
Regular Member


Date Joined Jun 2013
Total Posts : 47
   Posted 6/19/2014 12:00 AM (GMT -6)   
I am applying for SS Disability this week. Perm nerve damage in large intestine, I had a temp colostomy in late May 2013.... pain & a parastomal hernia developing by Oct! Underwent emerg surgery in Jan 2014 to replace temp (that was pulling back into the abdomen) with permanent colostomy....and I still have pain & constipation, which is controlled by daily medication.

I really tried hanging on to my secretarial job for those 7 1/2 months, but had a lot of absences & a few ER visits. It was horrible since I had no energy from the pain! My family Dr agreed that I should be on disability. If it affects your quality of life, you're dealing with a lot of pain, even after surgery, I'd go for it- apply for the disability!

Good luck, I hope you are one of the many that can go back to work, healed and without pain.

trey123
New Member


Date Joined May 2014
Total Posts : 9
   Posted 6/19/2014 5:43 AM (GMT -6)   
Thank you LinCee ! I hope all your problems get better soon . You have been through some very tough times compared to myself. I'm going for the Disability because I cannot return to my everyday job duties which requires me to lift 70lb packages very often . Appreciate your advice and you hang in there !!

GraphX12
New Member


Date Joined Jul 2014
Total Posts : 4
   Posted 7/30/2014 9:52 PM (GMT -6)   
This is a topic I've been thinking very hard about lately. I had UC for 20 years but had been doing very well without any meds. I had my routine colonoscopy in December of 2012. Within a couple of days I was sicker than I thought was humanly possible. The doctor who performed the colonoscopy continuously told me that I was having a flair-up and treated me with many different meds. Nothing worked, in fact I kept getting sicker. After 20 years of UC I know my body very well. I NEVER felt like this before. Then after 5 weeks and losing 10 pounds a week, I was tested for C. diff. Positive. It took 3 months to finally get rid of the C. diff. By then, I had gone from 220 lbs. to 150 lbs. and could hardly get out of bed. I ended up going to the Mayo Clinic and was told I had to have immediate ileostomy to save my life. The C. diff did so much damage. I had my surgery in April of 2013 and in June of 2013 I received a letter from my employer of 12 years that I have been terminated (desk job). Since then, I have applied for 144 jobs, gotten 8 responses, 5 of which were rejections, and 1 interview. I am plagued by hernias which become very painful at times. My stoma site bulges like a tennis ball cut in half. I have a lifelong lifting restriction of 45 lbs. Simple things I used to do cause me great pain at times. I am not ready to go under the knife again.

I have just begun researching whether or not I would qualify for permanent disability when I ran across this site. So what I have read from other posters above, it looks like my chances are very slim of qualifying for SS disability. Does anyone have any other experience with this? Any info would be GREATLY appreciated.
Doug

Post Edited (GraphX12) : 7/31/2014 8:19:00 AM (GMT-6)


trey123
New Member


Date Joined May 2014
Total Posts : 9
   Posted 7/31/2014 6:23 AM (GMT -6)   
Hey Doug , Sorry to hear all the problems you've had , wow. I'm starting to fill out the Paperwork for SSD in a few days . This process can take months , so I will get back to you .

GraphX12
New Member


Date Joined Jul 2014
Total Posts : 4
   Posted 7/31/2014 9:10 AM (GMT -6)   
trey123:
Thank you for your response and please keep me updated on your attempt at SSD.
I am convinced the C. diff (if anybody is not familiar with C. diff, just google it - it is becoming an epidemic) was introduced to me through unclean utensils during my colonoscopy. I was talking with a neighbor who is aware of what happened to me and low and behold the EXACT same thing happened to his best friend who had a routine colonoscopy at the EXACT same clinic by the EXACT same doctor. Luckily, they were able to diagnose/catch it in time to where he only had to have part of his large intestine removed.
I had never heard of C. diff before my experience but everybody PLEASE be aware of this bacteria. I came VERY close to dying - and not from the UC.

Post Edited (GraphX12) : 7/31/2014 8:23:35 AM (GMT-6)


trey123
New Member


Date Joined May 2014
Total Posts : 9
   Posted 7/31/2014 11:03 AM (GMT -6)   
You got it bro .. Hope u feel as good as you can in the future !!

not creative
Regular Member


Date Joined Mar 2007
Total Posts : 392
   Posted 7/31/2014 12:06 PM (GMT -6)   
I know that Crohn's Disease (most likely Colitis too, assuming the ostomy didn't "cure" the colitis- then you would have to prove that the ostomy is itself the disability) is on the list of recognized disabilities for the SSA. I looked at my options a few months ago and decided that if I could hang out for a few more years the retirement supplement from my current job would be better and make life on my disability better for my hubs and I. That said, if you don't have IBD, I think the process is more difficult. If you visit the SSA website, there is a lot of useful info, including an estimate of your monthly take home based on your work hx. Good luck to you!
Laurenne
Crohn's, Fibromyalgia
3-9-10: Total proctectomy and Sigmoid colostomy
On: Simponi, 6MP, Cymbalta, synthroid, iron, multivitamin

My blog is: www.earthtolaurenne.blogspot.com Sometimes I'm funny, mostly I just babble

GraphX12
New Member


Date Joined Jul 2014
Total Posts : 4
   Posted 7/31/2014 12:14 PM (GMT -6)   
trey123:
Thanks. What I saw while at the Mayo Clinic really keeps my situation in perspective. I've got it pretty easy compared to a lot of people. The hundreds of children I saw dying of cancer is the REAL tragedy. Compared to them and their families, I've got it made. Don't get me wrong, an ileostomy is something I wouldn't wish on a Packers fan (I'm a die hard Bears fan) and there are many days I start to feel "down", but then I immediately see all those faces of those kids I saw at the Mayo Clinic and I am snapped back to reality and realize how lucky I really am.

GraphX12
New Member


Date Joined Jul 2014
Total Posts : 4
   Posted 7/31/2014 12:22 PM (GMT -6)   
Laurenne:
I no longer have problems with UC. My problems are with the ileostomy - my doctor is keeping a close watch on my hernia. He said it is very easy to rip it open quite large which is a mess to try to fix. He actually had a patient tear his entire side. I have pain daily, some days not as bad, others pretty bad. A few weeks ago I had a respiratory infection and I thought I would rip myself in two with all the coughing I did. I think it actually made the hernia worse. I still have to hold my abdomen when I cough or laugh.
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