my whole body aches

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sammies
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Date Joined Feb 2008
Total Posts : 493
   Posted 3/31/2009 6:17 AM (GMT -6)   
Kind of wierd. For the past 2 days, my whole body has ached non-stop. Ribs hurt to the touch and swelling left over from surgery and malnourishment in my calves and feet is so sore. Back is killing me, headache, and feel like I've done a hundred sit ups. Percoset helps for a little while but this is wierd. I am in my 5th week from the ileo and procto. Any thoughts?
24+ years with Crohn's/colitis; fistulizing crohn's; ileostomy and proctocolectomy; propranolol and xanax; been on a ton of crohn's meds; praying to get through each day.


summerstorm
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Date Joined Aug 2006
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   Posted 3/31/2009 7:44 AM (GMT -6)   
feeling likeyou have done a thousand situps is totally normal!  
As for the other it could be cause you are getting up and doing more, or it could also be if you are taking less pain meds it could be like a withdrawal thing.

PSA
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Date Joined Jan 2009
Total Posts : 498
   Posted 3/31/2009 7:52 AM (GMT -6)   
Hi Sammies
I too had this problem after my first stage. I was told that this is because of lack of proteins and vitamins due to restricted diet. You have to make up the loss by having enough calories - normally a person needs about 2300 calories. You can have lots of choclates, banana shake, juices (if you can tolerate), diet supplements, milk, etc. Ensure that you have enough water to avoid dehydration.
Take Care
45 years Male
Diagnosed UC October 1989
Had two stage J Pouch Surgery Nov 2005 March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
on Combiflam, Multivitamins and restricted diet.
Tried Sallaki/Turmeric/Homoepathy/Allopathy/Chinese/Unani/Ayuvedic/Yoga before going for surgery
"Faith is the bird that sings when the dawn is still dark."
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracl: Albert Einstein
"What you are aware of you are in control of; what you are not aware of is in control of you."
 


summerstorm
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Date Joined Aug 2006
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   Posted 3/31/2009 7:55 AM (GMT -6)   
yes you know it could be dehyrdation, and part of dehyrdation is your potassium can get low and that can cause cramps and eating bananas will put that back in!

PSA.Delhi-I think you hit it right on the head!

sammies
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Date Joined Feb 2008
Total Posts : 493
   Posted 3/31/2009 6:05 PM (GMT -6)   
thank you so much for the ideas and reassurance. This helps so much! I am moving around a lot more--probably waking up muscles. I may not be drinking enough--I will up the potassium again too. Started a multivitamin today.

I had a banana the other night and the whole thing came out all chewed up! I was so surprised. I had a lot of loose stool last night which may be contributing to dehydration. Experimenting with immodium. Don't know how much to take. It is working--thank goodness.

I'm up to 100 lbs and am beginning to see myself fill out a little but the edema from the malnutrition is taking a long time to go out of my calves and ankles. Doc says to keep taking in the protein.

thanks again!!
24+ years with Crohn's/colitis; fistulizing crohn's; ileostomy and proctocolectomy; propranolol and xanax; been on a ton of crohn's meds; praying to get through each day.


flchurchlady
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Date Joined Jul 2007
Total Posts : 2765
   Posted 3/31/2009 7:50 PM (GMT -6)   
I like to make chocolate protein shakes in the blender with milk and banana. They are delicious! smilewinkgrin Hope you start to feel better soon!
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


Equestrian Mom
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Date Joined Mar 2008
Total Posts : 3115
   Posted 4/1/2009 5:38 AM (GMT -6)   
sammies,

How are things going today? Glad to hear you've been able to gain some weight! It takes time, but you are doing great:)

sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 4/1/2009 3:58 PM (GMT -6)   
thanks for checking on me! Things were much better until about 5pm and then my left side and back were killing me. Physical therapist came today so maybe I did too much--I also shopped and drove. She said that at 5 weeks, I'm bound to have days that are slow and that I feel really achy or unwell. She said the best thing is to go with it and rest. So hard b/c I want to do so much! Tried yogurt again today--hope it doesn't kill me again. :-) Tyring to get bananas in with banana bread.

Funny thing--a friend of mine brought me a shake of kale, mango, and pear. Oh how I wanted to drink it!!! I just thanked her--in a few months, right?
24+ years with Crohn's/colitis; fistulizing crohn's; ileostomy and proctocolectomy; propranolol and xanax; been on a ton of crohn's meds; praying to get through each day.


summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 4/1/2009 6:57 PM (GMT -6)   
i dont see why you couldnt drink a shake of that, its mushed up right? Like a milk shake, or a smoothie?

peggy113
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Date Joined Aug 2007
Total Posts : 1998
   Posted 4/1/2009 10:10 PM (GMT -6)   
I agree with Summer --- try a bit at a time. Stick it in the freezer. If it is too thick, stick it in the blender with some ice and make a smoothie.... mmmmm! You should be able to tolerate it.

You will find that right combination of immodium and foods that naturally thicken your output. How are potatoes, rice, pastas doing for you? I just found out that animal crackers work pretty well for me, and they come in chocalate!!! I munch on them all the time, esp when the hubby makes popcorn for himself. UGHHH. I can't tolerate more than a handful at a time, esp late at night before bed. That is really the only time I try to watch what and how much I eat of questionable items - right before you lay down for the night and are moving or active to keep things flowing through.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 4/1/2009 10:55 PM (GMT -6)   
peggy--I will try the animal crackers. Isn't kale like broccoli or spinach? I haven't had broccoli since I was a kid--before I knew I had crohn's. I would love to have juices like this--we have a great juice bar in town. But I'm so afraid. This shake is very smooth--no lumps or bumps from the mango, banana, or kale. The kale just scares me. I couldn't resist and have had a sip here and there as I open the frige. I'm still eating every 2-3 hours. Just woke up and ate--had eaten at 9pm and now it's 1:00am. Woke up so hungry.
24+ years with Crohn's/colitis; fistulizing crohn's; ileostomy and proctocolectomy; propranolol and xanax; been on a ton of crohn's meds; praying to get through each day.


Trad
Regular Member


Date Joined Mar 2009
Total Posts : 24
   Posted 4/2/2009 4:52 AM (GMT -6)   
Check for a temp or fever you dont want to have an infection. but probably diet as said above.

peggy113
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Date Joined Aug 2007
Total Posts : 1998
   Posted 4/2/2009 6:21 AM (GMT -6)   

Sammies,

Kale is a leafy green than can be a bit fiberous to eat if you just steam it -- much like spinach, you are right.  Even chopped spinach, like in dips, etc., can be too fiberous for some of us - esp if eaten in too large a quantity. (Been there, done that!  Like when you go to dinner and you are starved, and the dips are sitting out first....  oh my!  I do love it in dips too.)   But once it is blended and no longer "stringy", you should be fine.  Like I said, try a bit at a time.  It may even help thick things up a little.  I like to eat a banana with my breakfast cuz I love coffee in the morning.  Even tho it is decaf (& I use a lot of rich 1/2 & 1/2), it does run through rather quickly.  But when I eat the banana with my bagel or whatever, it seems to naturally slow it down.  It is just all a trial and error experience cuz each person is a bit different as you know.  If in doubt, check with us, try just a bit at a time and keep increasing the amount as you feel comfortable. 

Hope you are feeling well.
 
BTW,  I recently bought a tub of Philadelphia Cream Cheesecake Filling, already prepared for a cheesecake.... but I didn't make the cheesecake.   I used it to dip animal crackers!!!   Oh Heaven!!!  It is sooooooo good.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


summerstorm
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Date Joined Aug 2006
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   Posted 4/2/2009 7:59 AM (GMT -6)   
LOL peggy, i ate a block of cream cheese for lunch the other day its sooo good! well not the whole block of course.


I think that anything would be ok pureed up in a shake like that.

Equestrian Mom
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Date Joined Mar 2008
Total Posts : 3115
   Posted 4/2/2009 11:55 AM (GMT -6)   
That cream cheese stuff sounds GREAT...i might have to 'cheat'!!!

Sammies--I find that Hummus is a good 'thickener' for me. It's just ground up chick peas with a little garlic and the beans are high in protein, too!

You should be able to get a smoothie...I would pick things that, like they've said, might be made with less fibrous things and fruits without seeds, but that would only be for another week or so...you are close to the 6 week mark!!!

BTW...I didn't have a lot of stamina for close to 12 weeks, so don't worry too much that you aren't progressing fast enough...one day you'll wake up and GEE, DID I HAVE SURGERY?!!!

summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 4/2/2009 12:37 PM (GMT -6)   
i thought hummis was sheep insides?

jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 4/2/2009 12:49 PM (GMT -6)   
LOL- Hummus is chickpea pureed with garlic and olive oil and sometimes roasted red pepper. There are other varieties.
Jackie, 43
Pancolitis, DX October 06

Lexapro, Synthroid, Protonix,
Tapering prednisone from 40 mg


Surgery March 13th- Total Colectomy
Jpouch surgery to be done in 3 steps


Arundinaria
Regular Member


Date Joined Apr 2007
Total Posts : 160
   Posted 4/2/2009 2:27 PM (GMT -6)   
Summer Clkose but no cigar.Were you thinking of Haggis?? quite a different story

Ralph
When there are no more choices, tha decision is easy!


Equestrian Mom
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Date Joined Mar 2008
Total Posts : 3115
   Posted 4/2/2009 6:22 PM (GMT -6)   
OMG...I would NEVER eat sheep insides! and, I don't like chick peas, but I like hummus:)

peggy113
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Date Joined Aug 2007
Total Posts : 1998
   Posted 4/2/2009 9:08 PM (GMT -6)   

EWWWW - sheep insides.  yuk-pooey!  Ralph, how did you know Haggis?  Are you Scottish?  Do you have some Scottish heritage?

A Scottish dish consisting of a mixture of the minced heart, lungs, and liver of a sheep or calf mixed with suet, onions, oatmeal, and seasonings and boiled in the stomach of the slaughtered animal.

 

MMMMMM - hummus I love, esp with hot grilled pita bread to spread it on!!!!  I used to walk to this little Greek restaurant about 6 blocks from where I worked for lunch about every other day.  I'd get a large order of hummus and pita.  In fact, that was where I wanted to go for my BD dinner out!   And you are right, they do thicken up output, but the garlic smell is pretty pungent... use your M9 drops!!!


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 4/2/2009 9:35 PM (GMT -6)   
yes i was thinking haggis! lol, YUCK!!!
there was a guy at my friends bday party wearing a kilt none the less talkign about that, and i guess i got them mixed up.
I didnt know it was made in the stomach, OMG who thought of that???

donnaeil
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Date Joined Jun 2006
Total Posts : 1156
   Posted 4/3/2009 2:02 AM (GMT -6)   
Starving people thought of Haggis. This is the truth.

Donnaeil

PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 4/3/2009 2:51 AM (GMT -6)   
Please be cautious of brocolli as it tends to cause too much of gas (wind) acidity and loosies at times. It can also result in blockages. For me any green leaf vegetable is strict no-no. The moment I eat anything raw (which has not be cooked) I go bonkers. I am just doing sit ups on the throne. So I avoid all green leafy vegetables and fruits. What to do. I have to pull on safely, even if I have to keep eat restricted diet.

You can have banana with yogurt. It is very good for healthy stomach and gives lot of energy.
45 years Male Attorney
Diagnosed UC October 1989
Had two stage J Pouch Surgery Nov 2005 Take Down March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
"Faith is the bird that sings when the dawn is still dark."
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracl: Albert Einstein
"What you are aware of you are in control of; what you are not aware of is in control of you."
 

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