Colostomy reversal preop today, have some questions on caution from dr

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emma12s
Regular Member


Date Joined Nov 2008
Total Posts : 25
   Posted 4/2/2009 5:44 PM (GMT -6)   
I've posted a few times here, my "short" story is that in Oct I had ruptured diverticula, colon was resected, 4 days later it failed, ended up with temporary colostomy for 6 months.  Had my preop today for reversal on 4/14, and out of blue the dr asks me if he was unable to reconnect colon, would I want him to do jpouch surgery...and remove all of my colon.  He said that he likes to know whether his patients want rid of the bag no matter what that causes (more bm's a day and all of the other issues that go with having no colon).   Athough I certainly don't like having a colostomy, I'm pretty regular, and believe I could do the irrigation thing...as I only have to empty bag 1x per day now.  I don't like exactly where my stoma is, or the fact that I have developed quite a large parastomal hernia, and I'm having a few issues there, but that's another subject.  I actually feel "bowel healthy" now, have had bouts of diverticulitis for about 8 years, several times a year, which wasn't fun.  I can eat anything I want right now (have been eating popcorn--forgot how good it tastes!!!) 
 
I was unable to give him an answer today, I told him if I had a choice between a permanent colostomy and permanent ileostomy I would choose the colostomy, but, couldn't actually say that I would choose jpouch...over a colostomy.  Anyone with experience with these that could give me their opinion?  I am supposed to tell him something on the morning of surgery.  Anyone out there with diverticulitis caused colostomies that was asked the same thing?  I was just totally floored that I had to even think about that.  Right after the first surgery he assured me that all could be put back together again, no problems--just didn't anticipate this at all.  Please let me know what everyone thinks--thanks

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 4/2/2009 6:20 PM (GMT -6)   
well, I think it was really great of your doc to mention it...I know it can be hard to get your head around, but better deal with it now than be shocked if it cannot go the way you planned...trust me, I've been there:(

I'd suggest going to www.j-pouch.org...you should be able to find information more specific to your situation. Glad to hear you already have an opinion, that can be the hardest part!

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5690
   Posted 4/2/2009 7:53 PM (GMT -6)   

I have a jpouch and love it.  I eat everything (popcorn and nuts) and am very active as a long distance hiker and backpacker.  If you choose a jpouch just remember that you will have another recovery.  It's not hard but can be frustrating; especially since it seems your colostomy has restored your life.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


kimlin08
Regular Member


Date Joined Feb 2009
Total Posts : 46
   Posted 4/2/2009 9:07 PM (GMT -6)   
Emma, my story is like you in a way...my dr told me at first no problem with my reversal and now due to the paritinus i had he isnt being so sure.....I have read of hte j-pouch but still am notsure of what it is....it takes a while to understand all of this stuff.....anyway, i wish you well and hope you dont have any worries....kim
Maggie in tennessee....coping

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